having a baby someday

P

PedsNP2007

New member
Tom,
I think you addressed key issues. You might have been blunt, but there is no sugar coating when someone talks about having a baby.

Especially since Kim's displayed various postings...
1. she does not routinely see the dr
2. Does not seem to understand the importance of weight gain (quote: "def battle with my weight, but to loose it is my battle")
3. Apparently it's harder for her to work full time b/c she gets tired

One thing that really struck me was the fact that she hasn't been able to get pregnant already... What? Call me "better safe than sorry," but wouldn't you FIRST evaluate if it is safe for you to get pregnant and carry a baby WITHOUT engaging in behaviors routinely that could cause you to get pregnant.

Knowledge is a big aspect in CF care. You need to know what the possibilities of pregnancy (AND on the future implications of being a mom with cf to a baby!!) are on the health of a CF person.

Also, you have mentioned you have no health insurance and are paying out of pocket for whatever medications you are on. So, now you are considering pregnancy without having the safety net of insurance... And it's SUPER expensive to raise a child. Are you fiscally ready to take on that??? Especially since you are already paying for meds.

I must be really demented here. I have thought about being a mom for MANY years. I have investigated the risks to me during pregnancy and AFTER pregnancy. I have saved money for my future child. I have established a support team to help me post-partum and in the future with my child.

To me, I don't understand your desire for a child. It seems that people want you to have a child --- does your boyfriend's mom know what CF is? Does she understand that it's not always a good thing to rush into a pregnancy without really plotting out the risks that can happen (ultimately, one could decompensate and require a transplant -- look at transplantmommy who IS taking care of herself, FOLLOWED by many specialists, MARRIED (although this does not always mean things are better, esp if someone has a well-rounded support team))

I don't know what else to say... I was taken aback kinda.

Jenn
31 yo cf
 
P

PedsNP2007

New member
Tom,
I think you addressed key issues. You might have been blunt, but there is no sugar coating when someone talks about having a baby.

Especially since Kim's displayed various postings...
1. she does not routinely see the dr
2. Does not seem to understand the importance of weight gain (quote: "def battle with my weight, but to loose it is my battle")
3. Apparently it's harder for her to work full time b/c she gets tired

One thing that really struck me was the fact that she hasn't been able to get pregnant already... What? Call me "better safe than sorry," but wouldn't you FIRST evaluate if it is safe for you to get pregnant and carry a baby WITHOUT engaging in behaviors routinely that could cause you to get pregnant.

Knowledge is a big aspect in CF care. You need to know what the possibilities of pregnancy (AND on the future implications of being a mom with cf to a baby!!) are on the health of a CF person.

Also, you have mentioned you have no health insurance and are paying out of pocket for whatever medications you are on. So, now you are considering pregnancy without having the safety net of insurance... And it's SUPER expensive to raise a child. Are you fiscally ready to take on that??? Especially since you are already paying for meds.

I must be really demented here. I have thought about being a mom for MANY years. I have investigated the risks to me during pregnancy and AFTER pregnancy. I have saved money for my future child. I have established a support team to help me post-partum and in the future with my child.

To me, I don't understand your desire for a child. It seems that people want you to have a child --- does your boyfriend's mom know what CF is? Does she understand that it's not always a good thing to rush into a pregnancy without really plotting out the risks that can happen (ultimately, one could decompensate and require a transplant -- look at transplantmommy who IS taking care of herself, FOLLOWED by many specialists, MARRIED (although this does not always mean things are better, esp if someone has a well-rounded support team))

I don't know what else to say... I was taken aback kinda.

Jenn
31 yo cf
 
P

PedsNP2007

New member
Tom,
I think you addressed key issues. You might have been blunt, but there is no sugar coating when someone talks about having a baby.

Especially since Kim's displayed various postings...
1. she does not routinely see the dr
2. Does not seem to understand the importance of weight gain (quote: "def battle with my weight, but to loose it is my battle")
3. Apparently it's harder for her to work full time b/c she gets tired

One thing that really struck me was the fact that she hasn't been able to get pregnant already... What? Call me "better safe than sorry," but wouldn't you FIRST evaluate if it is safe for you to get pregnant and carry a baby WITHOUT engaging in behaviors routinely that could cause you to get pregnant.

Knowledge is a big aspect in CF care. You need to know what the possibilities of pregnancy (AND on the future implications of being a mom with cf to a baby!!) are on the health of a CF person.

Also, you have mentioned you have no health insurance and are paying out of pocket for whatever medications you are on. So, now you are considering pregnancy without having the safety net of insurance... And it's SUPER expensive to raise a child. Are you fiscally ready to take on that??? Especially since you are already paying for meds.

I must be really demented here. I have thought about being a mom for MANY years. I have investigated the risks to me during pregnancy and AFTER pregnancy. I have saved money for my future child. I have established a support team to help me post-partum and in the future with my child.

To me, I don't understand your desire for a child. It seems that people want you to have a child --- does your boyfriend's mom know what CF is? Does she understand that it's not always a good thing to rush into a pregnancy without really plotting out the risks that can happen (ultimately, one could decompensate and require a transplant -- look at transplantmommy who IS taking care of herself, FOLLOWED by many specialists, MARRIED (although this does not always mean things are better, esp if someone has a well-rounded support team))

I don't know what else to say... I was taken aback kinda.

Jenn
31 yo cf
 
P

PedsNP2007

New member
Tom,
I think you addressed key issues. You might have been blunt, but there is no sugar coating when someone talks about having a baby.

Especially since Kim's displayed various postings...
1. she does not routinely see the dr
2. Does not seem to understand the importance of weight gain (quote: "def battle with my weight, but to loose it is my battle")
3. Apparently it's harder for her to work full time b/c she gets tired

One thing that really struck me was the fact that she hasn't been able to get pregnant already... What? Call me "better safe than sorry," but wouldn't you FIRST evaluate if it is safe for you to get pregnant and carry a baby WITHOUT engaging in behaviors routinely that could cause you to get pregnant.

Knowledge is a big aspect in CF care. You need to know what the possibilities of pregnancy (AND on the future implications of being a mom with cf to a baby!!) are on the health of a CF person.

Also, you have mentioned you have no health insurance and are paying out of pocket for whatever medications you are on. So, now you are considering pregnancy without having the safety net of insurance... And it's SUPER expensive to raise a child. Are you fiscally ready to take on that??? Especially since you are already paying for meds.

I must be really demented here. I have thought about being a mom for MANY years. I have investigated the risks to me during pregnancy and AFTER pregnancy. I have saved money for my future child. I have established a support team to help me post-partum and in the future with my child.

To me, I don't understand your desire for a child. It seems that people want you to have a child --- does your boyfriend's mom know what CF is? Does she understand that it's not always a good thing to rush into a pregnancy without really plotting out the risks that can happen (ultimately, one could decompensate and require a transplant -- look at transplantmommy who IS taking care of herself, FOLLOWED by many specialists, MARRIED (although this does not always mean things are better, esp if someone has a well-rounded support team))

I don't know what else to say... I was taken aback kinda.

Jenn
31 yo cf
 
P

PedsNP2007

New member
Tom,
<br />I think you addressed key issues. You might have been blunt, but there is no sugar coating when someone talks about having a baby.
<br />
<br />Especially since Kim's displayed various postings...
<br />1. she does not routinely see the dr
<br />2. Does not seem to understand the importance of weight gain (quote: "def battle with my weight, but to loose it is my battle")
<br />3. Apparently it's harder for her to work full time b/c she gets tired
<br />
<br />One thing that really struck me was the fact that she hasn't been able to get pregnant already... What? Call me "better safe than sorry," but wouldn't you FIRST evaluate if it is safe for you to get pregnant and carry a baby WITHOUT engaging in behaviors routinely that could cause you to get pregnant.
<br />
<br />Knowledge is a big aspect in CF care. You need to know what the possibilities of pregnancy (AND on the future implications of being a mom with cf to a baby!!) are on the health of a CF person.
<br />
<br />Also, you have mentioned you have no health insurance and are paying out of pocket for whatever medications you are on. So, now you are considering pregnancy without having the safety net of insurance... And it's SUPER expensive to raise a child. Are you fiscally ready to take on that??? Especially since you are already paying for meds.
<br />
<br />I must be really demented here. I have thought about being a mom for MANY years. I have investigated the risks to me during pregnancy and AFTER pregnancy. I have saved money for my future child. I have established a support team to help me post-partum and in the future with my child.
<br />
<br />To me, I don't understand your desire for a child. It seems that people want you to have a child --- does your boyfriend's mom know what CF is? Does she understand that it's not always a good thing to rush into a pregnancy without really plotting out the risks that can happen (ultimately, one could decompensate and require a transplant -- look at transplantmommy who IS taking care of herself, FOLLOWED by many specialists, MARRIED (although this does not always mean things are better, esp if someone has a well-rounded support team))
<br />
<br />I don't know what else to say... I was taken aback kinda.
<br />
<br />Jenn
<br />31 yo cf
 
K

kmhbeauty

New member
I really love this site because it seems that everyone is so set in there ways and opinions that people get shocked if I write anything that is not a question. To answer your questions I am 23, dx at 15. Have lived without medicine except when I was in the hospital once and they forced me to do tobe almost 6 years ago. Which really did nothing for me, they know that now. My boyfriend has not had the true test done for being a carrier with cf. They were doing this sweat test last time I went to the doctors in san diego and they asked my boyfriend if me and him wanted to try it.We each got paid to do it, it was a study. We got poked with a needle and them they did some other stuff I dont remenber. But It was just a study to see if you can tell if someone is a carrier and mine said yes his said no. Totally know thats not the best way to test it was just intresting and would have to do the real test when I was ready to have a kid. I just found out I went off my dads insurance which was really good insurance from IBM. By the way I really have just started learning about cf, I dont know much about it because I never really cared to, I just knew I had it. Everyone has to start somewhere right? And Im not the only one like this my doctor said hes seem other people who are healthy and my age and maybe go through certain stages and then get on the path of taking care of themselves. AND I TOTALLY REPEAT I DO NOT WANT TO HAVE A BABY NOW. Im guessing 30 would be a good age for me. I just wondering things???? Cant someone here ask a question without getting jumped on? And there is not one doubt in my mind that I will live to see 45. Hahah I would NEVER let this disease take control of me. Right now im in the drivers seat, thankyou. Just did pfts 2 weeks ago and 85% and 3.0 been running 2 miles 3 days a week and still working over full time. I dont know this site is cool and all to ask questions but Ive only met a couple open people on here. Yep Im totally different the anyone you will meet with cf. Im young and a hard ass. I just think people could learn form me and I can learn from them. People get so uptight about things on here but the reality is we are talking and trying to learn, fight cystic fibrosis. So maybe calm the jets and get to the point of this site and thats to learn from each other not to jump on my back every 5 seconds. I hate to break it to ya, there are people out there with different opinions then you, there are people with cf who are healthy some are sick. And some want to learn things from others, the source. Thats why Im here. If you want to get all crazy talking about kids, relax, breath. It was a question.
 
K

kmhbeauty

New member
I really love this site because it seems that everyone is so set in there ways and opinions that people get shocked if I write anything that is not a question. To answer your questions I am 23, dx at 15. Have lived without medicine except when I was in the hospital once and they forced me to do tobe almost 6 years ago. Which really did nothing for me, they know that now. My boyfriend has not had the true test done for being a carrier with cf. They were doing this sweat test last time I went to the doctors in san diego and they asked my boyfriend if me and him wanted to try it.We each got paid to do it, it was a study. We got poked with a needle and them they did some other stuff I dont remenber. But It was just a study to see if you can tell if someone is a carrier and mine said yes his said no. Totally know thats not the best way to test it was just intresting and would have to do the real test when I was ready to have a kid. I just found out I went off my dads insurance which was really good insurance from IBM. By the way I really have just started learning about cf, I dont know much about it because I never really cared to, I just knew I had it. Everyone has to start somewhere right? And Im not the only one like this my doctor said hes seem other people who are healthy and my age and maybe go through certain stages and then get on the path of taking care of themselves. AND I TOTALLY REPEAT I DO NOT WANT TO HAVE A BABY NOW. Im guessing 30 would be a good age for me. I just wondering things???? Cant someone here ask a question without getting jumped on? And there is not one doubt in my mind that I will live to see 45. Hahah I would NEVER let this disease take control of me. Right now im in the drivers seat, thankyou. Just did pfts 2 weeks ago and 85% and 3.0 been running 2 miles 3 days a week and still working over full time. I dont know this site is cool and all to ask questions but Ive only met a couple open people on here. Yep Im totally different the anyone you will meet with cf. Im young and a hard ass. I just think people could learn form me and I can learn from them. People get so uptight about things on here but the reality is we are talking and trying to learn, fight cystic fibrosis. So maybe calm the jets and get to the point of this site and thats to learn from each other not to jump on my back every 5 seconds. I hate to break it to ya, there are people out there with different opinions then you, there are people with cf who are healthy some are sick. And some want to learn things from others, the source. Thats why Im here. If you want to get all crazy talking about kids, relax, breath. It was a question.
 
K

kmhbeauty

New member
I really love this site because it seems that everyone is so set in there ways and opinions that people get shocked if I write anything that is not a question. To answer your questions I am 23, dx at 15. Have lived without medicine except when I was in the hospital once and they forced me to do tobe almost 6 years ago. Which really did nothing for me, they know that now. My boyfriend has not had the true test done for being a carrier with cf. They were doing this sweat test last time I went to the doctors in san diego and they asked my boyfriend if me and him wanted to try it.We each got paid to do it, it was a study. We got poked with a needle and them they did some other stuff I dont remenber. But It was just a study to see if you can tell if someone is a carrier and mine said yes his said no. Totally know thats not the best way to test it was just intresting and would have to do the real test when I was ready to have a kid. I just found out I went off my dads insurance which was really good insurance from IBM. By the way I really have just started learning about cf, I dont know much about it because I never really cared to, I just knew I had it. Everyone has to start somewhere right? And Im not the only one like this my doctor said hes seem other people who are healthy and my age and maybe go through certain stages and then get on the path of taking care of themselves. AND I TOTALLY REPEAT I DO NOT WANT TO HAVE A BABY NOW. Im guessing 30 would be a good age for me. I just wondering things???? Cant someone here ask a question without getting jumped on? And there is not one doubt in my mind that I will live to see 45. Hahah I would NEVER let this disease take control of me. Right now im in the drivers seat, thankyou. Just did pfts 2 weeks ago and 85% and 3.0 been running 2 miles 3 days a week and still working over full time. I dont know this site is cool and all to ask questions but Ive only met a couple open people on here. Yep Im totally different the anyone you will meet with cf. Im young and a hard ass. I just think people could learn form me and I can learn from them. People get so uptight about things on here but the reality is we are talking and trying to learn, fight cystic fibrosis. So maybe calm the jets and get to the point of this site and thats to learn from each other not to jump on my back every 5 seconds. I hate to break it to ya, there are people out there with different opinions then you, there are people with cf who are healthy some are sick. And some want to learn things from others, the source. Thats why Im here. If you want to get all crazy talking about kids, relax, breath. It was a question.
 
K

kmhbeauty

New member
I really love this site because it seems that everyone is so set in there ways and opinions that people get shocked if I write anything that is not a question. To answer your questions I am 23, dx at 15. Have lived without medicine except when I was in the hospital once and they forced me to do tobe almost 6 years ago. Which really did nothing for me, they know that now. My boyfriend has not had the true test done for being a carrier with cf. They were doing this sweat test last time I went to the doctors in san diego and they asked my boyfriend if me and him wanted to try it.We each got paid to do it, it was a study. We got poked with a needle and them they did some other stuff I dont remenber. But It was just a study to see if you can tell if someone is a carrier and mine said yes his said no. Totally know thats not the best way to test it was just intresting and would have to do the real test when I was ready to have a kid. I just found out I went off my dads insurance which was really good insurance from IBM. By the way I really have just started learning about cf, I dont know much about it because I never really cared to, I just knew I had it. Everyone has to start somewhere right? And Im not the only one like this my doctor said hes seem other people who are healthy and my age and maybe go through certain stages and then get on the path of taking care of themselves. AND I TOTALLY REPEAT I DO NOT WANT TO HAVE A BABY NOW. Im guessing 30 would be a good age for me. I just wondering things???? Cant someone here ask a question without getting jumped on? And there is not one doubt in my mind that I will live to see 45. Hahah I would NEVER let this disease take control of me. Right now im in the drivers seat, thankyou. Just did pfts 2 weeks ago and 85% and 3.0 been running 2 miles 3 days a week and still working over full time. I dont know this site is cool and all to ask questions but Ive only met a couple open people on here. Yep Im totally different the anyone you will meet with cf. Im young and a hard ass. I just think people could learn form me and I can learn from them. People get so uptight about things on here but the reality is we are talking and trying to learn, fight cystic fibrosis. So maybe calm the jets and get to the point of this site and thats to learn from each other not to jump on my back every 5 seconds. I hate to break it to ya, there are people out there with different opinions then you, there are people with cf who are healthy some are sick. And some want to learn things from others, the source. Thats why Im here. If you want to get all crazy talking about kids, relax, breath. It was a question.
 
K

kmhbeauty

New member
I really love this site because it seems that everyone is so set in there ways and opinions that people get shocked if I write anything that is not a question. To answer your questions I am 23, dx at 15. Have lived without medicine except when I was in the hospital once and they forced me to do tobe almost 6 years ago. Which really did nothing for me, they know that now. My boyfriend has not had the true test done for being a carrier with cf. They were doing this sweat test last time I went to the doctors in san diego and they asked my boyfriend if me and him wanted to try it.We each got paid to do it, it was a study. We got poked with a needle and them they did some other stuff I dont remenber. But It was just a study to see if you can tell if someone is a carrier and mine said yes his said no. Totally know thats not the best way to test it was just intresting and would have to do the real test when I was ready to have a kid. I just found out I went off my dads insurance which was really good insurance from IBM. By the way I really have just started learning about cf, I dont know much about it because I never really cared to, I just knew I had it. Everyone has to start somewhere right? And Im not the only one like this my doctor said hes seem other people who are healthy and my age and maybe go through certain stages and then get on the path of taking care of themselves. AND I TOTALLY REPEAT I DO NOT WANT TO HAVE A BABY NOW. Im guessing 30 would be a good age for me. I just wondering things???? Cant someone here ask a question without getting jumped on? And there is not one doubt in my mind that I will live to see 45. Hahah I would NEVER let this disease take control of me. Right now im in the drivers seat, thankyou. Just did pfts 2 weeks ago and 85% and 3.0 been running 2 miles 3 days a week and still working over full time. I dont know this site is cool and all to ask questions but Ive only met a couple open people on here. Yep Im totally different the anyone you will meet with cf. Im young and a hard ass. I just think people could learn form me and I can learn from them. People get so uptight about things on here but the reality is we are talking and trying to learn, fight cystic fibrosis. So maybe calm the jets and get to the point of this site and thats to learn from each other not to jump on my back every 5 seconds. I hate to break it to ya, there are people out there with different opinions then you, there are people with cf who are healthy some are sick. And some want to learn things from others, the source. Thats why Im here. If you want to get all crazy talking about kids, relax, breath. It was a question.
 
K

kmhbeauty

New member
Answers to other questions:
1.I do not see a doctor often
2. There is no need for weight gain here, I just gained 10 lbs since I started taking ultrace enzymes instead of the ones you find at the health food store. Im 145lbs 5'8 tall, not fat of course just not as toned as other girls my age.
3. Well I do work at a very busy resturant and run around like a crazy peron for 6 hours stright. Being a waitress is hard for a normal person without cf. I have been doing it for gong on 3 years.
The only medicine I take is enzymes and medicine for when I have a cold ect.
And right now there is really no desire to have a kid except I know that will change in a good 5-10 years. Theres no way I would have one now, I like taking care of myself and being able to do my own thing. Go out at night with friends. Baby=future
 
K

kmhbeauty

New member
Answers to other questions:
1.I do not see a doctor often
2. There is no need for weight gain here, I just gained 10 lbs since I started taking ultrace enzymes instead of the ones you find at the health food store. Im 145lbs 5'8 tall, not fat of course just not as toned as other girls my age.
3. Well I do work at a very busy resturant and run around like a crazy peron for 6 hours stright. Being a waitress is hard for a normal person without cf. I have been doing it for gong on 3 years.
The only medicine I take is enzymes and medicine for when I have a cold ect.
And right now there is really no desire to have a kid except I know that will change in a good 5-10 years. Theres no way I would have one now, I like taking care of myself and being able to do my own thing. Go out at night with friends. Baby=future
 
K

kmhbeauty

New member
Answers to other questions:
1.I do not see a doctor often
2. There is no need for weight gain here, I just gained 10 lbs since I started taking ultrace enzymes instead of the ones you find at the health food store. Im 145lbs 5'8 tall, not fat of course just not as toned as other girls my age.
3. Well I do work at a very busy resturant and run around like a crazy peron for 6 hours stright. Being a waitress is hard for a normal person without cf. I have been doing it for gong on 3 years.
The only medicine I take is enzymes and medicine for when I have a cold ect.
And right now there is really no desire to have a kid except I know that will change in a good 5-10 years. Theres no way I would have one now, I like taking care of myself and being able to do my own thing. Go out at night with friends. Baby=future
 
K

kmhbeauty

New member
Answers to other questions:
1.I do not see a doctor often
2. There is no need for weight gain here, I just gained 10 lbs since I started taking ultrace enzymes instead of the ones you find at the health food store. Im 145lbs 5'8 tall, not fat of course just not as toned as other girls my age.
3. Well I do work at a very busy resturant and run around like a crazy peron for 6 hours stright. Being a waitress is hard for a normal person without cf. I have been doing it for gong on 3 years.
The only medicine I take is enzymes and medicine for when I have a cold ect.
And right now there is really no desire to have a kid except I know that will change in a good 5-10 years. Theres no way I would have one now, I like taking care of myself and being able to do my own thing. Go out at night with friends. Baby=future
 
K

kmhbeauty

New member
Answers to other questions:
<br />1.I do not see a doctor often
<br />2. There is no need for weight gain here, I just gained 10 lbs since I started taking ultrace enzymes instead of the ones you find at the health food store. Im 145lbs 5'8 tall, not fat of course just not as toned as other girls my age.
<br />3. Well I do work at a very busy resturant and run around like a crazy peron for 6 hours stright. Being a waitress is hard for a normal person without cf. I have been doing it for gong on 3 years.
<br />The only medicine I take is enzymes and medicine for when I have a cold ect.
<br />And right now there is really no desire to have a kid except I know that will change in a good 5-10 years. Theres no way I would have one now, I like taking care of myself and being able to do my own thing. Go out at night with friends. Baby=future
 
K

Kristen

New member
Ok, I will respond based on the fact that you are just thinking about the future. If you were thinking about having a baby right now, I'd be with everyone else. I am with everyone else on "ARE YOU CRAZY??? USE BIRTH CONTROL IF YOU AREN'T READY TO BE A MOTHER!"

Anyway, yelling done. So, what I think you really need to do, in the meantime, is learn, learn, learn about CF. CF is progressive. You probably won't always be as healthy as you are now. Hopefully, you health will be great for a long, long, time, and you'll live to see 75. But you have to be prepared for the possibility that you may start getting sick more often, may have to spend time in the hospital, may have to spend lots of time taking nebulized drugs.

And all those medical expenses can really add up, even with insurance. I have great insurance and still pay like $300 a month on CF stuff - that's a lot of money that definitely needs to be budgeted for. (And, if we have a child and I stop working, I will be on my husband's insurance, which has a $7000 deductible - we'll meet that in a few months with my colistin alone).

I was just like you in that I didn't know/think much about CF until my early 20s (and I was also all about loosing weight...actually, I still kind-of am). I didn't even know my genotype, or had ever heard of PA. I was sooooo healthy and the only med I took was albuterol once or twice a day. Now I am 32, and still really healthy (FEV1 = 110%), but I've cultured PA and am now on HS and colistin. Making sure I get my meds and exersize in means I have less free time than I used to have, and there is no way I'd be able to have a child, take care of myself AND work full time. So if God ever blesses us with a child, I'll be quitting my job.

And definitely keep reading on hear to learn what the lives are like of other mommies with CF.

And, like others said, you need to learn what to do to protect your child in the event you do pass away, especially if you are not going to get married.

Ok, so once you learn about what living with more progressive CF & raising a child might really be like and you decide you want to have one, talk to you CF doctor to make sure it's a good idea. And get your BF tested for the CF gene. Based on those results, decide what you want to do. If the test is negative and you want to have a child, read (and use) Taking Charge of Your Fertility, try on your own for six months and, if you aren't PG yet, go see your OB/GYN. She will probably refer you to a Reproductive Endocrinologist, who will probably recommend intrauterine insemination (IUI). IUI costs about $600 each try. Hopefully that will work. If not, then you'll start taking drugs, and the costs can get as high as $5000, depending on what you do and your insurance coverage.

I hope this helps!
 
K

Kristen

New member
Ok, I will respond based on the fact that you are just thinking about the future. If you were thinking about having a baby right now, I'd be with everyone else. I am with everyone else on "ARE YOU CRAZY??? USE BIRTH CONTROL IF YOU AREN'T READY TO BE A MOTHER!"

Anyway, yelling done. So, what I think you really need to do, in the meantime, is learn, learn, learn about CF. CF is progressive. You probably won't always be as healthy as you are now. Hopefully, you health will be great for a long, long, time, and you'll live to see 75. But you have to be prepared for the possibility that you may start getting sick more often, may have to spend time in the hospital, may have to spend lots of time taking nebulized drugs.

And all those medical expenses can really add up, even with insurance. I have great insurance and still pay like $300 a month on CF stuff - that's a lot of money that definitely needs to be budgeted for. (And, if we have a child and I stop working, I will be on my husband's insurance, which has a $7000 deductible - we'll meet that in a few months with my colistin alone).

I was just like you in that I didn't know/think much about CF until my early 20s (and I was also all about loosing weight...actually, I still kind-of am). I didn't even know my genotype, or had ever heard of PA. I was sooooo healthy and the only med I took was albuterol once or twice a day. Now I am 32, and still really healthy (FEV1 = 110%), but I've cultured PA and am now on HS and colistin. Making sure I get my meds and exersize in means I have less free time than I used to have, and there is no way I'd be able to have a child, take care of myself AND work full time. So if God ever blesses us with a child, I'll be quitting my job.

And definitely keep reading on hear to learn what the lives are like of other mommies with CF.

And, like others said, you need to learn what to do to protect your child in the event you do pass away, especially if you are not going to get married.

Ok, so once you learn about what living with more progressive CF & raising a child might really be like and you decide you want to have one, talk to you CF doctor to make sure it's a good idea. And get your BF tested for the CF gene. Based on those results, decide what you want to do. If the test is negative and you want to have a child, read (and use) Taking Charge of Your Fertility, try on your own for six months and, if you aren't PG yet, go see your OB/GYN. She will probably refer you to a Reproductive Endocrinologist, who will probably recommend intrauterine insemination (IUI). IUI costs about $600 each try. Hopefully that will work. If not, then you'll start taking drugs, and the costs can get as high as $5000, depending on what you do and your insurance coverage.

I hope this helps!
 
K

Kristen

New member
Ok, I will respond based on the fact that you are just thinking about the future. If you were thinking about having a baby right now, I'd be with everyone else. I am with everyone else on "ARE YOU CRAZY??? USE BIRTH CONTROL IF YOU AREN'T READY TO BE A MOTHER!"

Anyway, yelling done. So, what I think you really need to do, in the meantime, is learn, learn, learn about CF. CF is progressive. You probably won't always be as healthy as you are now. Hopefully, you health will be great for a long, long, time, and you'll live to see 75. But you have to be prepared for the possibility that you may start getting sick more often, may have to spend time in the hospital, may have to spend lots of time taking nebulized drugs.

And all those medical expenses can really add up, even with insurance. I have great insurance and still pay like $300 a month on CF stuff - that's a lot of money that definitely needs to be budgeted for. (And, if we have a child and I stop working, I will be on my husband's insurance, which has a $7000 deductible - we'll meet that in a few months with my colistin alone).

I was just like you in that I didn't know/think much about CF until my early 20s (and I was also all about loosing weight...actually, I still kind-of am). I didn't even know my genotype, or had ever heard of PA. I was sooooo healthy and the only med I took was albuterol once or twice a day. Now I am 32, and still really healthy (FEV1 = 110%), but I've cultured PA and am now on HS and colistin. Making sure I get my meds and exersize in means I have less free time than I used to have, and there is no way I'd be able to have a child, take care of myself AND work full time. So if God ever blesses us with a child, I'll be quitting my job.

And definitely keep reading on hear to learn what the lives are like of other mommies with CF.

And, like others said, you need to learn what to do to protect your child in the event you do pass away, especially if you are not going to get married.

Ok, so once you learn about what living with more progressive CF & raising a child might really be like and you decide you want to have one, talk to you CF doctor to make sure it's a good idea. And get your BF tested for the CF gene. Based on those results, decide what you want to do. If the test is negative and you want to have a child, read (and use) Taking Charge of Your Fertility, try on your own for six months and, if you aren't PG yet, go see your OB/GYN. She will probably refer you to a Reproductive Endocrinologist, who will probably recommend intrauterine insemination (IUI). IUI costs about $600 each try. Hopefully that will work. If not, then you'll start taking drugs, and the costs can get as high as $5000, depending on what you do and your insurance coverage.

I hope this helps!
 
K

Kristen

New member
Ok, I will respond based on the fact that you are just thinking about the future. If you were thinking about having a baby right now, I'd be with everyone else. I am with everyone else on "ARE YOU CRAZY??? USE BIRTH CONTROL IF YOU AREN'T READY TO BE A MOTHER!"

Anyway, yelling done. So, what I think you really need to do, in the meantime, is learn, learn, learn about CF. CF is progressive. You probably won't always be as healthy as you are now. Hopefully, you health will be great for a long, long, time, and you'll live to see 75. But you have to be prepared for the possibility that you may start getting sick more often, may have to spend time in the hospital, may have to spend lots of time taking nebulized drugs.

And all those medical expenses can really add up, even with insurance. I have great insurance and still pay like $300 a month on CF stuff - that's a lot of money that definitely needs to be budgeted for. (And, if we have a child and I stop working, I will be on my husband's insurance, which has a $7000 deductible - we'll meet that in a few months with my colistin alone).

I was just like you in that I didn't know/think much about CF until my early 20s (and I was also all about loosing weight...actually, I still kind-of am). I didn't even know my genotype, or had ever heard of PA. I was sooooo healthy and the only med I took was albuterol once or twice a day. Now I am 32, and still really healthy (FEV1 = 110%), but I've cultured PA and am now on HS and colistin. Making sure I get my meds and exersize in means I have less free time than I used to have, and there is no way I'd be able to have a child, take care of myself AND work full time. So if God ever blesses us with a child, I'll be quitting my job.

And definitely keep reading on hear to learn what the lives are like of other mommies with CF.

And, like others said, you need to learn what to do to protect your child in the event you do pass away, especially if you are not going to get married.

Ok, so once you learn about what living with more progressive CF & raising a child might really be like and you decide you want to have one, talk to you CF doctor to make sure it's a good idea. And get your BF tested for the CF gene. Based on those results, decide what you want to do. If the test is negative and you want to have a child, read (and use) Taking Charge of Your Fertility, try on your own for six months and, if you aren't PG yet, go see your OB/GYN. She will probably refer you to a Reproductive Endocrinologist, who will probably recommend intrauterine insemination (IUI). IUI costs about $600 each try. Hopefully that will work. If not, then you'll start taking drugs, and the costs can get as high as $5000, depending on what you do and your insurance coverage.

I hope this helps!
 
K

Kristen

New member
Ok, I will respond based on the fact that you are just thinking about the future. If you were thinking about having a baby right now, I'd be with everyone else. I am with everyone else on "ARE YOU CRAZY??? USE BIRTH CONTROL IF YOU AREN'T READY TO BE A MOTHER!"
<br />
<br />Anyway, yelling done. So, what I think you really need to do, in the meantime, is learn, learn, learn about CF. CF is progressive. You probably won't always be as healthy as you are now. Hopefully, you health will be great for a long, long, time, and you'll live to see 75. But you have to be prepared for the possibility that you may start getting sick more often, may have to spend time in the hospital, may have to spend lots of time taking nebulized drugs.
<br />
<br />And all those medical expenses can really add up, even with insurance. I have great insurance and still pay like $300 a month on CF stuff - that's a lot of money that definitely needs to be budgeted for. (And, if we have a child and I stop working, I will be on my husband's insurance, which has a $7000 deductible - we'll meet that in a few months with my colistin alone).
<br />
<br />I was just like you in that I didn't know/think much about CF until my early 20s (and I was also all about loosing weight...actually, I still kind-of am). I didn't even know my genotype, or had ever heard of PA. I was sooooo healthy and the only med I took was albuterol once or twice a day. Now I am 32, and still really healthy (FEV1 = 110%), but I've cultured PA and am now on HS and colistin. Making sure I get my meds and exersize in means I have less free time than I used to have, and there is no way I'd be able to have a child, take care of myself AND work full time. So if God ever blesses us with a child, I'll be quitting my job.
<br />
<br />And definitely keep reading on hear to learn what the lives are like of other mommies with CF.
<br />
<br />And, like others said, you need to learn what to do to protect your child in the event you do pass away, especially if you are not going to get married.
<br />
<br />Ok, so once you learn about what living with more progressive CF & raising a child might really be like and you decide you want to have one, talk to you CF doctor to make sure it's a good idea. And get your BF tested for the CF gene. Based on those results, decide what you want to do. If the test is negative and you want to have a child, read (and use) Taking Charge of Your Fertility, try on your own for six months and, if you aren't PG yet, go see your OB/GYN. She will probably refer you to a Reproductive Endocrinologist, who will probably recommend intrauterine insemination (IUI). IUI costs about $600 each try. Hopefully that will work. If not, then you'll start taking drugs, and the costs can get as high as $5000, depending on what you do and your insurance coverage.
<br />
<br />I hope this helps!
 
You must log in or register to reply here.
Top