Hello everyone

Robertson

New member
<img src="i/expressions/moon.gif" border="0"> Welcome I have a task for you.
I would like to hear some of your life expieriences, good bad or indifferent.
That is if your willing.

I'll start this.
While in the the hospital, it was late at night and I just happened to wake up while the nurse was changing meds in my IV. I don't no what made me ask her, Did you already flush the fist one thru? She said that it wasn't nessesary.
I know from past expierience that alot of meds don't mix well. So I told her to flush first, but she didn't want to. As she put the med in and started it, the IV tubing turned white and got hard. I told her that she should have cleared the med out first and she got very upset. Finally I had enough and told her to leave. The next morning I told one of the nurses what happened, She was shocked and made sure that nurse didn't work that floor again
 

ladybug

New member
YIKES! That is scary stuff! Are you sure it was a nurse and not a mental patient from another floor that got into the med cabinet and was making "rounds"??? <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 

miesl

New member
This is why patients must be firm. If you don't want it done, or think it is being done wrong... DON'T LET THEM DO IT ANYWAY.
 

Ratatosk

Administrator
Staff member
One of my husband's cousins tells the story of a similar thing happening -- kept watching the iv, getting more and more nervous. Pulled the iv himself and started yelling -- which I supposed could've gotten him restrained -- doctor showed up, did some butt chewing... L
 

EnergyGal

New member
I have had my share of nurses from hell. I have learned to be firm and polite or else some of them gang up on you. You did the right thing and I hope they never have her come back again unless she is properly trained. I wish i could tell all my nurse from hell stories but it would not help anyone. I just simply report the people who are abusive and the other ones who are just mean oh well what goes around comes around.
 

JazzysMom

New member
I am sooo spoiled I guess. At our hospital most Nurses have been there for years & they teach the newer nurses to listen to the CF patients & families. They are told chances are good that you will learn something LOL! Scary that it happened, but sadly it does!
 

EnergyGal

New member
I could not resist but I would love to buy this pin for one nurse that totally messed me up.
<img src="http://www173.pair.com/molo/nurse-hell.JPG">
 

lovemygirl

New member
When our daughter was first diagnosed she was 2 months old. I stayed at the hospital every night with the exception of the day she was diagnosed. The next day her dad and I went back and learned all about CF and our new life. She was not very willing to take her enzymes and there was a lot of crying by all of us. After a couple of nights land a lot of tears we decided we needed to go home and get some sleep so we could care for her properly.
We were nervous about leaving her but figured she was in good hands because, after all, she was in a pediatric hospital. The nurse assured us that we should get home and get some rest to recharge.
The next day we were back at the crack of dawn and were handed a note by one of the nurses. It was a note from the night nurse telling us that she was very busy and the person who was helping her forgot to give our daughter her meds (enzymes) before her bottle.
I still have the note.
 

blindhearted

New member
I was around 15 or 16 and I was in the hospital. I was getting my Tobramycin (sp?) levels drawn for that day. For some reason I had a new doctor (who I didn't really like from the time I met her eariler in the day) who was taking the place of my regular doctor who was out on a conference or something. She came in and drew the Peak level from a vien on the top on my hand. I noticed that where she drew the blood was sore and started brusing, which is not uncommon cause I have terrible veins. After the medicine was given and proper time had passed, it was time to get the second level...the doctor came back in and decided she was gonna draw blood from the same spot. I told her not to because I knew it would not work. She basically told me she was the doctor and knew what she was doing. So she done it anyway. Well, not only did she not get any blood but a huge knot formed in the vein on my hand as well as terrible brusing (this later required an ice pack from the pain). I looked at her and said "I told you so." (which does not go over good with a know-it-all doctor...but quite satisfing to me). So she had to stick me again in my other hand, which also later bruised but not as bad. She did not draw my blood any more either.
 

Grl22

New member
When I 16 and admitted for the usual tune up I was asked to do a urine specci (I never do them) any ways as I had recently been diag with Diabetes so they were adamant that I done one and the nurse had been asking me all day and I was saying yeah I don't need to go yet. That afternoon I was having physio and my bed was tilted so I couldn't see what was going on at the end of my bed or in my bath room so when my nurse came in and said Thank-you I had no idea why.
Next morning during Dr's rounds the Dr was concerned by the amount of sugar in my urine I was surprised as I hadn't given specimen, and later realized the nurse had thanked me as she took my apple juice from the table to check it for it's sugar content, I told my favorite nurse on the ward once I had realized what had happened as i wasn't sure what to say and I didn't want to embarrass the nurse who had done it who I also liked. Turns out my favorite nurse was a gossip queen (prob why I liked her so much) and had the whole ward laughing at in with in minutes Rebecca never lived down that experience, and later when she moved on to a maternity hospital we started to joke about her sending patients home because there juice didn't register they were in fact pregnant
 

amber682

New member
When my son was 3 mos. old, he was admitted to the hospital for
RSV.  After weeks of no improvement, testing him for
everything they could think of, and 2 trips to the PICU, once on a
ventilator, a night nurse who we had quite often (my favorite by
the way) asked if he had been tested for CF. She had taken
care of many pediatric CF patients, and she thought it could be CF
since I knew I was a carrier. My husband had been tested and he
came back not to be a carrier. So I got really worried and my
family and I would ask the doc my son had (a
resident) almost everyday for like 2 weeks if there was any
chance it was CF. He kept saying absolutely not. The carrier
test is pretty reliable, your husband wouldn't get a false
negative(It only tested for about 30 mutations, by the
way). It was awful watching him lose so much weight and the
constant IV's and suctioning almost every hour.  I finally got
the doc to call our pediatrician by becoming almost
hysterical, who demanded they call in a pulmonologist in. Vincent
was diagnosed with CF less than 48 hours later. Over the next
few days I talked to a few nurses who had also thought he
might have CF and one had also mentioned it to the resident. I
don't know why he was so hung up on standing his ground and not
just ordering the simple sweat test.  <br>
Reading all your posts brought back memories and I just had to
share.   
 

EnergyGal

New member
Even though that doctor has a huge Ego I am sure once there was a Cf diagnosis he felt very small. That was a good lesson forhim.
 

kybert

New member
robertson, i had a nurse try and do that to me too. i told her "no, you arent supposed to do that. go ask another nurse and she will tell you im right". she said "we will see about that". she came back, with her tail between her legs and apologised rofl.
 

Robertson

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0"> all they did to my nurse from hell was move her to another floor. at least I don't have to deal with her anymore. The rest of the nurses I have known for a long time.
I also do alot of the IVs myself
 

sue35

New member
last year i was admitted to the hospital to get a PICC line. First, they insisted that I get a shot to prevent swelling due to blood clots in the legs. I refused, saying that I did not intend to be bed ridden during this stay because I was supposed to move around and be active (it was a tune up and I was not sick)

THEN, the hospital forgot sixnof my nebulizer threatments, saying they were too busy. And then when I met with the head RT to discuss this he said that I shouldn't even bother to do my nebulizers unless I was really sick. He said that my inhalers were more important and that nebulizers didn't matter. And he was dating a CFer at the time!

The topper was when my nurse messed up my medication and gave me 80mg twice in one day of prednisone when I am only on 10. I felt so odd that day that I made them go over my medication.

When my doc found this all out he let me leave the hospital and finish the rest at home. I think he was afraid I would sue!
 

CJTexas71

New member
I was diagnosed at 22, long story short, I have stuck with my local
small town hospital. I have known all the nurses, dr's, rt's, etc.
from the last 10 + years. I think I have too many terrible stories,
but I can say that I always stood my ground and am defiantly
considered my doc's favorite patient that does not put up with crap
from idiots, hehe. You may be a patient but you are not a victim! I
am brand new to the site, hope this first post works, my girl found
this CF site, the first one I have ever known of! Yeah!<br>
 
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