Hair falling out

coltsfan715

New member
I understand the living in Florida and the humidity. I am in Jacksonville and it has been kind of gross here lately.

I hope that when your daughter is off the prednisone that the hair issues subside.

Take Care,
Lindsey
 

coltsfan715

New member
I understand the living in Florida and the humidity. I am in Jacksonville and it has been kind of gross here lately.

I hope that when your daughter is off the prednisone that the hair issues subside.

Take Care,
Lindsey
 

coltsfan715

New member
I understand the living in Florida and the humidity. I am in Jacksonville and it has been kind of gross here lately.

I hope that when your daughter is off the prednisone that the hair issues subside.

Take Care,
Lindsey
 

coltsfan715

New member
I understand the living in Florida and the humidity. I am in Jacksonville and it has been kind of gross here lately.

I hope that when your daughter is off the prednisone that the hair issues subside.

Take Care,
Lindsey
 

coltsfan715

New member
I understand the living in Florida and the humidity. I am in Jacksonville and it has been kind of gross here lately.

I hope that when your daughter is off the prednisone that the hair issues subside.

Take Care,
Lindsey
 

Foody

New member
With all the medications she is on, vitamin deletion is highly likely cause. In addition to the adeks you may want to have a naturopath do a vitamin panel to see if she is low in any minerals (especially zinc and copper). You may also want to add oral GSH to her supplement plan.

Also, you may look into daily probiotics to help her gut health and lower inflammation in the gut. This is a must in my opinion for young cfers, especially those who are on antibiotics frequently. Here is a link <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=5
">http://www.cfnutrition4life.co...articles.php?cat_id=5
</a>
I would also consider diet and food allergy if it continues. I have alot of information on food allergies on my site below <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2.">http://www.cfnutrition4life.co...articles.php?cat_id=2.</a> A traditional allergist can do an ELISA panel which can detect many hidden allergies which can weaken the immune system and cause increased inflammation throughout the body. If you are comfortable with natural/holistic doctors, you could research allergy elimination...it worked for our son who can now eat dairy after 3 years without. It has also helped him with pet and seasonal allergies.

Perhaps these things will help strengthen her immune system naturally and she will gain back her health (maybe get her off some meds too).

Best wishes...hope she is well very soon.
 

Foody

New member
With all the medications she is on, vitamin deletion is highly likely cause. In addition to the adeks you may want to have a naturopath do a vitamin panel to see if she is low in any minerals (especially zinc and copper). You may also want to add oral GSH to her supplement plan.

Also, you may look into daily probiotics to help her gut health and lower inflammation in the gut. This is a must in my opinion for young cfers, especially those who are on antibiotics frequently. Here is a link <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=5
">http://www.cfnutrition4life.co...articles.php?cat_id=5
</a>
I would also consider diet and food allergy if it continues. I have alot of information on food allergies on my site below <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2.">http://www.cfnutrition4life.co...articles.php?cat_id=2.</a> A traditional allergist can do an ELISA panel which can detect many hidden allergies which can weaken the immune system and cause increased inflammation throughout the body. If you are comfortable with natural/holistic doctors, you could research allergy elimination...it worked for our son who can now eat dairy after 3 years without. It has also helped him with pet and seasonal allergies.

Perhaps these things will help strengthen her immune system naturally and she will gain back her health (maybe get her off some meds too).

Best wishes...hope she is well very soon.
 

Foody

New member
With all the medications she is on, vitamin deletion is highly likely cause. In addition to the adeks you may want to have a naturopath do a vitamin panel to see if she is low in any minerals (especially zinc and copper). You may also want to add oral GSH to her supplement plan.

Also, you may look into daily probiotics to help her gut health and lower inflammation in the gut. This is a must in my opinion for young cfers, especially those who are on antibiotics frequently. Here is a link <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=5
">http://www.cfnutrition4life.co...articles.php?cat_id=5
</a>
I would also consider diet and food allergy if it continues. I have alot of information on food allergies on my site below <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2.">http://www.cfnutrition4life.co...articles.php?cat_id=2.</a> A traditional allergist can do an ELISA panel which can detect many hidden allergies which can weaken the immune system and cause increased inflammation throughout the body. If you are comfortable with natural/holistic doctors, you could research allergy elimination...it worked for our son who can now eat dairy after 3 years without. It has also helped him with pet and seasonal allergies.

Perhaps these things will help strengthen her immune system naturally and she will gain back her health (maybe get her off some meds too).

Best wishes...hope she is well very soon.
 

Foody

New member
With all the medications she is on, vitamin deletion is highly likely cause. In addition to the adeks you may want to have a naturopath do a vitamin panel to see if she is low in any minerals (especially zinc and copper). You may also want to add oral GSH to her supplement plan.

Also, you may look into daily probiotics to help her gut health and lower inflammation in the gut. This is a must in my opinion for young cfers, especially those who are on antibiotics frequently. Here is a link <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=5
">http://www.cfnutrition4life.co...articles.php?cat_id=5
</a>
I would also consider diet and food allergy if it continues. I have alot of information on food allergies on my site below <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2.">http://www.cfnutrition4life.co...articles.php?cat_id=2.</a> A traditional allergist can do an ELISA panel which can detect many hidden allergies which can weaken the immune system and cause increased inflammation throughout the body. If you are comfortable with natural/holistic doctors, you could research allergy elimination...it worked for our son who can now eat dairy after 3 years without. It has also helped him with pet and seasonal allergies.

Perhaps these things will help strengthen her immune system naturally and she will gain back her health (maybe get her off some meds too).

Best wishes...hope she is well very soon.
 

Foody

New member
With all the medications she is on, vitamin deletion is highly likely cause. In addition to the adeks you may want to have a naturopath do a vitamin panel to see if she is low in any minerals (especially zinc and copper). You may also want to add oral GSH to her supplement plan.

Also, you may look into daily probiotics to help her gut health and lower inflammation in the gut. This is a must in my opinion for young cfers, especially those who are on antibiotics frequently. Here is a link <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=5
">http://www.cfnutrition4life.co...articles.php?cat_id=5
</a>
I would also consider diet and food allergy if it continues. I have alot of information on food allergies on my site below <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=2.">http://www.cfnutrition4life.co...articles.php?cat_id=2.</a> A traditional allergist can do an ELISA panel which can detect many hidden allergies which can weaken the immune system and cause increased inflammation throughout the body. If you are comfortable with natural/holistic doctors, you could research allergy elimination...it worked for our son who can now eat dairy after 3 years without. It has also helped him with pet and seasonal allergies.

Perhaps these things will help strengthen her immune system naturally and she will gain back her health (maybe get her off some meds too).

Best wishes...hope she is well very soon.
 

mom4holly

New member
Foody

She is taking a probiotic called florastor. Is there another probiotic that you can recommend because she still has bad gut problems with this one. She hasn't had any CF related GI issues so she doesn't take enzymes.

I will look into the food allergy testing. Do I do this through my ped or the CF Clinic?

Don't think I'm crazy but what is GSH? Is this something that most young Cfers are taking?


coltsfan715--we live in Yulee so we are close to where you are. I am hoping that the hair issues subside also because she already has a kid in her class that makes fun of her coughing & runny nose & I don't want it to get too thin.
 

mom4holly

New member
Foody

She is taking a probiotic called florastor. Is there another probiotic that you can recommend because she still has bad gut problems with this one. She hasn't had any CF related GI issues so she doesn't take enzymes.

I will look into the food allergy testing. Do I do this through my ped or the CF Clinic?

Don't think I'm crazy but what is GSH? Is this something that most young Cfers are taking?


coltsfan715--we live in Yulee so we are close to where you are. I am hoping that the hair issues subside also because she already has a kid in her class that makes fun of her coughing & runny nose & I don't want it to get too thin.
 

mom4holly

New member
Foody

She is taking a probiotic called florastor. Is there another probiotic that you can recommend because she still has bad gut problems with this one. She hasn't had any CF related GI issues so she doesn't take enzymes.

I will look into the food allergy testing. Do I do this through my ped or the CF Clinic?

Don't think I'm crazy but what is GSH? Is this something that most young Cfers are taking?


coltsfan715--we live in Yulee so we are close to where you are. I am hoping that the hair issues subside also because she already has a kid in her class that makes fun of her coughing & runny nose & I don't want it to get too thin.
 

mom4holly

New member
Foody

She is taking a probiotic called florastor. Is there another probiotic that you can recommend because she still has bad gut problems with this one. She hasn't had any CF related GI issues so she doesn't take enzymes.

I will look into the food allergy testing. Do I do this through my ped or the CF Clinic?

Don't think I'm crazy but what is GSH? Is this something that most young Cfers are taking?


coltsfan715--we live in Yulee so we are close to where you are. I am hoping that the hair issues subside also because she already has a kid in her class that makes fun of her coughing & runny nose & I don't want it to get too thin.
 

mom4holly

New member
Foody

She is taking a probiotic called florastor. Is there another probiotic that you can recommend because she still has bad gut problems with this one. She hasn't had any CF related GI issues so she doesn't take enzymes.

I will look into the food allergy testing. Do I do this through my ped or the CF Clinic?

Don't think I'm crazy but what is GSH? Is this something that most young Cfers are taking?


coltsfan715--we live in Yulee so we are close to where you are. I am hoping that the hair issues subside also because she already has a kid in her class that makes fun of her coughing & runny nose & I don't want it to get too thin.
 

Foody

New member
Great to hear she is on a probiotic, I feel all CF people should take a daily probiotic. There are many to choose from. I am not familiar with the one you listed. Jarrow makes a few great kids chewables and Culturelle is pretty popular and easy to get at most pharmacies ($20-25).

GSH (Glutathione) is a antioxident important to cell function and the immune system. CF pepole have a severe deficiency in GSH and therefore are helped by supplementation (both in terms of lungs and gut health). Here are the research links if you would like to read more. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=4">http://www.cfnutrition4life.co.../articles.php?cat_id=4</a> It is the one thing I would not change in my sons regimen.

DHA (Omega 3) is also very helpful at controling and preventing cellular inflammation. We do 250 mg daily of this as well (he is 3 and around 35lbs). Plus there are lots of ways to add it to her diet with flax seeds, olive oil, coconut oil, etc.

Your pediatrician should be able to recommmend a traditional allergist. Allergy elimination is typically done through a osteopathic doctor (DO) or chiropractor (DC) and you would have to research those on your insurance plan or pay out-of-pocket for this service if you plan doesn't cover chiropractic. I found someone in my network and it was covered. YOu can type in your zip code at <a target=_blank class=ftalternatingbarlinklarge href="http://www.naet.com/">http://www.naet.com/</a> under "Find a Practitioner".

Hope this helps...much support to you.
 

Foody

New member
Great to hear she is on a probiotic, I feel all CF people should take a daily probiotic. There are many to choose from. I am not familiar with the one you listed. Jarrow makes a few great kids chewables and Culturelle is pretty popular and easy to get at most pharmacies ($20-25).

GSH (Glutathione) is a antioxident important to cell function and the immune system. CF pepole have a severe deficiency in GSH and therefore are helped by supplementation (both in terms of lungs and gut health). Here are the research links if you would like to read more. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=4">http://www.cfnutrition4life.co.../articles.php?cat_id=4</a> It is the one thing I would not change in my sons regimen.

DHA (Omega 3) is also very helpful at controling and preventing cellular inflammation. We do 250 mg daily of this as well (he is 3 and around 35lbs). Plus there are lots of ways to add it to her diet with flax seeds, olive oil, coconut oil, etc.

Your pediatrician should be able to recommmend a traditional allergist. Allergy elimination is typically done through a osteopathic doctor (DO) or chiropractor (DC) and you would have to research those on your insurance plan or pay out-of-pocket for this service if you plan doesn't cover chiropractic. I found someone in my network and it was covered. YOu can type in your zip code at <a target=_blank class=ftalternatingbarlinklarge href="http://www.naet.com/">http://www.naet.com/</a> under "Find a Practitioner".

Hope this helps...much support to you.
 

Foody

New member
Great to hear she is on a probiotic, I feel all CF people should take a daily probiotic. There are many to choose from. I am not familiar with the one you listed. Jarrow makes a few great kids chewables and Culturelle is pretty popular and easy to get at most pharmacies ($20-25).

GSH (Glutathione) is a antioxident important to cell function and the immune system. CF pepole have a severe deficiency in GSH and therefore are helped by supplementation (both in terms of lungs and gut health). Here are the research links if you would like to read more. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=4">http://www.cfnutrition4life.co.../articles.php?cat_id=4</a> It is the one thing I would not change in my sons regimen.

DHA (Omega 3) is also very helpful at controling and preventing cellular inflammation. We do 250 mg daily of this as well (he is 3 and around 35lbs). Plus there are lots of ways to add it to her diet with flax seeds, olive oil, coconut oil, etc.

Your pediatrician should be able to recommmend a traditional allergist. Allergy elimination is typically done through a osteopathic doctor (DO) or chiropractor (DC) and you would have to research those on your insurance plan or pay out-of-pocket for this service if you plan doesn't cover chiropractic. I found someone in my network and it was covered. YOu can type in your zip code at <a target=_blank class=ftalternatingbarlinklarge href="http://www.naet.com/">http://www.naet.com/</a> under "Find a Practitioner".

Hope this helps...much support to you.
 

Foody

New member
Great to hear she is on a probiotic, I feel all CF people should take a daily probiotic. There are many to choose from. I am not familiar with the one you listed. Jarrow makes a few great kids chewables and Culturelle is pretty popular and easy to get at most pharmacies ($20-25).

GSH (Glutathione) is a antioxident important to cell function and the immune system. CF pepole have a severe deficiency in GSH and therefore are helped by supplementation (both in terms of lungs and gut health). Here are the research links if you would like to read more. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=4">http://www.cfnutrition4life.co.../articles.php?cat_id=4</a> It is the one thing I would not change in my sons regimen.

DHA (Omega 3) is also very helpful at controling and preventing cellular inflammation. We do 250 mg daily of this as well (he is 3 and around 35lbs). Plus there are lots of ways to add it to her diet with flax seeds, olive oil, coconut oil, etc.

Your pediatrician should be able to recommmend a traditional allergist. Allergy elimination is typically done through a osteopathic doctor (DO) or chiropractor (DC) and you would have to research those on your insurance plan or pay out-of-pocket for this service if you plan doesn't cover chiropractic. I found someone in my network and it was covered. YOu can type in your zip code at <a target=_blank class=ftalternatingbarlinklarge href="http://www.naet.com/">http://www.naet.com/</a> under "Find a Practitioner".

Hope this helps...much support to you.
 

Foody

New member
Great to hear she is on a probiotic, I feel all CF people should take a daily probiotic. There are many to choose from. I am not familiar with the one you listed. Jarrow makes a few great kids chewables and Culturelle is pretty popular and easy to get at most pharmacies ($20-25).

GSH (Glutathione) is a antioxident important to cell function and the immune system. CF pepole have a severe deficiency in GSH and therefore are helped by supplementation (both in terms of lungs and gut health). Here are the research links if you would like to read more. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cfnutrition4life.com/cfnu/articles.php?cat_id=4">http://www.cfnutrition4life.co.../articles.php?cat_id=4</a> It is the one thing I would not change in my sons regimen.

DHA (Omega 3) is also very helpful at controling and preventing cellular inflammation. We do 250 mg daily of this as well (he is 3 and around 35lbs). Plus there are lots of ways to add it to her diet with flax seeds, olive oil, coconut oil, etc.

Your pediatrician should be able to recommmend a traditional allergist. Allergy elimination is typically done through a osteopathic doctor (DO) or chiropractor (DC) and you would have to research those on your insurance plan or pay out-of-pocket for this service if you plan doesn't cover chiropractic. I found someone in my network and it was covered. YOu can type in your zip code at <a target=_blank class=ftalternatingbarlinklarge href="http://www.naet.com/">http://www.naet.com/</a> under "Find a Practitioner".

Hope this helps...much support to you.
 
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