I hate to say this, but I think that this will just be the start of your "healthy" food struggles. My daughter just started 7th grade and is already getting the healthy diet vs. not healthy. We go through it EVERY YEAR. I understand and have tried to make her understand that most of America is overweight and the teachers are just doing what they can to curb that. <br>However, I agree that your Kindergarten teacher is being somewhat lazy in not explaining it to the other kids why she "gets to" eat other things. The kids can understand a peanut allergy, they can understand the basics of CF. I actually had the social worker and a nurse from Abby's clinic come in and help explain it to the kids when Abby was in 1st grade. That seemed to help. They also showed a Bill Nye the Science Guy video on CF to the class. They understood that.<br>I say "gets to" in quotes because I'm sure your daughter would like to eat what everyone else is eating. She probably doesn't want to stand out or be different. No one does when they are in school. However, she needs to get all the calories she can, when she can. If she is eating, she should eat what is going to do her the most good. <br>If you or your daughter still have problems, take it up a notch and discuss with the principal and get the nurse involved. Not sure of non-public schools have 504 or IEP plans, but that has helped us in the past.<br>
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I hate to say this, but I think that this will just be the start of your "healthy" food struggles. My daughter just started 7th grade and is already getting the healthy diet vs. not healthy. We go through it EVERY YEAR. I understand and have tried to make her understand that most of America is overweight and the teachers are just doing what they can to curb that. <br>However, I agree that your Kindergarten teacher is being somewhat lazy in not explaining it to the other kids why she "gets to" eat other things. The kids can understand a peanut allergy, they can understand the basics of CF. I actually had the social worker and a nurse from Abby's clinic come in and help explain it to the kids when Abby was in 1st grade. That seemed to help. They also showed a Bill Nye the Science Guy video on CF to the class. They understood that.<br>I say "gets to" in quotes because I'm sure your daughter would like to eat what everyone else is eating. She probably doesn't want to stand out or be different. No one does when they are in school. However, she needs to get all the calories she can, when she can. If she is eating, she should eat what is going to do her the most good. <br>If you or your daughter still have problems, take it up a notch and discuss with the principal and get the nurse involved. Not sure of non-public schools have 504 or IEP plans, but that has helped us in the past.<br>
StraitLife
New member
<P>Heather--</P>
<P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P>
<P>I am a total rule follower. So, it took my son's WHOLE kindergarten year-resulting in four hospitalizations- for me to finally realize: </P>
<P><STRONG><STRONG>You are your child's only advocate</STRONG>.</STRONG> </P>
<P>From then on, if he needed to drink pure chocolate syrup at lunch--If he needed to sit and read a book during gym class--If he needed gatorade on his desk all day--If he needed to make 20 trips to the bathroom till we got his enzymes straightened out--whatever--</P>
<P>I simply bypassed asking the school--and got a doctor's note. I presented the note and said--this is how it needs to be for MY child...make it work please. </P>
<P>That boy almost died because I was so timid and it taught me a very harsh lesson. </P>
<P>From then on, I was very professional about it--very nice--but very firm. I got all the proper documentation ready before I presented it to the school. We still had some bumps in the road but nothing that a little communication--and me presenting documentation--couldn't iron out. </P>
<P>And now--he made it through school and graduated last May. He is now in college, wonderful and healthy. </P>
<P>SO-my advice is to get a 504 plan--and doctor's notes for the snacks and anything else your child needs. I also sent plenty of CF information to Brady's teachers to help educate them about the special nutritional needs. </P>
<P>Good luck!</P>
<P>Wendy</P>
<P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P>
<P>I am a total rule follower. So, it took my son's WHOLE kindergarten year-resulting in four hospitalizations- for me to finally realize: </P>
<P><STRONG><STRONG>You are your child's only advocate</STRONG>.</STRONG> </P>
<P>From then on, if he needed to drink pure chocolate syrup at lunch--If he needed to sit and read a book during gym class--If he needed gatorade on his desk all day--If he needed to make 20 trips to the bathroom till we got his enzymes straightened out--whatever--</P>
<P>I simply bypassed asking the school--and got a doctor's note. I presented the note and said--this is how it needs to be for MY child...make it work please. </P>
<P>That boy almost died because I was so timid and it taught me a very harsh lesson. </P>
<P>From then on, I was very professional about it--very nice--but very firm. I got all the proper documentation ready before I presented it to the school. We still had some bumps in the road but nothing that a little communication--and me presenting documentation--couldn't iron out. </P>
<P>And now--he made it through school and graduated last May. He is now in college, wonderful and healthy. </P>
<P>SO-my advice is to get a 504 plan--and doctor's notes for the snacks and anything else your child needs. I also sent plenty of CF information to Brady's teachers to help educate them about the special nutritional needs. </P>
<P>Good luck!</P>
<P>Wendy</P>
StraitLife
New member
<P>Heather--</P>
<P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P>
<P>I am a total rule follower. So, it took my son'sWHOLE kindergarten year-resulting in four hospitalizations-for me to finally realize: </P>
<P><STRONG><STRONG>You are your child's only advocate</STRONG>.</STRONG> </P>
<P>From then on, if he needed to drink pure chocolate syrupat lunch--If he needed to sit and read a book during gym class--If he needed gatorade on his desk all day--If he needed to make 20 trips to the bathroom till we got his enzymes straightened out--whatever--</P>
<P>I simply bypassed asking the school--and got a doctor's note. I presented the note and said--this is how it needs to be for MY child...make it work please. </P>
<P>That boy almost died because I was so timid and it taught me a very harsh lesson. </P>
<P>From then on, I was very professional about it--very nice--but very firm. I got all the proper documentation ready before I presented it to the school. We still had some bumps in the road but nothing that a little communication--and me presenting documentation--couldn't iron out. </P>
<P>And now--he made it through school and graduated last May. He is now in college, wonderful and healthy. </P>
<P>SO-my advice is to get a 504 plan--and doctor's notes for the snacks and anything else your child needs. I also sent plenty of CF information to Brady's teachers to help educate them about the special nutritional needs. </P>
<P>Good luck!</P>
<P>Wendy</P>
<P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P>
<P>I am a total rule follower. So, it took my son'sWHOLE kindergarten year-resulting in four hospitalizations-for me to finally realize: </P>
<P><STRONG><STRONG>You are your child's only advocate</STRONG>.</STRONG> </P>
<P>From then on, if he needed to drink pure chocolate syrupat lunch--If he needed to sit and read a book during gym class--If he needed gatorade on his desk all day--If he needed to make 20 trips to the bathroom till we got his enzymes straightened out--whatever--</P>
<P>I simply bypassed asking the school--and got a doctor's note. I presented the note and said--this is how it needs to be for MY child...make it work please. </P>
<P>That boy almost died because I was so timid and it taught me a very harsh lesson. </P>
<P>From then on, I was very professional about it--very nice--but very firm. I got all the proper documentation ready before I presented it to the school. We still had some bumps in the road but nothing that a little communication--and me presenting documentation--couldn't iron out. </P>
<P>And now--he made it through school and graduated last May. He is now in college, wonderful and healthy. </P>
<P>SO-my advice is to get a 504 plan--and doctor's notes for the snacks and anything else your child needs. I also sent plenty of CF information to Brady's teachers to help educate them about the special nutritional needs. </P>
<P>Good luck!</P>
<P>Wendy</P>
StraitLife
New member
<P><BR>Heather--</P>
<P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P>
<P>I am a total rule follower. So, it took my son'sWHOLE kindergarten year-resulting in four hospitalizations-for me to finally realize: </P>
<P><STRONG><STRONG>You are your child's only advocate</STRONG>.</STRONG> </P>
<P>From then on, if he needed to drink pure chocolate syrupat lunch--If he needed to sit and read a book during gym class--If he needed gatorade on his desk all day--If he needed to make 20 trips to the bathroom till we got his enzymes straightened out--whatever--</P>
<P>I simply bypassed asking the school--and got a doctor's note. I presented the note and said--this is how it needs to be for MY child...make it work please. </P>
<P>That boy almost died because I was so timid and it taught me a very harsh lesson. </P>
<P>From then on, I was very professional about it--very nice--but very firm. I got all the proper documentation ready before I presented it to the school. We still had some bumps in the road but nothing that a little communication--and me presenting documentation--couldn't iron out. </P>
<P>And now--he made it through school and graduated last May. He is now in college, wonderful and healthy. </P>
<P>SO-my advice is to get a 504 plan--and doctor's notes for the snacks and anything else your child needs. I also sent plenty of CF information to Brady's teachers to help educate them about the special nutritional needs. </P>
<P>Good luck!</P>
<P>Wendy</P>
<P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P>
<P>I am a total rule follower. So, it took my son'sWHOLE kindergarten year-resulting in four hospitalizations-for me to finally realize: </P>
<P><STRONG><STRONG>You are your child's only advocate</STRONG>.</STRONG> </P>
<P>From then on, if he needed to drink pure chocolate syrupat lunch--If he needed to sit and read a book during gym class--If he needed gatorade on his desk all day--If he needed to make 20 trips to the bathroom till we got his enzymes straightened out--whatever--</P>
<P>I simply bypassed asking the school--and got a doctor's note. I presented the note and said--this is how it needs to be for MY child...make it work please. </P>
<P>That boy almost died because I was so timid and it taught me a very harsh lesson. </P>
<P>From then on, I was very professional about it--very nice--but very firm. I got all the proper documentation ready before I presented it to the school. We still had some bumps in the road but nothing that a little communication--and me presenting documentation--couldn't iron out. </P>
<P>And now--he made it through school and graduated last May. He is now in college, wonderful and healthy. </P>
<P>SO-my advice is to get a 504 plan--and doctor's notes for the snacks and anything else your child needs. I also sent plenty of CF information to Brady's teachers to help educate them about the special nutritional needs. </P>
<P>Good luck!</P>
<P>Wendy</P>
I dread that day. As the mother of an already very picky eater (with some allergy issues thrown in) and a g-tube due to FTT, I would have had a fit. <br><br>It's a perfect learning opportunity for the kids and in the same way they can't bring nuts, your little one can't eat what they eat and stay healthy. It's that simple and a good teacher would use it to their advantage and by not making a big deal about, the kids wouldn't either.<br><br>I would also agree with your assessment that this isn't the way to start of the school year. If the teacher is really adamant about this, you may need to work with a nurse/counselor/principal to make sure your child gets what she needs.<br><br>I hope that things get better!<br>
I dread that day. As the mother of an already very picky eater (with some allergy issues thrown in) and a g-tube due to FTT, I would have had a fit. <br><br>It's a perfect learning opportunity for the kids and in the same way they can't bring nuts, your little one can't eat what they eat and stay healthy. It's that simple and a good teacher would use it to their advantage and by not making a big deal about, the kids wouldn't either.<br><br>I would also agree with your assessment that this isn't the way to start of the school year. If the teacher is really adamant about this, you may need to work with a nurse/counselor/principal to make sure your child gets what she needs.<br><br>I hope that things get better!<br>
I dread that day. As the mother of an already very picky eater (with some allergy issues thrown in) and a g-tube due to FTT, I would have had a fit. <br><br>It's a perfect learning opportunity for the kids and in the same way they can't bring nuts, your little one can't eat what they eat and stay healthy. It's that simple and a good teacher would use it to their advantage and by not making a big deal about, the kids wouldn't either.<br><br>I would also agree with your assessment that this isn't the way to start of the school year. If the teacher is really adamant about this, you may need to work with a nurse/counselor/principal to make sure your child gets what she needs.<br><br>I hope that things get better!<br>
<P>Jasey gained a pound in the first week and a half since starting enzymes and now has lost it because she wont eat at school anymore!!! They only get about 15 to 20 min to eat then it's recess. She takes a while to eat. She's not eating her lunch, she would rather leave with her class and play at recess. I know this isn't exactly the same topic but still involves food at school. She does get her enzymes but what good does it do if she doesn't eat!! If she is only eating a "healthy" snack at school , she's getting very few cal there. HELP!!!</P>
<P>Does everyone send your own snacks in with your kids? How do you handle making sure they get enough time to eat?</P>
<P>Does everyone send your own snacks in with your kids? How do you handle making sure they get enough time to eat?</P>
<P>Jasey gained a pound in the first week and a half since starting enzymes and now has lost it because she wont eat at school anymore!!! They only get about 15 to 20 min to eat then it's recess. She takes a while to eat. She's not eating her lunch, she would rather leave with her class and play at recess. I know this isn't exactly the same topic but still involves food at school. She does get her enzymes but what good does it do if she doesn't eat!! If she is only eating a "healthy" snack at school , she's getting very few cal there. HELP!!!</P>
<P>Does everyone send your own snacks in with your kids? How do you handle making sure they get enough time to eat?</P>
<P>Does everyone send your own snacks in with your kids? How do you handle making sure they get enough time to eat?</P>
<P><BR>Jasey gained a pound in the first week and a half since starting enzymes and now has lost it because she wont eat at school anymore!!! They only get about 15 to 20 min to eat then it's recess. She takes a while to eat. She's not eating her lunch, she would rather leave with her class and play at recess. I know this isn't exactly the same topic but still involves food at school. She does get her enzymes but what good does it do if she doesn't eat!! If she is only eating a "healthy" snack at school , she's getting very few cal there. HELP!!!</P>
<P>Does everyone send your own snacks in with your kids? How do you handle making sure they get enough time to eat?</P>
<P>Does everyone send your own snacks in with your kids? How do you handle making sure they get enough time to eat?</P>
<P>I send snacks with DS every morning. They also have a fresh fruit and veggie cart, as well as extra snacks in the cupboard in case kids forget. We pay for milk or juice for their snack break -- DS chose orange juice this semester as he complained last year when I specified white milk (he won't drink chocolate milk).</P>
<P>We struggled with the same issue when DS started kindergarten. He takes so long to eat and it was hard sending him off to school knowing he only ate a few bites of a poptart. And sometimes he wouldn't eat much for lunch --- he'd say "I ate my pineapple and bread" -- totally skipping the chicken nuggets or corn dogs with hot lunch. I'd tell him to let his daycare director know or me if he was really hungry when he got there after school and we'd get him something more to eat, but he never did. And then I'd carry snacks in my car and feed him on the drive home.</P>
<P>I think he's now realizing that he has a limited window of opportunity to eat and eats better at school. Home he still dawdles! I just keep pushing the snacks, make sure I have juice and other items in the car just in case he's hungry.</P>
<P>We struggled with the same issue when DS started kindergarten. He takes so long to eat and it was hard sending him off to school knowing he only ate a few bites of a poptart. And sometimes he wouldn't eat much for lunch --- he'd say "I ate my pineapple and bread" -- totally skipping the chicken nuggets or corn dogs with hot lunch. I'd tell him to let his daycare director know or me if he was really hungry when he got there after school and we'd get him something more to eat, but he never did. And then I'd carry snacks in my car and feed him on the drive home.</P>
<P>I think he's now realizing that he has a limited window of opportunity to eat and eats better at school. Home he still dawdles! I just keep pushing the snacks, make sure I have juice and other items in the car just in case he's hungry.</P>
<P>I send snacks with DS every morning. They also have a fresh fruit and veggie cart, as well as extra snacks in the cupboard in case kids forget. We pay for milk or juice for their snack break -- DS chose orange juice this semester as he complained last year when I specified white milk (he won't drink chocolate milk).</P>
<P>We struggled with the same issue when DS started kindergarten. He takes so long to eat and it was hard sending him off to school knowing he only ate a few bites of a poptart. And sometimes he wouldn't eat much for lunch --- he'd say "I ate my pineapple and bread" -- totally skipping the chicken nuggets or corn dogs with hot lunch. I'd tell him to let his daycare director know or me if he was really hungry when he got there after school and we'd get him something more to eat, but he never did. And then I'd carry snacks in my car and feed him on the drive home.</P>
<P>I think he's now realizing that he has a limited window of opportunity to eat and eats better at school. Home he still dawdles! I just keep pushing the snacks, make sure I have juice and other items in the car just in case he's hungry.</P>
<P>We struggled with the same issue when DS started kindergarten. He takes so long to eat and it was hard sending him off to school knowing he only ate a few bites of a poptart. And sometimes he wouldn't eat much for lunch --- he'd say "I ate my pineapple and bread" -- totally skipping the chicken nuggets or corn dogs with hot lunch. I'd tell him to let his daycare director know or me if he was really hungry when he got there after school and we'd get him something more to eat, but he never did. And then I'd carry snacks in my car and feed him on the drive home.</P>
<P>I think he's now realizing that he has a limited window of opportunity to eat and eats better at school. Home he still dawdles! I just keep pushing the snacks, make sure I have juice and other items in the car just in case he's hungry.</P>
<P><BR>I send snacks with DS every morning. They also have a fresh fruit and veggie cart, as well as extra snacks in the cupboard in case kids forget. We pay for milk or juice for their snack break -- DS chose orange juice this semester as he complained last year when I specified white milk (he won't drink chocolate milk).</P>
<P>We struggled with the same issue when DS started kindergarten. He takes so long to eat and it was hard sending him off to school knowing he only ate a few bites of a poptart. And sometimes he wouldn't eat much for lunch --- he'd say "I ate my pineapple and bread" -- totally skipping the chicken nuggets or corn dogs with hot lunch. I'd tell him to let his daycare director know or me if he was really hungry when he got there after school and we'd get him something more to eat, but he never did. And then I'd carry snacks in my car and feed him on the drive home.</P>
<P>I think he's now realizing that he has a limited window of opportunity to eat and eats better at school. Home he still dawdles! I just keep pushing the snacks, make sure I have juice and other items in the car just in case he's hungry.</P>
<P>We struggled with the same issue when DS started kindergarten. He takes so long to eat and it was hard sending him off to school knowing he only ate a few bites of a poptart. And sometimes he wouldn't eat much for lunch --- he'd say "I ate my pineapple and bread" -- totally skipping the chicken nuggets or corn dogs with hot lunch. I'd tell him to let his daycare director know or me if he was really hungry when he got there after school and we'd get him something more to eat, but he never did. And then I'd carry snacks in my car and feed him on the drive home.</P>
<P>I think he's now realizing that he has a limited window of opportunity to eat and eats better at school. Home he still dawdles! I just keep pushing the snacks, make sure I have juice and other items in the car just in case he's hungry.</P>
<P>send a loaded f'in baked potato. this infuriates me. or send a 4 course meal...seriously!!</P>
<P>I wouldn't get into it with him. Keep the communications simple and offer to educate the class about cf if he is not able to explain the uniqueness of each individual. </P>
<P>I'd be interested in seeing this list of "approved snacks."</P>
<P>In my opinion there should be no branded food allowed in the classroom & processed food should be discouraged but that would hurt big business so I'm sure the public schools of America aren't allowed to say this.</P>
<P> </P>
<P>Does Alyssa have an IEP or 504?</P>
<P>I wouldn't get into it with him. Keep the communications simple and offer to educate the class about cf if he is not able to explain the uniqueness of each individual. </P>
<P>I'd be interested in seeing this list of "approved snacks."</P>
<P>In my opinion there should be no branded food allowed in the classroom & processed food should be discouraged but that would hurt big business so I'm sure the public schools of America aren't allowed to say this.</P>
<P> </P>
<P>Does Alyssa have an IEP or 504?</P>
<P>send a loaded f'in baked potato. this infuriates me. or send a 4 course meal...seriously!!</P>
<P>I wouldn't get into it with him. Keep the communications simple and offer to educate the class about cf if he is not able to explain the uniqueness of each individual. </P>
<P>I'd be interested in seeing this list of "approved snacks."</P>
<P>In my opinion there should be no branded foodallowed in the classroom & processed food should be discouraged but that would hurt big business so I'm sure the public schools of America aren't allowed to say this.</P>
<P></P>
<P>Does Alyssa have an IEP or 504?</P>
<P>I wouldn't get into it with him. Keep the communications simple and offer to educate the class about cf if he is not able to explain the uniqueness of each individual. </P>
<P>I'd be interested in seeing this list of "approved snacks."</P>
<P>In my opinion there should be no branded foodallowed in the classroom & processed food should be discouraged but that would hurt big business so I'm sure the public schools of America aren't allowed to say this.</P>
<P></P>
<P>Does Alyssa have an IEP or 504?</P>
<P>send a loaded f'in baked potato. this infuriates me. or send a 4 course meal...seriously!!</P>
<P>I wouldn't get into it with him. Keep the communications simple and offer to educate the class about cf if he is not able to explain the uniqueness of each individual. </P>
<P>I'd be interested in seeing this list of "approved snacks."</P>
<P>In my opinion there should be no branded foodallowed in the classroom & processed food should be discouraged but that would hurt big business so I'm sure the public schools of America aren't allowed to say this.</P>
<P></P>
<P>Does Alyssa have an IEP or 504?</P>
<P>I wouldn't get into it with him. Keep the communications simple and offer to educate the class about cf if he is not able to explain the uniqueness of each individual. </P>
<P>I'd be interested in seeing this list of "approved snacks."</P>
<P>In my opinion there should be no branded foodallowed in the classroom & processed food should be discouraged but that would hurt big business so I'm sure the public schools of America aren't allowed to say this.</P>
<P></P>
<P>Does Alyssa have an IEP or 504?</P>