hello everyone, I havent posted in a long time but I always come here to read. My daughter Rubie was dignosed at age 6 and she was so tiny..only 37lbs. Now at age 8 she is still very small...only 46lbs and thats on a good day. Her CF doc has been pushing the Gtube for about 6 months now and my husband and I have been fighting it. She eats well and I never skimp on the calories, she drinks her ensure and its still not enough. I want her to be strong and healthy enough to fight infection. I know that she needs the tube and I have to put my pain and fears aside and do what is best for my daughter. I would just like to know how long the healing time is, will she miss alot of school, is it better to get it done in the summer? Will she hate me for having her get it? I just wish there was a better way. I would appreciate any advice I can get. Thank you everyone. Liz
Mother to Rubie 8 ( double df508)
she loves listening to music and of course Hannah Montana
Mother to Rubie 8 ( double df508)
she loves listening to music and of course Hannah Montana