I contacted some people from Solvay and a lady named Catharine emailed me back. She said she could mail me the two books "Beyond Lungs: Meeting The Needs of Adults With Cystic Fibrosis" and "Now That I Have CF". She was only willing to mail them directly to me if I was a doctor, so I lied and said I was. They were on my porch the next morning. Her email is
Catharine.Sanders@solvay.com
If you don't feel comfortable with lying, she said she could mail them to your doctor's office and then they could be passed onto you. This is exactly was I was looking for. Can't wait to read it.