Hello im just in need of some advice? Not sure if its silly or not

Samsmom

New member
CF can be a very tricky disease because it can manifest in so many ways, and not the same in everybody. My advice to you is that if you have had problems with your health for a long period of time (as you obviously have) then you should talk to a Dr. Here is a little info on cf to help you understand it better. Your parents don't have to have cf for you to have it. You have to inherit one defective gene from each parent to have cf. That means that each parent must be a carrier of the gene, but they do not have illness being a carrier. The best way to know for sure is a few simple tests. First there is a sweat chloride test. Just like the name implies, your sweat is checked for chloride levels. Certain levels indicate cf. The most definitive testing is a genetic test, but ask for a full panel test such as with Ambry genetics-they test for 1500 known mutations, some companies only test 35, 90, or something like that. If you don't have cf then you should talk to your doc about other possibilities. It is possible to have mild cf that goes undiagnosed until you are an adult. Hope you find the answers you are looking for and hope the info helps. Best of luck!!!
 

sunkistdrinker

New member
Hmmm... Does you skin always taste salty, or just after exercise? If it is ALWAYS salty, you can check into getting a sweat test done to check for CF, or just check your DNA. Like others, I am the only person with CF in my family that I am aware of.
 

sunkistdrinker

New member
Hmmm... Does you skin always taste salty, or just after exercise? If it is ALWAYS salty, you can check into getting a sweat test done to check for CF, or just check your DNA. Like others, I am the only person with CF in my family that I am aware of.
 

sunkistdrinker

New member
Hmmm... Does you skin always taste salty, or just after exercise? If it is ALWAYS salty, you can check into getting a sweat test done to check for CF, or just check your DNA. Like others, I am the only person with CF in my family that I am aware of.
 
Top