Has anyone done tobi neb. just once daily

Mallymookcf

New member
<P>to <A href="http://www.cysticfibrosis.com/profile/index.cfm/Incomudrox"><U><FONT color=#666666>Incomudrox</FONT></U></A>'sfirst reply, </P>
<P>that is what this site is for, right? asking questions... <img src="i/expressions/face-icon-small-smile.gif" border="0"> afterall, us "c.f.-ers" are the only one's that know first hand. <img src="i/expressions/face-icon-small-smile.gif" border="0"></P>
 

Mallymookcf

New member
<P><BR>to <A href="http://www.cysticfibrosis.com/profile/index.cfm/Incomudrox"><U><FONT color=#666666>Incomudrox</FONT></U></A>'sfirst reply, </P>
<P>that is what this site is for, right? asking questions... <img src="i/expressions/face-icon-small-smile.gif" border="0"> afterall, us "c.f.-ers" are the only one's that know first hand. <img src="i/expressions/face-icon-small-smile.gif" border="0"></P>
 

randmel89

New member
I have used TOBI inhaled once daily every other month I can not tolerate it twice so every morning I do it and I feel great. My DR said the night one will help me through the night and keep a constant dose in my lungs but she said as long as I use it once a day it will still help me. I use TOBI once a day on even months and Cayston on odd months and I havent been on IVs for 2 years now... Good Luck and I hope it works for you too
 

randmel89

New member
I have used TOBI inhaled once daily every other month I can not tolerate it twice so every morning I do it and I feel great. My DR said the night one will help me through the night and keep a constant dose in my lungs but she said as long as I use it once a day it will still help me. I use TOBI once a day on even months and Cayston on odd months and I havent been on IVs for 2 years now... Good Luck and I hope it works for you too
 

randmel89

New member
I have used TOBI inhaled once daily every other month I can not tolerate it twice so every morning I do it and I feel great. My DR said the night one will help me through the night and keep a constant dose in my lungs but she said as long as I use it once a day it will still help me. I use TOBI once a day on even months and Cayston on odd months and I havent been on IVs for 2 years now... Good Luck and I hope it works for you too
 

randmel89

New member
The first post from<strong><u> Incomudrox</u></strong> is un called for and completely rude. I turned it in to the moderator hopefully she will do something about your rudeness on this site where we come to ask for help and inforamtion.
 

randmel89

New member
The first post from<strong><u> Incomudrox</u></strong> is un called for and completely rude. I turned it in to the moderator hopefully she will do something about your rudeness on this site where we come to ask for help and inforamtion.
 

randmel89

New member
The first post from<strong><u> Incomudrox</u></strong> is un called for and completely rude. I turned it in to the moderator hopefully she will do something about your rudeness on this site where we come to ask for help and inforamtion.
 

luv2run

New member
My pulmo and I negotiated years ago that I can do the Tobi once a day/28 days on and 28 days off. It has worked for me. I was very against using any drugs, but I have become more compliant over the years <img src="i/expressions/face-icon-small-wink.gif" border="0">.
 

luv2run

New member
My pulmo and I negotiated years ago that I can do the Tobi once a day/28 days on and 28 days off. It has worked for me. I was very against using any drugs, but I have become more compliant over the years <img src="i/expressions/face-icon-small-wink.gif" border="0">.
 

luv2run

New member
My pulmo and I negotiated years ago that I can do the Tobi once a day/28 days on and 28 days off. It has worked for me. I was very against using any drugs, but I have become more compliant over the years <img src="i/expressions/face-icon-small-wink.gif" border="0">.
 
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