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Has Anyone Ever Tried A Saltwater Mist?
- Thread starter Lilith
- Start date
L
luke
Guest
does anyone find it ironic that "salt" water is helping us and at the same time is the root cause of our disease?
luke
luke
<blockquote>Quote<br><hr><i>Originally posted by: <b>luke</b></i><br>does anyone find it ironic that "salt" water is helping us and at the same time is the root cause of our disease?
luke<hr></blockquote>
I would find it more ironic if we had to eat other peoples lungs to help us, like zombies do brains. BTW Lilith you didn't check no! Note passing has rules ya know?
luke<hr></blockquote>
I would find it more ironic if we had to eat other peoples lungs to help us, like zombies do brains. BTW Lilith you didn't check no! Note passing has rules ya know?
I'm not sure about irony or zombies, but I find it a little surprising that so many people are just learning about HS now. I thought it was a more established treatment. I've been on and off it for four or five years. I've had some rough patches, but the ol' baseline hasn't slipped at all during that time, so the HS can't be hurting. Any other long-term users?
Q
Q
I
IG
Guest
On that note my appetite for dinner is gone. Thx SeanDavis, i'm in a bet to lose 10 lbs.
Just didn't want to start it out that way.
>.>
Just didn't want to start it out that way.
>.>
<blockquote>Quote<br><hr><i>Originally posted by: <b>SeanDavis</b></i>I would find it more ironic if we had to eat other peoples lungs to help us, like zombies do brains. BTW Lilith you didn't check no! Note passing has rules ya know?<hr></blockquote>
I've never been one to follow rules. I'm a rebel <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Hmmm...eating lungs, 'eh? For some reason I want to go play Resident Evil now...
I've never been one to follow rules. I'm a rebel <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Hmmm...eating lungs, 'eh? For some reason I want to go play Resident Evil now...
I was a part of the study in Chapel Hill, NC four years ago. They are just now pubilshing the results. I was interviewed for NBC stations and also for some other publication. It's hopefully going to become a widespread treatment now, though some centers have been using it for years. They are trying to figure out a way to have it breathed through nose plugs (like oxygen) so CFers could sleep with it all night long, because the more we get the better. The CF pharmacy is coming out with a 7% solution, b/c right now you have to mix 5% and 10% solutions to do the 7%. I had some really long conversations with the lead doctor about this the other day, so if anyone has any questions I will try to answer them!
One of the articles indicated that they are working on a machine to make the treatment 4 times faster than the usual half hour.....this would also make things much easier for you guys so you aren't hooked up to treatments all day long.
For those who indicated they knew nothing about this new development it might be a good idea to subscribe to google alerts for cystic fibrosis. This way you will be emailed any new developments as they happen. It basically alerts you to "any" online article regarding cystic fibrosis. It's definately proved worthwhile for me.
If you aren't sure how to do this then simply go to the google homepage and click the link for "News"- Then scroll down the left hand side and click "News Alerts". This will take you to the page where you enter your email address and what you want to be alerted to.
For those who indicated they knew nothing about this new development it might be a good idea to subscribe to google alerts for cystic fibrosis. This way you will be emailed any new developments as they happen. It basically alerts you to "any" online article regarding cystic fibrosis. It's definately proved worthwhile for me.
If you aren't sure how to do this then simply go to the google homepage and click the link for "News"- Then scroll down the left hand side and click "News Alerts". This will take you to the page where you enter your email address and what you want to be alerted to.
My four-year-old daughter started taking hypertonic saline a few months ago. A researcher at my children's hospital told me about it and their doctor said it was fine to start Sophia. She is taking 3% solution from CF pharmacy. It did cause bronchial spasms for her, but only if I gave it right before bed time. She takes it in the morning without a problem. After reading the articles, though, it sounds like she needs to be on 7% twice a day. I was going to wait to start my two year old. But I think I will ask about starting him next visit.
Sharon, mom of Sophia, 4 and Jack, 2 both with cf
Sharon, mom of Sophia, 4 and Jack, 2 both with cf
bgchastain
New member
My CF center in Atlanta has had their patients on hypertonic saline for about 2 years now, but the only time they put me on it is when I'm admitted to the hospital for a "tune up". Seems to work fine, maked me cough a lot, but that's the point. I'm not sure what the dose was, I just had to alternate it between Pulmozyme (probably should have asked why but didn't- sorry)
This is something that the CF centers were using in the 1960's. I would snort salt water via an ultrasonic nebulizer, 40 minutes, at least once a day for several years. At the time I played football, rode horses most days, enjoyed hiking and soccer. Perhaps it helped.
CF 55 TX
CF 55 TX
My 4 yr old daughter will be starting a study for preschoolers on the Hypertonic Saline next month. Her doctor seems very excited about it and now, so am I. She even used the word "breakthrough"
Sharon.......what are bronchial spasms and hwo will I know if my daughter is having them after the HS???
Sharon.......what are bronchial spasms and hwo will I know if my daughter is having them after the HS???
Bronchial spasms are when the airways get irritated & react usually closing up a bit. Like an asmtha attack. U will know if she is weezing or havent difficulty coughing stuff up even if it sounds loose. Usually a treatment of Albeuterol will open airways up. If it goes too long it might take a bit more than that. I was ignorant to my airway problems last year basically because I never had that type of problem. By the time I got to the doctor I scared the hell out of them! Had no idea what was going on & took months to bounce back!
Hey my boyfreind and his brother both just started using it this week... IT WORKS GREAT>.... anyone who dostn use it and has conjection that they cant shake should talk to thier doc about using it...
You put it into your nebulizer twice aday... you do cough alot though but he gets up more than 3 times the amount he use too... it tastes horriable... but we all agree it is worth it...
stay regligious on it though
You put it into your nebulizer twice aday... you do cough alot though but he gets up more than 3 times the amount he use too... it tastes horriable... but we all agree it is worth it...
stay regligious on it though
Hey my boyfreind and his brother both just started using it this week... IT WORKS GREAT>.... anyone who dostn use it and has conjection that they cant shake should talk to thier doc about using it...
You put it into your nebulizer twice aday... you do cough alot though but he gets up more than 3 times the amount he use too... it tastes horriable... but we all agree it is worth it...
stay regligious on it though
You put it into your nebulizer twice aday... you do cough alot though but he gets up more than 3 times the amount he use too... it tastes horriable... but we all agree it is worth it...
stay regligious on it though