Happy New Year

Megmolly

New member
<img src="i/expressions/rose.gif" border="0">
Hi my name is Meg and I am the mother of 3 kids 2 wcf (18yrs & 8yrs) Been down lately and have not been on any support group in years and then was looking on line for one and found this one. Knew something led me here when I saw my daughters face on the BEF logo. She is the third picture in. She was 10 when that was taken and my son was 3 months old. Seems a life time ago..... Well I am from New York and we go to the CF center in Columbia Pres. We have had 3 tune-ups at Club med this year. The older one 2 in 6 months and only one for my son. She goes into see her Pulm @ Hackensack Med on Tues and we will see if she needs go back in again.
Maureen has CF, Crohn's, RA & CFRD @ 18 yrs and she is no compliant with all of her treatments
She will not take her sugars or any of that
She wants to go away in the fall, she stayed home this year at community college. The college she wants to go to is in state abt 3 hrs away and has a CF Center.
I just feel overwhelmed because she is not as self sufficiant as she should be and though maybe i need some more insight from other parents

Thanks
Meg
 

Megmolly

New member
<img src="i/expressions/rose.gif" border="0">
Hi my name is Meg and I am the mother of 3 kids 2 wcf (18yrs & 8yrs) Been down lately and have not been on any support group in years and then was looking on line for one and found this one. Knew something led me here when I saw my daughters face on the BEF logo. She is the third picture in. She was 10 when that was taken and my son was 3 months old. Seems a life time ago..... Well I am from New York and we go to the CF center in Columbia Pres. We have had 3 tune-ups at Club med this year. The older one 2 in 6 months and only one for my son. She goes into see her Pulm @ Hackensack Med on Tues and we will see if she needs go back in again.
Maureen has CF, Crohn's, RA & CFRD @ 18 yrs and she is no compliant with all of her treatments
She will not take her sugars or any of that
She wants to go away in the fall, she stayed home this year at community college. The college she wants to go to is in state abt 3 hrs away and has a CF Center.
I just feel overwhelmed because she is not as self sufficiant as she should be and though maybe i need some more insight from other parents

Thanks
Meg
 

Megmolly

New member
<img src="i/expressions/rose.gif" border="0">
Hi my name is Meg and I am the mother of 3 kids 2 wcf (18yrs & 8yrs) Been down lately and have not been on any support group in years and then was looking on line for one and found this one. Knew something led me here when I saw my daughters face on the BEF logo. She is the third picture in. She was 10 when that was taken and my son was 3 months old. Seems a life time ago..... Well I am from New York and we go to the CF center in Columbia Pres. We have had 3 tune-ups at Club med this year. The older one 2 in 6 months and only one for my son. She goes into see her Pulm @ Hackensack Med on Tues and we will see if she needs go back in again.
Maureen has CF, Crohn's, RA & CFRD @ 18 yrs and she is no compliant with all of her treatments
She will not take her sugars or any of that
She wants to go away in the fall, she stayed home this year at community college. The college she wants to go to is in state abt 3 hrs away and has a CF Center.
I just feel overwhelmed because she is not as self sufficiant as she should be and though maybe i need some more insight from other parents

Thanks
Meg
 

Megmolly

New member
<img src="i/expressions/rose.gif" border="0">
Hi my name is Meg and I am the mother of 3 kids 2 wcf (18yrs & 8yrs) Been down lately and have not been on any support group in years and then was looking on line for one and found this one. Knew something led me here when I saw my daughters face on the BEF logo. She is the third picture in. She was 10 when that was taken and my son was 3 months old. Seems a life time ago..... Well I am from New York and we go to the CF center in Columbia Pres. We have had 3 tune-ups at Club med this year. The older one 2 in 6 months and only one for my son. She goes into see her Pulm @ Hackensack Med on Tues and we will see if she needs go back in again.
Maureen has CF, Crohn's, RA & CFRD @ 18 yrs and she is no compliant with all of her treatments
She will not take her sugars or any of that
She wants to go away in the fall, she stayed home this year at community college. The college she wants to go to is in state abt 3 hrs away and has a CF Center.
I just feel overwhelmed because she is not as self sufficiant as she should be and though maybe i need some more insight from other parents

Thanks
Meg
 

Megmolly

New member
<img src="i/expressions/rose.gif" border="0">
<br />Hi my name is Meg and I am the mother of 3 kids 2 wcf (18yrs & 8yrs) Been down lately and have not been on any support group in years and then was looking on line for one and found this one. Knew something led me here when I saw my daughters face on the BEF logo. She is the third picture in. She was 10 when that was taken and my son was 3 months old. Seems a life time ago..... Well I am from New York and we go to the CF center in Columbia Pres. We have had 3 tune-ups at Club med this year. The older one 2 in 6 months and only one for my son. She goes into see her Pulm @ Hackensack Med on Tues and we will see if she needs go back in again.
<br />Maureen has CF, Crohn's, RA & CFRD @ 18 yrs and she is no compliant with all of her treatments
<br />She will not take her sugars or any of that
<br />She wants to go away in the fall, she stayed home this year at community college. The college she wants to go to is in state abt 3 hrs away and has a CF Center.
<br />I just feel overwhelmed because she is not as self sufficiant as she should be and though maybe i need some more insight from other parents
<br />
<br />Thanks
<br />Meg
 

AnD

New member
Hi Meg-
You might want to repost this under your own thread, so more people will see it. At the top of the page, there is a line that starts with "new topic". If you click on that, you can copy and paste your post here it in that new box, so you start a new subject of your own. If you still need help, just ask! <img src="i/expressions/face-icon-small-wink.gif" border="0">

On topic, I would make her moving away to an out of state college (if you are supporting her) dependent on her taking care of herself like she is supposed to. Is there a nearby college where she could live in the dorms, but be close by in case she gets sick? I would try making a deal with her- the first semester, she is compliant with her meds and treatments, so the second semester, she can live on campus nearby, and if that goes well, let her go out of state like the responsible adult she wants to be. Just my opinion, of course, based on thinking back to when I was that age <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Good luck!
 

AnD

New member
Hi Meg-
You might want to repost this under your own thread, so more people will see it. At the top of the page, there is a line that starts with "new topic". If you click on that, you can copy and paste your post here it in that new box, so you start a new subject of your own. If you still need help, just ask! <img src="i/expressions/face-icon-small-wink.gif" border="0">

On topic, I would make her moving away to an out of state college (if you are supporting her) dependent on her taking care of herself like she is supposed to. Is there a nearby college where she could live in the dorms, but be close by in case she gets sick? I would try making a deal with her- the first semester, she is compliant with her meds and treatments, so the second semester, she can live on campus nearby, and if that goes well, let her go out of state like the responsible adult she wants to be. Just my opinion, of course, based on thinking back to when I was that age <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Good luck!
 

AnD

New member
Hi Meg-
You might want to repost this under your own thread, so more people will see it. At the top of the page, there is a line that starts with "new topic". If you click on that, you can copy and paste your post here it in that new box, so you start a new subject of your own. If you still need help, just ask! <img src="i/expressions/face-icon-small-wink.gif" border="0">

On topic, I would make her moving away to an out of state college (if you are supporting her) dependent on her taking care of herself like she is supposed to. Is there a nearby college where she could live in the dorms, but be close by in case she gets sick? I would try making a deal with her- the first semester, she is compliant with her meds and treatments, so the second semester, she can live on campus nearby, and if that goes well, let her go out of state like the responsible adult she wants to be. Just my opinion, of course, based on thinking back to when I was that age <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Good luck!
 

AnD

New member
Hi Meg-
You might want to repost this under your own thread, so more people will see it. At the top of the page, there is a line that starts with "new topic". If you click on that, you can copy and paste your post here it in that new box, so you start a new subject of your own. If you still need help, just ask! <img src="i/expressions/face-icon-small-wink.gif" border="0">

On topic, I would make her moving away to an out of state college (if you are supporting her) dependent on her taking care of herself like she is supposed to. Is there a nearby college where she could live in the dorms, but be close by in case she gets sick? I would try making a deal with her- the first semester, she is compliant with her meds and treatments, so the second semester, she can live on campus nearby, and if that goes well, let her go out of state like the responsible adult she wants to be. Just my opinion, of course, based on thinking back to when I was that age <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Good luck!
 

AnD

New member
Hi Meg-
<br />You might want to repost this under your own thread, so more people will see it. At the top of the page, there is a line that starts with "new topic". If you click on that, you can copy and paste your post here it in that new box, so you start a new subject of your own. If you still need help, just ask! <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />
<br />On topic, I would make her moving away to an out of state college (if you are supporting her) dependent on her taking care of herself like she is supposed to. Is there a nearby college where she could live in the dorms, but be close by in case she gets sick? I would try making a deal with her- the first semester, she is compliant with her meds and treatments, so the second semester, she can live on campus nearby, and if that goes well, let her go out of state like the responsible adult she wants to be. Just my opinion, of course, based on thinking back to when I was that age <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Good luck!
 
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