Heart Problems

[mousesmom]

When M was about 14, a sonar was done to check an irregular heart beat (it sort of skipped a beat now and then). They found that one of her heart valves was not closing properly and said that her heart was functioning at 29%. The doc started her on heart meds & said that she would have to start O2. Within two months of starting the meds, she seemed to miraculously recover, and her heart is fine now.
<br />
<br />The docs say the cause might have been due the cronic Staph infection that also seemed to dissapear after IV Vancomycin. I just cant beleive the difference in her health since then, she used to be in the hospital about 3-4 times per year but has only had one admission since then. Strange - but true!

 

[JustDucky]

I also have SVT issues, my heart is currently controlled by beta blockers, as high as they dare to go as far as dosage goes. My next step is ablation...I find that whenever I have an active infection, my arrhythmias are intensified and I have to be monitored closely. I have needed several IV meds to slow my heart rate down on many admissions. It is uncomfortable to say the least when these kick in, pain in the chest and increased shortness of breath go hand in hand with these episodes. I hope they get your issues under control, I am glad that the docs are being vigilant.
Hugs and good vibes,
Jenn

 

[JustDucky]

I also have SVT issues, my heart is currently controlled by beta blockers, as high as they dare to go as far as dosage goes. My next step is ablation...I find that whenever I have an active infection, my arrhythmias are intensified and I have to be monitored closely. I have needed several IV meds to slow my heart rate down on many admissions. It is uncomfortable to say the least when these kick in, pain in the chest and increased shortness of breath go hand in hand with these episodes. I hope they get your issues under control, I am glad that the docs are being vigilant.
Hugs and good vibes,
Jenn

 

[JustDucky]

I also have SVT issues, my heart is currently controlled by beta blockers, as high as they dare to go as far as dosage goes. My next step is ablation...I find that whenever I have an active infection, my arrhythmias are intensified and I have to be monitored closely. I have needed several IV meds to slow my heart rate down on many admissions. It is uncomfortable to say the least when these kick in, pain in the chest and increased shortness of breath go hand in hand with these episodes. I hope they get your issues under control, I am glad that the docs are being vigilant.
<br />Hugs and good vibes,
<br />Jenn

 

[PatrickM]

I am sure you already know this but thyroid problems are likely to affect heart rate, can cause palpitations etc. I notice you have an enlarged thyroid, I am not sure if you are treated for it but you could always get your levels checked and make sure you are not getting too much or too little thyroid hormone.

Tara

 

[PatrickM]

I am sure you already know this but thyroid problems are likely to affect heart rate, can cause palpitations etc. I notice you have an enlarged thyroid, I am not sure if you are treated for it but you could always get your levels checked and make sure you are not getting too much or too little thyroid hormone.

Tara

 

[PatrickM]

I am sure you already know this but thyroid problems are likely to affect heart rate, can cause palpitations etc. I notice you have an enlarged thyroid, I am not sure if you are treated for it but you could always get your levels checked and make sure you are not getting too much or too little thyroid hormone.
<br />
<br />Tara

 

[kbn]

<a target=_blank class=ftalternatingbarlinklarge href="http://chestjournal.chestpubs.org/content/123/5/1488.full">Link</a>

Cardiac problems are not unheard of in CF, but there isn't a lot of data. I'm sure a lot of physicians aren't even aware of it, but am sure as the population ages more information will come out.

This isn't necessarily what is going on with you, but is an interesting study nonetheless. I've had a full cardiac workup for increased SOB without change in PFTs. Feel free to PM me if you have any questions.

 

[kbn]

<a target=_blank class=ftalternatingbarlinklarge href="http://chestjournal.chestpubs.org/content/123/5/1488.full">Link</a>

Cardiac problems are not unheard of in CF, but there isn't a lot of data. I'm sure a lot of physicians aren't even aware of it, but am sure as the population ages more information will come out.

This isn't necessarily what is going on with you, but is an interesting study nonetheless. I've had a full cardiac workup for increased SOB without change in PFTs. Feel free to PM me if you have any questions.

 

[kbn]

<a target=_blank class=ftalternatingbarlinklarge href="http://chestjournal.chestpubs.org/content/123/5/1488.full">Link</a>
<br />
<br />Cardiac problems are not unheard of in CF, but there isn't a lot of data. I'm sure a lot of physicians aren't even aware of it, but am sure as the population ages more information will come out.
<br />
<br />This isn't necessarily what is going on with you, but is an interesting study nonetheless. I've had a full cardiac workup for increased SOB without change in PFTs. Feel free to PM me if you have any questions.

 

[Keepercjr]

I have SVT. I have never been "officially" diagnosed but we all know I have it. I even saw a cardiologist many years ago and checked out fine (I never had an episode while doing the holter monitor). My trigger is bending over (strange huh). It doesn't happen every time I bend over but only when I'm low in magnesium (see what I write below) and or having a stress on my body.

Are you saying you have a high pulse rate in general or that you have episodes of tachycardia? Like Tara said, thyroid problems can cause heart problems. But the biggest contributor to me is MAGNESIUM deficiency. I went all these years not knowing why I was having SVT episodes. until I realized that the best way for me to convert back to a normal rhythm was to lie down with my legs in the air, I had no idea how long I was going to be in SVT and if I was going to have to go to the ER. When I was pregnant with my son I was having daily episodes.

One of the many symptoms of magnesium deficiency is cardiac trouble. The heart is a muscle and magnesium is needed for muscles to contract properly. Having CF we are basically guaranteed to be mg deficient. Any stress on our bodies can deplete our mg and so can just about all the medicines we take for CF. Mg can be depleted in as little as 3 days. When I am up and current on my mg supplementation, I am FINE. But as soon as I start forgetting to take it I get all my usual symptoms back including SVT. My suggestion is to start taking mg if you aren't already. The RDA of mg is too small (says 360mg for women). I try to take 800mg per day but don't always remember but I do get at least 500. Look up magnesium and the heart and you will find lots of info.

Good luck with everything. I too want to get back into shape.

 

[Keepercjr]

I have SVT. I have never been "officially" diagnosed but we all know I have it. I even saw a cardiologist many years ago and checked out fine (I never had an episode while doing the holter monitor). My trigger is bending over (strange huh). It doesn't happen every time I bend over but only when I'm low in magnesium (see what I write below) and or having a stress on my body.

Are you saying you have a high pulse rate in general or that you have episodes of tachycardia? Like Tara said, thyroid problems can cause heart problems. But the biggest contributor to me is MAGNESIUM deficiency. I went all these years not knowing why I was having SVT episodes. until I realized that the best way for me to convert back to a normal rhythm was to lie down with my legs in the air, I had no idea how long I was going to be in SVT and if I was going to have to go to the ER. When I was pregnant with my son I was having daily episodes.

One of the many symptoms of magnesium deficiency is cardiac trouble. The heart is a muscle and magnesium is needed for muscles to contract properly. Having CF we are basically guaranteed to be mg deficient. Any stress on our bodies can deplete our mg and so can just about all the medicines we take for CF. Mg can be depleted in as little as 3 days. When I am up and current on my mg supplementation, I am FINE. But as soon as I start forgetting to take it I get all my usual symptoms back including SVT. My suggestion is to start taking mg if you aren't already. The RDA of mg is too small (says 360mg for women). I try to take 800mg per day but don't always remember but I do get at least 500. Look up magnesium and the heart and you will find lots of info.

Good luck with everything. I too want to get back into shape.

 

[Keepercjr]

I have SVT. I have never been "officially" diagnosed but we all know I have it. I even saw a cardiologist many years ago and checked out fine (I never had an episode while doing the holter monitor). My trigger is bending over (strange huh). It doesn't happen every time I bend over but only when I'm low in magnesium (see what I write below) and or having a stress on my body.
<br />
<br />Are you saying you have a high pulse rate in general or that you have episodes of tachycardia? Like Tara said, thyroid problems can cause heart problems. But the biggest contributor to me is MAGNESIUM deficiency. I went all these years not knowing why I was having SVT episodes. until I realized that the best way for me to convert back to a normal rhythm was to lie down with my legs in the air, I had no idea how long I was going to be in SVT and if I was going to have to go to the ER. When I was pregnant with my son I was having daily episodes.
<br />
<br />One of the many symptoms of magnesium deficiency is cardiac trouble. The heart is a muscle and magnesium is needed for muscles to contract properly. Having CF we are basically guaranteed to be mg deficient. Any stress on our bodies can deplete our mg and so can just about all the medicines we take for CF. Mg can be depleted in as little as 3 days. When I am up and current on my mg supplementation, I am FINE. But as soon as I start forgetting to take it I get all my usual symptoms back including SVT. My suggestion is to start taking mg if you aren't already. The RDA of mg is too small (says 360mg for women). I try to take 800mg per day but don't always remember but I do get at least 500. Look up magnesium and the heart and you will find lots of info.
<br />
<br />Good luck with everything. I too want to get back into shape.

 

[Fancymushroom]

Hi,

I think the faster metabolism of cf along with any thyroid stuff will naturally mean that your heart rate is faster, without being a real worry. As some of the others here have said, I find my healthy baseline pulse is about 80-110. I've always been a 'fast beater' and even when very very fit I used to have a high exercising heart rate. When ill and low on oxygen sats, it's about 100-140. With a fever, 150.

I was given an encho when I had loads of fluid on my lungs before.. and it revealed an enlarged right side of my heart, mild mitral regurgitation, and moderate tricuspid regurgitation. My heart is yet to give me any actual symptoms though tbh. Just probably makes you feel more breathless than if it were beating slower. x

 

[Fancymushroom]

Hi,

I think the faster metabolism of cf along with any thyroid stuff will naturally mean that your heart rate is faster, without being a real worry. As some of the others here have said, I find my healthy baseline pulse is about 80-110. I've always been a 'fast beater' and even when very very fit I used to have a high exercising heart rate. When ill and low on oxygen sats, it's about 100-140. With a fever, 150.

I was given an encho when I had loads of fluid on my lungs before.. and it revealed an enlarged right side of my heart, mild mitral regurgitation, and moderate tricuspid regurgitation. My heart is yet to give me any actual symptoms though tbh. Just probably makes you feel more breathless than if it were beating slower. x

 

[Fancymushroom]

Hi,
<br />
<br />I think the faster metabolism of cf along with any thyroid stuff will naturally mean that your heart rate is faster, without being a real worry. As some of the others here have said, I find my healthy baseline pulse is about 80-110. I've always been a 'fast beater' and even when very very fit I used to have a high exercising heart rate. When ill and low on oxygen sats, it's about 100-140. With a fever, 150.
<br />
<br />I was given an encho when I had loads of fluid on my lungs before.. and it revealed an enlarged right side of my heart, mild mitral regurgitation, and moderate tricuspid regurgitation. My heart is yet to give me any actual symptoms though tbh. Just probably makes you feel more breathless than if it were beating slower. x

 

[tarheel]

Yeah, I'm actually "in shape" and my heart rate, resting, NEVER goes below 100. Exercising (cardio) it's easily 170. I also have episodes of tachycardia (sp) and have afib in the family. Transplant team/CF doc (same person really) said its because the numbers are so low, small airways where gas exchange take place haven't gotten over 25% in the past year and a half. They said "if worse comes to worst, we'll just do a double tx" yes. because its SO EASY, why not just swap out everything? (that was sarcasm)

 

[tarheel]

Yeah, I'm actually "in shape" and my heart rate, resting, NEVER goes below 100. Exercising (cardio) it's easily 170. I also have episodes of tachycardia (sp) and have afib in the family. Transplant team/CF doc (same person really) said its because the numbers are so low, small airways where gas exchange take place haven't gotten over 25% in the past year and a half. They said "if worse comes to worst, we'll just do a double tx" yes. because its SO EASY, why not just swap out everything? (that was sarcasm)

 

[tarheel]

Yeah, I'm actually "in shape" and my heart rate, resting, NEVER goes below 100. Exercising (cardio) it's easily 170. I also have episodes of tachycardia (sp) and have afib in the family. Transplant team/CF doc (same person really) said its because the numbers are so low, small airways where gas exchange take place haven't gotten over 25% in the past year and a half. They said "if worse comes to worst, we'll just do a double tx" yes. because its SO EASY, why not just swap out everything? (that was sarcasm)

 

[mamerth]

Thank you guys for sharing your experiences. I have had the fast pulse for about 6-9 months. My thyroid numbers are great... (right were they are suppose to be in a healthy person) just an enlarged thyroid. Hashimoto's disease is what they have called it-- has to do with my immune system.

I am suppose to have the ultrasound after the first of the year. I have just been trying to reduce my stress and try to relax. Easier said that done... with possible sinus surgery in the future, IV drugs and so much more.

Will post findings in my blog when I find something out. At this point all we know it is tachycardia... still waiting for them to check my oxgyen levels when I am active.