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GSH and my experience
- Thread starter Chaggie
- Start date
my65roses4me
New member
Chris if Im not mistaking you for someone else haven't you had a transplant?
I am shocked that you have so much mucus if this is true.
I am shocked that you have so much mucus if this is true.
my65roses4me
New member
Chris if Im not mistaking you for someone else haven't you had a transplant?
I am shocked that you have so much mucus if this is true.
I am shocked that you have so much mucus if this is true.
my65roses4me
New member
Chris if Im not mistaking you for someone else haven't you had a transplant?
I am shocked that you have so much mucus if this is true.
I am shocked that you have so much mucus if this is true.
my65roses4me
New member
Ok thanks for letting me know. I thought you did so this left me confused. I guess my mind is playing tricks on me. Isn't the first and wont be the last LOL!!!
my65roses4me
New member
Ok thanks for letting me know. I thought you did so this left me confused. I guess my mind is playing tricks on me. Isn't the first and wont be the last LOL!!!
my65roses4me
New member
Ok thanks for letting me know. I thought you did so this left me confused. I guess my mind is playing tricks on me. Isn't the first and wont be the last LOL!!!
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>KrazyKat</b></i>
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?</end quote></div>
It is actually just a theory that those with cepacia should not inhale gsh. Cepacia in a cfers lungs is kept in check by the inflammation and when gsh is introduced the worry is that the inflammation will go way down (which is what happens with gsh) and the cepacia will actually go hay-wire and turn into cepacia syndrome...which of course is often fatal.
You should email Valerie Hudson or Dr. Clark Bishop and discuss your concerns with them. They are so open and helpful and could explain it so much better than my lame explanation.
Clark.Bishop@ihc.com
They could also tell you if there have been others with cepacia who have inhaled it.
I don't inhale it because I have reactive airway but I do take it orally and it has had a very positive effect on my health.
pm me if you have any questions.
also, Diane has cepacia and she takes it orally and has great things to say about it.
mandy
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?</end quote></div>
It is actually just a theory that those with cepacia should not inhale gsh. Cepacia in a cfers lungs is kept in check by the inflammation and when gsh is introduced the worry is that the inflammation will go way down (which is what happens with gsh) and the cepacia will actually go hay-wire and turn into cepacia syndrome...which of course is often fatal.
You should email Valerie Hudson or Dr. Clark Bishop and discuss your concerns with them. They are so open and helpful and could explain it so much better than my lame explanation.
Clark.Bishop@ihc.com
They could also tell you if there have been others with cepacia who have inhaled it.
I don't inhale it because I have reactive airway but I do take it orally and it has had a very positive effect on my health.
pm me if you have any questions.
also, Diane has cepacia and she takes it orally and has great things to say about it.
mandy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>KrazyKat</b></i>
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?</end quote></div>
It is actually just a theory that those with cepacia should not inhale gsh. Cepacia in a cfers lungs is kept in check by the inflammation and when gsh is introduced the worry is that the inflammation will go way down (which is what happens with gsh) and the cepacia will actually go hay-wire and turn into cepacia syndrome...which of course is often fatal.
You should email Valerie Hudson or Dr. Clark Bishop and discuss your concerns with them. They are so open and helpful and could explain it so much better than my lame explanation.
Clark.Bishop@ihc.com
They could also tell you if there have been others with cepacia who have inhaled it.
I don't inhale it because I have reactive airway but I do take it orally and it has had a very positive effect on my health.
pm me if you have any questions.
also, Diane has cepacia and she takes it orally and has great things to say about it.
mandy
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?</end quote></div>
It is actually just a theory that those with cepacia should not inhale gsh. Cepacia in a cfers lungs is kept in check by the inflammation and when gsh is introduced the worry is that the inflammation will go way down (which is what happens with gsh) and the cepacia will actually go hay-wire and turn into cepacia syndrome...which of course is often fatal.
You should email Valerie Hudson or Dr. Clark Bishop and discuss your concerns with them. They are so open and helpful and could explain it so much better than my lame explanation.
Clark.Bishop@ihc.com
They could also tell you if there have been others with cepacia who have inhaled it.
I don't inhale it because I have reactive airway but I do take it orally and it has had a very positive effect on my health.
pm me if you have any questions.
also, Diane has cepacia and she takes it orally and has great things to say about it.
mandy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>KrazyKat</b></i>
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?</end quote></div>
It is actually just a theory that those with cepacia should not inhale gsh. Cepacia in a cfers lungs is kept in check by the inflammation and when gsh is introduced the worry is that the inflammation will go way down (which is what happens with gsh) and the cepacia will actually go hay-wire and turn into cepacia syndrome...which of course is often fatal.
You should email Valerie Hudson or Dr. Clark Bishop and discuss your concerns with them. They are so open and helpful and could explain it so much better than my lame explanation.
Clark.Bishop@ihc.com
They could also tell you if there have been others with cepacia who have inhaled it.
I don't inhale it because I have reactive airway but I do take it orally and it has had a very positive effect on my health.
pm me if you have any questions.
also, Diane has cepacia and she takes it orally and has great things to say about it.
mandy
I really like the sound of inhaling GSH but have the dreaded cepacia and have heard via various cf'ers on here that it is not good for those of us with cepacia to inhale it. Does anybody actually know why that is? I dont have problems with hemoptysis and never have, but don't want to do anything stupid. Can anybody answer this for me?</end quote></div>
It is actually just a theory that those with cepacia should not inhale gsh. Cepacia in a cfers lungs is kept in check by the inflammation and when gsh is introduced the worry is that the inflammation will go way down (which is what happens with gsh) and the cepacia will actually go hay-wire and turn into cepacia syndrome...which of course is often fatal.
You should email Valerie Hudson or Dr. Clark Bishop and discuss your concerns with them. They are so open and helpful and could explain it so much better than my lame explanation.
Clark.Bishop@ihc.com
They could also tell you if there have been others with cepacia who have inhaled it.
I don't inhale it because I have reactive airway but I do take it orally and it has had a very positive effect on my health.
pm me if you have any questions.
also, Diane has cepacia and she takes it orally and has great things to say about it.
mandy
This is a little off-topic, but I've read so much on this forum about GSH and NAC, and I want to bring it up at my son's next clinic visit. I just want to see what their views are, and if they have any patients using it and what their experience with it is, etc. So... when you say NAC do you spell it out like N-A-C or pronounce it like a word -nac- ? Silly, I know, but I want to atleast know how to say it when I'm discussing it with the doctors!<img src="i/expressions/face-icon-small-blush.gif" border="0">