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Having a baby...
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Hi Amy,
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
Hi Amy,
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
Hi Amy,
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
Hi Amy,
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
Hi Amy,
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
I honestly feel I was born to be a mom. I always wanted to be pregnant and have my own children, as young as 14 I remember fantacising about pregnancy! I found the man of my dreams when I was 21, we married when I was 25 and we ttc'd when I was 26. 26 months later, and after a diagnosis of severe endometriosis, we found out we were pregnant with twins, thanks to our first round of IVF.
My desire to be a mom was so strong. I knew I would be good at it, and frankly, I think I am! Though I still feel like a rookie, as the twins won't turn 3 until next month. I have enjoyed EVERY single minute. I know lots of moms say that, but how many of them mean it. I actually miss my kids when they're sleeping.
Balancing treatments and exacerbations now that the twins are here is rough on me, but not on them. We have a strong family support system who are always willing to help. Since I am the caregiver while my husband works, we have to call in for family support when I go into the hospital. I find myself treating CF more aggressively now that I have kids. My baseline has fallen a bit since I gave birth, but my age has also increased....so you never know where I would have been. I have approximately 51% FEV1, whereas before I was pregnant my baseline hovered in the mid fifty range.
The actual pregnancy was a bit tough because of the diabetes and multiple births, but I did very well as far as CF is concerned. My FEV1 actually increased by the time I delivered at full term, 38 weeks pregnant with twins! My stomach was gigantic but my FEV1 was in the sixties, higher than it had been in YEARS! Must have been the extra blood volume giving me more oxygen or something.
I do catch nearly every cold the twins have. They are fairly healthy kids, especially since I am a stay at home mom. But they do catch the occasional cold once or twice a year, and that usually lands me in the hospital for about 10 days. But I come out being better off for it and feeling like a new woman.
I don't even think I can express my love for these kids in words. It's indescribable. It's everything I imagined. I smile everytime I see them or think about them, which is all day every day! (I'm smiling right now) and I think happiness has a lot to do with overall health as well. I know happiness can't cure CF, but it sure can make my day brighter.
In the end, I know I had a supportive husband, no matter how sick I get and my extended family and friend support system is strong as well. I don't try and do everything on my own. I lean on people for support because the more help I get, the longer I'll be around to enjoy their company.
bittyhorse23
New member
Thank you so much everyone for your answers so far!!! That is really what I needed!!! I am so glad to see everyone is ecstatic with their decisions.
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
bittyhorse23
New member
Thank you so much everyone for your answers so far!!! That is really what I needed!!! I am so glad to see everyone is ecstatic with their decisions.
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
bittyhorse23
New member
Thank you so much everyone for your answers so far!!! That is really what I needed!!! I am so glad to see everyone is ecstatic with their decisions.
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
bittyhorse23
New member
Thank you so much everyone for your answers so far!!! That is really what I needed!!! I am so glad to see everyone is ecstatic with their decisions.
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
bittyhorse23
New member
Thank you so much everyone for your answers so far!!! That is really what I needed!!! I am so glad to see everyone is ecstatic with their decisions.
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
Tara, you are making me want babies more and more <img src="i/expressions/face-icon-small-smile.gif" border="0"> I always dreamed about having babies when I was little...I used to carry around a baby doll all the time and my mom used to say she would catch me with a pillow up my shirt pretending I was pregnant LOL!!!
mom2lillian
New member
Well I will try to give the other side of the coin here a bit. Even with PFT's in the 90+ range was pretty sure I could not have a kid because it woudl not be fair to them. I was very concerned about being irresponsible and leaving them and their father alone. It is only after long talks with my CF care team and evaluating my own healht and how we thought I woudl do that I decided it might be ok. I am not trying to judge others with lower lung functions who have children becaue everyone has to decide for themselves what is right for them and their family I am saying this was MY thought process (but I have good PFT's so its easy for me to think this way I am sure).
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
mom2lillian
New member
Well I will try to give the other side of the coin here a bit. Even with PFT's in the 90+ range was pretty sure I could not have a kid because it woudl not be fair to them. I was very concerned about being irresponsible and leaving them and their father alone. It is only after long talks with my CF care team and evaluating my own healht and how we thought I woudl do that I decided it might be ok. I am not trying to judge others with lower lung functions who have children becaue everyone has to decide for themselves what is right for them and their family I am saying this was MY thought process (but I have good PFT's so its easy for me to think this way I am sure).
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
mom2lillian
New member
Well I will try to give the other side of the coin here a bit. Even with PFT's in the 90+ range was pretty sure I could not have a kid because it woudl not be fair to them. I was very concerned about being irresponsible and leaving them and their father alone. It is only after long talks with my CF care team and evaluating my own healht and how we thought I woudl do that I decided it might be ok. I am not trying to judge others with lower lung functions who have children becaue everyone has to decide for themselves what is right for them and their family I am saying this was MY thought process (but I have good PFT's so its easy for me to think this way I am sure).
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
mom2lillian
New member
Well I will try to give the other side of the coin here a bit. Even with PFT's in the 90+ range was pretty sure I could not have a kid because it woudl not be fair to them. I was very concerned about being irresponsible and leaving them and their father alone. It is only after long talks with my CF care team and evaluating my own healht and how we thought I woudl do that I decided it might be ok. I am not trying to judge others with lower lung functions who have children becaue everyone has to decide for themselves what is right for them and their family I am saying this was MY thought process (but I have good PFT's so its easy for me to think this way I am sure).
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
mom2lillian
New member
Well I will try to give the other side of the coin here a bit. Even with PFT's in the 90+ range was pretty sure I could not have a kid because it woudl not be fair to them. I was very concerned about being irresponsible and leaving them and their father alone. It is only after long talks with my CF care team and evaluating my own healht and how we thought I woudl do that I decided it might be ok. I am not trying to judge others with lower lung functions who have children becaue everyone has to decide for themselves what is right for them and their family I am saying this was MY thought process (but I have good PFT's so its easy for me to think this way I am sure).
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.
I think that the husband plays alot to do with it, I think they ahve to be overly good to compensate for our 'down times' etc. We talked extensively about me dying and how he woudl cope, how he felt beign a single father etc. My husband has always been so accepting of it that I even made us go to couple's counseling because i didnt belive his level of acceptance was possible.
Anyway although I figured I might not be able to I had never thought through the never having kids picture fully (or I woudl probably have had a break down as well as I always wanted kids etc). My husband and I talked and talked with my docs and visited a perinatologist to see what they thoght my odds were going to be like going through a pregnancy etc. It was then we decided to try and have a family.
If I didnt think that I coudl stick around long enough to see her in her teens then I probably would not have had kids. Perhaps this is part of my dilusioned state of how my health will go I dont know. I do know my CF team secretly told my OB (my OB believes it sould be common knowledge adn told me CF docs dont want ot raise or lower your hopes so they dont tell)that with my particular case they see me living to 60-70. Although I know that I cant count on that and I coudl at any time contract Cepacia or worse I felt much better hearing that because I thought maybe 40 which is why I was not wanting ot have kids.
So basically for my husband and I we prepare as if I might not be here long but hope for the best. We will try to prepare our daughter and make sure she is well adjusted and good coping mechanisms. Another factor that played into my thoughts were seeing some of my friends who watched their parent die of a horrible disease and my friends kids who watched their parent die of a horrible long disease, both sets families had right attitude abotu it and all children involved are doing very well so I eblieve it is possible.
I currently have PFT's above 100% and work full time. Most days it takes alot out of me but overall my health has improved becaue I am more dedicated to takign care of myself. My clincin actually encourages women who want to to get pregnant (and are in teh right situation), they claim it has done nothign but imrpove the longevity of their patients, all of their patients have had similar experiecne to me in improving their health. I know this is nto always the case but I believe it is possible. However, if I had trouble keeping up with getting through my normal day I dont knwo how I woudl have felt because that was not the case with me. I know that my day now with my daughter takes 1000% more out of me than my day without her (it's worth it but it is an extreme difference) just to give an idea.