HELLO MY DAUGHTER GETS RESULTS TOMORROW

[KELB]

HELLO IM 25 FROM THE UK AND I AM ON HERE AS I AM WAITING FOR SWEAT TSET RESULTS FROM MY DAUGHTER!!! IM SO SCARED THIS HAS BEEN THE LONGEST WEEK OF MY LIFE..
THIS STARTED OFF 3 WEEKS AGO WHEN SHE HAD A BOWEL PROLAPSE AND I TOOK HER TO HOSPITAL AND WHEN I GOT THERE IT HAD GONE BACK UP AND HE TOL ME IT IS FROM STRAINING TO HARD !! WELL I CAME BACK HOME AND A WEEK LATER IT HAPPEND AGAIN AND WENT BACK ON ITS OWN AGAIN THEN LAST SATURDAY IT WAS OUT FOR 34 HOURS SO WE TOOK HER BACK AND THEY KEPT US IN!! WE WAS IN 4 3 DAYS JUST WAITING FOR A DOC 2 COME ROUND AND THEY TOLD US IT COULD BE CF AND THEY ARE DOING A SWEAT TEST ON HER !! WELL THAT WAS LAST WED AND I GET THE RESULTS TOMORROW!! I DONT KNOW MUCH ABOUT CF ONLY WHAT I HAVE READ IN THE INTERNET BUT IM SO SCARED FOR HER.. SHE IS SO NORNMAL I LOOK AT HER AND SHE RUNS AROUND AND TO LOOK AT HER YOU WOULDNT THINK THERE WAS NOTHNG WRONG WITH HER!!! PLEASE EVERY 1 PRAY FOR HER !!!! ANYONE WANTS TO CONTACT ME PLEASE DO ON... KELLIEBOWYER1@HOTMAIL.COM
THANKS ALOT!!!! I WILL LET U ALL KNOW THE RESULTS!!! IM JUST HOPING AND PRAYING!!!! XXXXXXXXXXXXXXXXXXXX

 

[Jane]

Oh Kellie, Its like hell to wait for those results. I remember it so well! I hope you get good news today.
Keep us posted.

Jane

 

[KELB]

HI JANE !! HAS SOME 1 IN YOU FAMILY GOT CF??

 

[KELB]

HI AGAIN JANE JUST NOTICED YOU HAVE CHILDREN WITH CF?? HOW OLD WAS THEY WHEN YOU FOUND OUT ??

 

[Jane]

My older son was 2 months. He was 7.7 when he was born and lost some more. The he trouble gaining. But at his checkup I asked the doctor why he had salt crystals around the edges of his hair. That alerted him to have a sweat test done.

The rest is history.

My second son was diagnosed by amnio. Those results also took a long time. My heart goes out to you, those memories are still fresh.

 

[KELB]

HI JANE IM GLAD IV FOUND THIS SITE AS IV BEEN BOTTELING IT ALL UP ALL WEEK.. ITS TOMORROW I FIND OUT AND IM JUST DREADING THE WAY THEY ARE GOING TO TELL ME I REALLY DONT WANT TO GO!!! HOW ARE YOUR KIDS NOW?? DO THEY DO ALL THE NORMAL THINGS LIKE RUNNING AROUND??? MY DAUGHTER IS FINE!! AND DO PPL WITH CF HAVE TO EAT SPECIAL FOODS???? THANKS FOR GETTING BACK TO ME!!

 

[Jane]

Everyone with CF has a different kind of pattern. There are lots of factors that determine how someone feels. Right now my kids are sick (in the hospital where I am writing this), but mostly they feel well.

They always played basketball and baseball on town teams. They are in scouts too. If you read some other posts by parents, many of the cf kids are very active and have "normal" routines. You just do the best you can to keep them healthy. In the families section of this forum there are always good ideas. How old is your daughter?

 

[KELB]

SHS 2 1/2 SHES 3 IN NOVEMBER!! IV BEEN READING ALL THE OTHER POSTS ON HERE AND PPL WITH CF SEEM SO STRONG AND I KNOW IF MY DAUGHTER HAS IT IV GOTTA BE STRONG FOR HER AS SHE DOESNT UNDERSTAND NOTHING BUT IM TRING TO BE STRONG BUT ITS SO HARD!! WHY R UR KIDS IN HOSPITAL AT THE MOMENT??? COULD YOU TELL ME IF YOU CAN GET DIFFERENT SIGNS OF CF?? LIKE A MILD CONDITION OF IT?? THANKS

 

[Jane]

There are many people who are strong and healthy here. Its so encouraging to read about them.

My kids are being treated for a bacterial infection. The bug is a weird one so treating it is complicated.

 

[KELB]

WELL LIKE I SAID JANE I AM THINKING OF YOU AND YOUR FAMILY!!!! DOES SOMEONE IN YOUR FAMILY HAVE TO HAVE CF?? AS NO ONE IN MY FAMILY OR MY PARTNERS HAS EVER HAD IT!! OR COULD IT JUST BE ME AND MY PARTNER!

 

[JazzysMom]

Many, many, many diagnoses have no known family history or their have been misdiagnoses in the families. Its not uncommon. I am one of 7 kids with huge families on both Mom & Dads side, but the only "known" one to have CF. Take one step at a time. Get the results & work from there. If you go any faster you will drive yourself nuts. Let us know when you do find out tho....one way or the other!

 

[KELB]

HI THANKS FOR THE ADVICE!!! BUT YOUR RIGHT I AM DRIVING MYSELF NUTS!!!!! THANKS FOR THE ADVICE THOUGH.... HOW OLD ARE YOU AND WHEN DID U FIND OUT YOU HAD CF??

 

[JazzysMom]

I turned 38 in March & I was diagnosed when I was 7. That was after abut 2/3 years (or more) of different testing to find out why I got such cramps/smelly diahrea after eating. At the time my lungs werent a real problem. They kicked in a few years after diagnoses. I also have an 8 year old daughter who is a carrier, but doesnt have CF. I call her my miracle child since I grew up thinking I couldnt/wouldnt/shouldnt have kids. See you never know!

 

[KELB]

THATS LIKE MY DAUGHTER SHE HAS ALWAYS HAD A LITTLE COUGH AND I NEVER THOUGHT NOTHING OF IT UNTILL NOW I KNOW ITS A SYMPTOM!!! I AM PRAYING ANYWAY AS I GET THE RESULTS 2 MOZ!!! I HONESTLY DONT WANT TO GO AND FIND IT OUT BUT I KNOW IV GOT TO!!! SO DID U GET PREGNANT OK???? IV HEARD THERE CAN BE PROBLEMS!!

 

[JazzysMom]

My pregnancy was unexpected because I hadnt used birth control for 12 years. That time I was with my long time high school ove then my first husband. I was only with my new husband for 10 months when I got pregnant. Nothing really different about my health or anything to make me all of a sudden get pregnant except that I was having A LOT MORE sex! LOL!

 

[anonymous]

<img src="i/expressions/brokenheart.gif" border="0"> my nephews have cystic fibrosis and they are so different in so many ways.my oldest nephew is almost 4 and ways 22 lbs and my youngest nephew is 1 going on 2 and ways 25 lbs. that is so weird. it really suxs becuz they are my only nephews and they have a deadly disease

 

[KELB]

HI THERE ! HOW OLD WAS THEY WHEN THEY FOUND OUT THEY HAD CF?? AND HOW DID THEY FIND IT OUT???

 

[julie]

Just wanted to say I'm thinking of and praying for you and your wait for these results.

My husband is 25, he'll be 26 in October. He was diagnosed at 18 months via a sweat test because of "failure to thrive" (had weight gaining problems), rectal prolapse (what your daughter has been having) and some bouts with pneumonia.

Aside from the medications he's had to be on for lung infections, he's lead a normal life (what's normal anyways though???-right?). He just graduated from college and we are expecting babies this October.

Because of his weight gaining issues, he has to eat A LOT of food, but not really anything special. He just eats a lot of protein and a lot of calories. That helps him keep his weight up. He has also had pneumonia a few times, and had some lung infections which have required some at home nebulized and pill medications, and we do chest PT everyday. But he goes to the gym and works out, he hangs out with his friends, and he has a life. I know that can be a concern for some parents-and understandably so!

As far back as his family could recall, NOBODY had CF. But he did have some great-great-great uncles die at a young age from respiratory problems. Although back then, nobody knew about CF.

Each of his parents are a carrier for CF, that's how he got it. He has a brother without CF.

Hope this helps a bit and I'll be thinking of you!

 

[KELB]

HI JULIE THANKS ALOT FOR YOUR ADVICE!!! I WILL LET YOU KNOW WHAT HAPPENS TOMORROW!!! WHERE DO U LIVE ?? DID U GET PREGNANT EASY A SIV HEARD ITS HARD FOR PEOPLE WITH CF!!! MY HEART GOES OUT TO YOU !!!! THANKS AGAIN KEEP IN TOUCH!!! KELIE XXX

 

[julie]

My husband and I live in Washington State, we just moved up here from California where we had lived for 2 years. We both grew up in Washington though.

It was hard for us to get pregnant, we had to do in vitro after a sperm retrieval on my husband. We were lucky that we were successful the first time. Generally, less interventions and help are needed for women with CF who want to get pregnant, many times they get pregnant naturally, but some need help-some medications or a little bit of medical intervention.

Keep us posted, I'll be thinking about you!