Had CF Clinic today

[MamatoAlexa]

Thank you for all your responses!

I e-mailed the Dr. Hale info to my Dr. The great thing about my Dr is that he is very open to what I want and very willing to listen and trust me so when we talk tomorrow I am going to bring up the points all of you mentioned.

Excellent point about the home iv's and non CF'ers needing to do them at home with no iv experience. And a good reminder that no matter how "open" my Dr seems I will still have to fight for myself from time to time!

I can still exercise just not at the pace I tried last week. I have been wearing Hannah around the house, while Alexa plays outside and on short walks. I just have to be careful w/ the treadmill because it tends to be more jarring.

I have a call into my primary Dr for a referral for a therapist, for DH and I and solo. DH and I are managing but I like everything we need to pay attention to our needs as individuals and as a couple. Like I told my husband, I am not a risk to myself or the children but I am stressed and overwhelmed and I can own that. The end of the pregnancy was hard on me mentally and that has carried over. Things like this are bound to happen from time to time - for everyone - add CF to the mix and there is just on more thing to add to the pile! Couple w/out CF as a factor go through a huge adjustment as children are added so I have to remind my husband that what we are feeling is normal but there is no reason to not sit and talk w/ a professional, it can only strengthen us!

Thank you again! I am off to bed!

 

[MamatoAlexa]

Thank you for all your responses!

I e-mailed the Dr. Hale info to my Dr. The great thing about my Dr is that he is very open to what I want and very willing to listen and trust me so when we talk tomorrow I am going to bring up the points all of you mentioned.

Excellent point about the home iv's and non CF'ers needing to do them at home with no iv experience. And a good reminder that no matter how "open" my Dr seems I will still have to fight for myself from time to time!

I can still exercise just not at the pace I tried last week. I have been wearing Hannah around the house, while Alexa plays outside and on short walks. I just have to be careful w/ the treadmill because it tends to be more jarring.

I have a call into my primary Dr for a referral for a therapist, for DH and I and solo. DH and I are managing but I like everything we need to pay attention to our needs as individuals and as a couple. Like I told my husband, I am not a risk to myself or the children but I am stressed and overwhelmed and I can own that. The end of the pregnancy was hard on me mentally and that has carried over. Things like this are bound to happen from time to time - for everyone - add CF to the mix and there is just on more thing to add to the pile! Couple w/out CF as a factor go through a huge adjustment as children are added so I have to remind my husband that what we are feeling is normal but there is no reason to not sit and talk w/ a professional, it can only strengthen us!

Thank you again! I am off to bed!

 

[MamatoAlexa]

Thank you for all your responses!

I e-mailed the Dr. Hale info to my Dr. The great thing about my Dr is that he is very open to what I want and very willing to listen and trust me so when we talk tomorrow I am going to bring up the points all of you mentioned.

Excellent point about the home iv's and non CF'ers needing to do them at home with no iv experience. And a good reminder that no matter how "open" my Dr seems I will still have to fight for myself from time to time!

I can still exercise just not at the pace I tried last week. I have been wearing Hannah around the house, while Alexa plays outside and on short walks. I just have to be careful w/ the treadmill because it tends to be more jarring.

I have a call into my primary Dr for a referral for a therapist, for DH and I and solo. DH and I are managing but I like everything we need to pay attention to our needs as individuals and as a couple. Like I told my husband, I am not a risk to myself or the children but I am stressed and overwhelmed and I can own that. The end of the pregnancy was hard on me mentally and that has carried over. Things like this are bound to happen from time to time - for everyone - add CF to the mix and there is just on more thing to add to the pile! Couple w/out CF as a factor go through a huge adjustment as children are added so I have to remind my husband that what we are feeling is normal but there is no reason to not sit and talk w/ a professional, it can only strengthen us!

Thank you again! I am off to bed!

 

[MamatoAlexa]

Thank you for all your responses!

I e-mailed the Dr. Hale info to my Dr. The great thing about my Dr is that he is very open to what I want and very willing to listen and trust me so when we talk tomorrow I am going to bring up the points all of you mentioned.

Excellent point about the home iv's and non CF'ers needing to do them at home with no iv experience. And a good reminder that no matter how "open" my Dr seems I will still have to fight for myself from time to time!

I can still exercise just not at the pace I tried last week. I have been wearing Hannah around the house, while Alexa plays outside and on short walks. I just have to be careful w/ the treadmill because it tends to be more jarring.

I have a call into my primary Dr for a referral for a therapist, for DH and I and solo. DH and I are managing but I like everything we need to pay attention to our needs as individuals and as a couple. Like I told my husband, I am not a risk to myself or the children but I am stressed and overwhelmed and I can own that. The end of the pregnancy was hard on me mentally and that has carried over. Things like this are bound to happen from time to time - for everyone - add CF to the mix and there is just on more thing to add to the pile! Couple w/out CF as a factor go through a huge adjustment as children are added so I have to remind my husband that what we are feeling is normal but there is no reason to not sit and talk w/ a professional, it can only strengthen us!

Thank you again! I am off to bed!

 

[MamatoAlexa]

Thank you for all your responses!
<br />
<br />I e-mailed the Dr. Hale info to my Dr. The great thing about my Dr is that he is very open to what I want and very willing to listen and trust me so when we talk tomorrow I am going to bring up the points all of you mentioned.
<br />
<br />Excellent point about the home iv's and non CF'ers needing to do them at home with no iv experience. And a good reminder that no matter how "open" my Dr seems I will still have to fight for myself from time to time!
<br />
<br />I can still exercise just not at the pace I tried last week. I have been wearing Hannah around the house, while Alexa plays outside and on short walks. I just have to be careful w/ the treadmill because it tends to be more jarring.
<br />
<br />I have a call into my primary Dr for a referral for a therapist, for DH and I and solo. DH and I are managing but I like everything we need to pay attention to our needs as individuals and as a couple. Like I told my husband, I am not a risk to myself or the children but I am stressed and overwhelmed and I can own that. The end of the pregnancy was hard on me mentally and that has carried over. Things like this are bound to happen from time to time - for everyone - add CF to the mix and there is just on more thing to add to the pile! Couple w/out CF as a factor go through a huge adjustment as children are added so I have to remind my husband that what we are feeling is normal but there is no reason to not sit and talk w/ a professional, it can only strengthen us!
<br />
<br />Thank you again! I am off to bed!

 

[rubyroselee]

Hi Anne,

**HUG**

I'm so sorry that things are a little hectic for you right now. I already know that things will be crazy once I have baby #2, but it's almost like you can't *really* know what it's going to be like until you're already in the mix. We constantly talk about how difficult it will be for us after the baby is born and having a toddler at the same time, but we know it just doesn't quite prepare you. But at least you and DH are talking and realizing that things are going to be crazy for awhile and that you've told him how difficult it is for you right now.

Especially when you're PFTs are down (even if you're not feeling all that bad), just the thought of having to need antibiotics, is stressful. You have to worry about BF and the meds, as well as whether or not to do IVs vs. oral, and just feeling kind of down about the whole thing. I remember when I wasn't feeling good in my pregnancy a couple months ago...they were talking about IVs for me and I was so stressed! I was worried about the baby, I was worried about my family, and I was worried about not getting better. But in the end, it all worked out for me and I kicked the flare up at the time. I was feeling pretty down about it through.

Don't ever feel guilty that you have to do things differently with Hannah than you did Alexa. I am going to try my best to give all the same things to my 2nd child, but if I can for some reason, then I can't. I want to be able to give all the same things...the same amount of BF time, the same amount of BF time...but I know things *happen*. What if I can't BF? What if I have so much to do that I can't give my toddler much attention? I will probably have a lot of guilt, but it's totally normal. It sort of comes down to survival (or close to it <img src="i/expressions/face-icon-small-smile.gif" border="0">) and what you have to do to get through this period. There's nothing wrong with adding a little formula if that's what will work for you. That way DH can have a chance to feed and you can have a little more time with Alexa and for yourself to get better.

Take care and take it easy!

 

[rubyroselee]

Hi Anne,

**HUG**

I'm so sorry that things are a little hectic for you right now. I already know that things will be crazy once I have baby #2, but it's almost like you can't *really* know what it's going to be like until you're already in the mix. We constantly talk about how difficult it will be for us after the baby is born and having a toddler at the same time, but we know it just doesn't quite prepare you. But at least you and DH are talking and realizing that things are going to be crazy for awhile and that you've told him how difficult it is for you right now.

Especially when you're PFTs are down (even if you're not feeling all that bad), just the thought of having to need antibiotics, is stressful. You have to worry about BF and the meds, as well as whether or not to do IVs vs. oral, and just feeling kind of down about the whole thing. I remember when I wasn't feeling good in my pregnancy a couple months ago...they were talking about IVs for me and I was so stressed! I was worried about the baby, I was worried about my family, and I was worried about not getting better. But in the end, it all worked out for me and I kicked the flare up at the time. I was feeling pretty down about it through.

Don't ever feel guilty that you have to do things differently with Hannah than you did Alexa. I am going to try my best to give all the same things to my 2nd child, but if I can for some reason, then I can't. I want to be able to give all the same things...the same amount of BF time, the same amount of BF time...but I know things *happen*. What if I can't BF? What if I have so much to do that I can't give my toddler much attention? I will probably have a lot of guilt, but it's totally normal. It sort of comes down to survival (or close to it <img src="i/expressions/face-icon-small-smile.gif" border="0">) and what you have to do to get through this period. There's nothing wrong with adding a little formula if that's what will work for you. That way DH can have a chance to feed and you can have a little more time with Alexa and for yourself to get better.

Take care and take it easy!

 

[rubyroselee]

Hi Anne,

**HUG**

I'm so sorry that things are a little hectic for you right now. I already know that things will be crazy once I have baby #2, but it's almost like you can't *really* know what it's going to be like until you're already in the mix. We constantly talk about how difficult it will be for us after the baby is born and having a toddler at the same time, but we know it just doesn't quite prepare you. But at least you and DH are talking and realizing that things are going to be crazy for awhile and that you've told him how difficult it is for you right now.

Especially when you're PFTs are down (even if you're not feeling all that bad), just the thought of having to need antibiotics, is stressful. You have to worry about BF and the meds, as well as whether or not to do IVs vs. oral, and just feeling kind of down about the whole thing. I remember when I wasn't feeling good in my pregnancy a couple months ago...they were talking about IVs for me and I was so stressed! I was worried about the baby, I was worried about my family, and I was worried about not getting better. But in the end, it all worked out for me and I kicked the flare up at the time. I was feeling pretty down about it through.

Don't ever feel guilty that you have to do things differently with Hannah than you did Alexa. I am going to try my best to give all the same things to my 2nd child, but if I can for some reason, then I can't. I want to be able to give all the same things...the same amount of BF time, the same amount of BF time...but I know things *happen*. What if I can't BF? What if I have so much to do that I can't give my toddler much attention? I will probably have a lot of guilt, but it's totally normal. It sort of comes down to survival (or close to it <img src="i/expressions/face-icon-small-smile.gif" border="0">) and what you have to do to get through this period. There's nothing wrong with adding a little formula if that's what will work for you. That way DH can have a chance to feed and you can have a little more time with Alexa and for yourself to get better.

Take care and take it easy!

 

[rubyroselee]

Hi Anne,

**HUG**

I'm so sorry that things are a little hectic for you right now. I already know that things will be crazy once I have baby #2, but it's almost like you can't *really* know what it's going to be like until you're already in the mix. We constantly talk about how difficult it will be for us after the baby is born and having a toddler at the same time, but we know it just doesn't quite prepare you. But at least you and DH are talking and realizing that things are going to be crazy for awhile and that you've told him how difficult it is for you right now.

Especially when you're PFTs are down (even if you're not feeling all that bad), just the thought of having to need antibiotics, is stressful. You have to worry about BF and the meds, as well as whether or not to do IVs vs. oral, and just feeling kind of down about the whole thing. I remember when I wasn't feeling good in my pregnancy a couple months ago...they were talking about IVs for me and I was so stressed! I was worried about the baby, I was worried about my family, and I was worried about not getting better. But in the end, it all worked out for me and I kicked the flare up at the time. I was feeling pretty down about it through.

Don't ever feel guilty that you have to do things differently with Hannah than you did Alexa. I am going to try my best to give all the same things to my 2nd child, but if I can for some reason, then I can't. I want to be able to give all the same things...the same amount of BF time, the same amount of BF time...but I know things *happen*. What if I can't BF? What if I have so much to do that I can't give my toddler much attention? I will probably have a lot of guilt, but it's totally normal. It sort of comes down to survival (or close to it <img src="i/expressions/face-icon-small-smile.gif" border="0">) and what you have to do to get through this period. There's nothing wrong with adding a little formula if that's what will work for you. That way DH can have a chance to feed and you can have a little more time with Alexa and for yourself to get better.

Take care and take it easy!

 

[rubyroselee]

Hi Anne,
<br />
<br />**HUG**
<br />
<br />I'm so sorry that things are a little hectic for you right now. I already know that things will be crazy once I have baby #2, but it's almost like you can't *really* know what it's going to be like until you're already in the mix. We constantly talk about how difficult it will be for us after the baby is born and having a toddler at the same time, but we know it just doesn't quite prepare you. But at least you and DH are talking and realizing that things are going to be crazy for awhile and that you've told him how difficult it is for you right now.
<br />
<br />Especially when you're PFTs are down (even if you're not feeling all that bad), just the thought of having to need antibiotics, is stressful. You have to worry about BF and the meds, as well as whether or not to do IVs vs. oral, and just feeling kind of down about the whole thing. I remember when I wasn't feeling good in my pregnancy a couple months ago...they were talking about IVs for me and I was so stressed! I was worried about the baby, I was worried about my family, and I was worried about not getting better. But in the end, it all worked out for me and I kicked the flare up at the time. I was feeling pretty down about it through.
<br />
<br />Don't ever feel guilty that you have to do things differently with Hannah than you did Alexa. I am going to try my best to give all the same things to my 2nd child, but if I can for some reason, then I can't. I want to be able to give all the same things...the same amount of BF time, the same amount of BF time...but I know things *happen*. What if I can't BF? What if I have so much to do that I can't give my toddler much attention? I will probably have a lot of guilt, but it's totally normal. It sort of comes down to survival (or close to it <img src="i/expressions/face-icon-small-smile.gif" border="0">) and what you have to do to get through this period. There's nothing wrong with adding a little formula if that's what will work for you. That way DH can have a chance to feed and you can have a little more time with Alexa and for yourself to get better.
<br />
<br />Take care and take it easy!

 

[mom2lillian]

I would definately go with IV's the last thing you need is the run down feeling from a couple weeks orals only to not feel up to par and you could definately do them at home but only you know your body. You are a wise woman to be dealing with all this head on in a matter of fact way.

I have done IV's while BF twice and one thing to consider is many of the ones I take are IV because they are not readily available to the body via digestive route thus such a small amount is in the breastmilk and then even of that small % only a small % is able to be absorbed via digestive tract.

While I am also pro bf I tihnk your formula idea actually sounds very reasonable and like a good idea. If you later get on top of everythign and still want to do the bottles and pump great but if not no big deal, it sounds like a great choice and should be guilt free.

I appreciate you sharing two kids side things I am VERY interested to hear more as it develops, not to be nosey but because DH and I are re-evaluating in July of this year.

take care

 

[mom2lillian]

I would definately go with IV's the last thing you need is the run down feeling from a couple weeks orals only to not feel up to par and you could definately do them at home but only you know your body. You are a wise woman to be dealing with all this head on in a matter of fact way.

I have done IV's while BF twice and one thing to consider is many of the ones I take are IV because they are not readily available to the body via digestive route thus such a small amount is in the breastmilk and then even of that small % only a small % is able to be absorbed via digestive tract.

While I am also pro bf I tihnk your formula idea actually sounds very reasonable and like a good idea. If you later get on top of everythign and still want to do the bottles and pump great but if not no big deal, it sounds like a great choice and should be guilt free.

I appreciate you sharing two kids side things I am VERY interested to hear more as it develops, not to be nosey but because DH and I are re-evaluating in July of this year.

take care

 

[mom2lillian]

I would definately go with IV's the last thing you need is the run down feeling from a couple weeks orals only to not feel up to par and you could definately do them at home but only you know your body. You are a wise woman to be dealing with all this head on in a matter of fact way.

I have done IV's while BF twice and one thing to consider is many of the ones I take are IV because they are not readily available to the body via digestive route thus such a small amount is in the breastmilk and then even of that small % only a small % is able to be absorbed via digestive tract.

While I am also pro bf I tihnk your formula idea actually sounds very reasonable and like a good idea. If you later get on top of everythign and still want to do the bottles and pump great but if not no big deal, it sounds like a great choice and should be guilt free.

I appreciate you sharing two kids side things I am VERY interested to hear more as it develops, not to be nosey but because DH and I are re-evaluating in July of this year.

take care

 

[mom2lillian]

I would definately go with IV's the last thing you need is the run down feeling from a couple weeks orals only to not feel up to par and you could definately do them at home but only you know your body. You are a wise woman to be dealing with all this head on in a matter of fact way.

I have done IV's while BF twice and one thing to consider is many of the ones I take are IV because they are not readily available to the body via digestive route thus such a small amount is in the breastmilk and then even of that small % only a small % is able to be absorbed via digestive tract.

While I am also pro bf I tihnk your formula idea actually sounds very reasonable and like a good idea. If you later get on top of everythign and still want to do the bottles and pump great but if not no big deal, it sounds like a great choice and should be guilt free.

I appreciate you sharing two kids side things I am VERY interested to hear more as it develops, not to be nosey but because DH and I are re-evaluating in July of this year.

take care

 

[mom2lillian]

I would definately go with IV's the last thing you need is the run down feeling from a couple weeks orals only to not feel up to par and you could definately do them at home but only you know your body. You are a wise woman to be dealing with all this head on in a matter of fact way.
<br />
<br />I have done IV's while BF twice and one thing to consider is many of the ones I take are IV because they are not readily available to the body via digestive route thus such a small amount is in the breastmilk and then even of that small % only a small % is able to be absorbed via digestive tract.
<br />
<br />While I am also pro bf I tihnk your formula idea actually sounds very reasonable and like a good idea. If you later get on top of everythign and still want to do the bottles and pump great but if not no big deal, it sounds like a great choice and should be guilt free.
<br />
<br />I appreciate you sharing two kids side things I am VERY interested to hear more as it develops, not to be nosey but because DH and I are re-evaluating in July of this year.
<br />
<br />take care