catalinaohara
New member
Back when I was 11, I am 23 now, I started Pulmozyme when it first came out. I had been healthy and didn't really need it, but tried it anyway. 2-3 months later I had a horrible infection of mycobacteria, MAI, that came to make me need a lobectomy and was the beginning of a terrible year. Although there was no "known" connection between the two, I was always scared off of Pulmozyme.
Dr.'s have brought it up from time to time and I always said no....but I dont want to say no to a possibly good option. Its been said that is most likely is just a bad coincidence because there is nothing about PZyme that should "cause" MAI, but I am still paranoid. I am in the middle of an exacerbation and they want me to try it...its here in my house but I am still scared to do it.
I think I am probably being stupid, and need to just try it. But I wanted to see if anyone on here has ever had a bad experience with it? Its been around for so long now there doesnt seem to be much discussion about it.....
thanks so much, and thoughts on it would be great.
i don't tolerate Tobi, and dont LOVE HS, so I'd like to have another inhaled med.
Caitlin
23 w. b cepacia
Dr.'s have brought it up from time to time and I always said no....but I dont want to say no to a possibly good option. Its been said that is most likely is just a bad coincidence because there is nothing about PZyme that should "cause" MAI, but I am still paranoid. I am in the middle of an exacerbation and they want me to try it...its here in my house but I am still scared to do it.
I think I am probably being stupid, and need to just try it. But I wanted to see if anyone on here has ever had a bad experience with it? Its been around for so long now there doesnt seem to be much discussion about it.....
thanks so much, and thoughts on it would be great.
i don't tolerate Tobi, and dont LOVE HS, so I'd like to have another inhaled med.
Caitlin
23 w. b cepacia