Help 9 yr old son very athletic can this be right?

J

JORDYSMOM

New member
Hi Rachel. I'm sorry you guys are going through this. I can tell you that my son wasn't diagnosed until he was 15 years old. He has a ton of sinus issues, and always has. He has played sports all of his life. Baseball and cross-country/track were the main ones. It is good for them to stay active. I was feeling just like you 3 years ago. I didn't want to believe it. I can tell you though, that Jordan has been healthier since his diagnosis than he's been in years.

You have come to the right place for education and support. This community has taught me so much. I've found answers here that I'd never have gotten from doctors or any other research.

Please keep us posted on you and your son.

Stacey
 
J

JORDYSMOM

New member
Hi Rachel. I'm sorry you guys are going through this. I can tell you that my son wasn't diagnosed until he was 15 years old. He has a ton of sinus issues, and always has. He has played sports all of his life. Baseball and cross-country/track were the main ones. It is good for them to stay active. I was feeling just like you 3 years ago. I didn't want to believe it. I can tell you though, that Jordan has been healthier since his diagnosis than he's been in years.

You have come to the right place for education and support. This community has taught me so much. I've found answers here that I'd never have gotten from doctors or any other research.

Please keep us posted on you and your son.

Stacey
 
J

JORDYSMOM

New member
Hi Rachel. I'm sorry you guys are going through this. I can tell you that my son wasn't diagnosed until he was 15 years old. He has a ton of sinus issues, and always has. He has played sports all of his life. Baseball and cross-country/track were the main ones. It is good for them to stay active. I was feeling just like you 3 years ago. I didn't want to believe it. I can tell you though, that Jordan has been healthier since his diagnosis than he's been in years.

You have come to the right place for education and support. This community has taught me so much. I've found answers here that I'd never have gotten from doctors or any other research.

Please keep us posted on you and your son.

Stacey
 
J

JORDYSMOM

New member
Hi Rachel. I'm sorry you guys are going through this. I can tell you that my son wasn't diagnosed until he was 15 years old. He has a ton of sinus issues, and always has. He has played sports all of his life. Baseball and cross-country/track were the main ones. It is good for them to stay active. I was feeling just like you 3 years ago. I didn't want to believe it. I can tell you though, that Jordan has been healthier since his diagnosis than he's been in years.

You have come to the right place for education and support. This community has taught me so much. I've found answers here that I'd never have gotten from doctors or any other research.

Please keep us posted on you and your son.

Stacey
 
J

JORDYSMOM

New member
Hi Rachel. I'm sorry you guys are going through this. I can tell you that my son wasn't diagnosed until he was 15 years old. He has a ton of sinus issues, and always has. He has played sports all of his life. Baseball and cross-country/track were the main ones. It is good for them to stay active. I was feeling just like you 3 years ago. I didn't want to believe it. I can tell you though, that Jordan has been healthier since his diagnosis than he's been in years.
<br />
<br />You have come to the right place for education and support. This community has taught me so much. I've found answers here that I'd never have gotten from doctors or any other research.
<br />
<br />Please keep us posted on you and your son.
<br />
<br />Stacey
 
J

JennyCoulon

New member
Rachel,
I am from Plattsmouth, NE and I take my kids to the Nebraska Medical Center. My oldest son is 8 and was diagnosed at birth with CF. He is a very active little guy, he loves to be outside regardless if it is 110 degrees or 40 below. He loves to play soccer, basketball, baseball, etc.

They say that keeping their lungs active is the very best thing along with regular treament. I hope that it is not CF but if it is I want you to know that it will be okay. I almost feel to the floor when the doctors came into the NICU and told me that Mason had CF. I had no idea what it was and when I read about it what I found really scared me. All I could think is that my child is going to die.

Mason also has a 3 year old brother who also has CF. My boys have mild lung disease but still do Vest and albuterol as a proactive approach. Mason is on Pulmozyme and has a g button for weight gain. Both of my boys have a hard time gaining weight, or at least Mason did until he got the g button. I know all of the information that you have can be overwhelming but please feel free to contact me with any questions that you might have. Hang in there and keep your head up.....<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
J

JennyCoulon

New member
Rachel,
I am from Plattsmouth, NE and I take my kids to the Nebraska Medical Center. My oldest son is 8 and was diagnosed at birth with CF. He is a very active little guy, he loves to be outside regardless if it is 110 degrees or 40 below. He loves to play soccer, basketball, baseball, etc.

They say that keeping their lungs active is the very best thing along with regular treament. I hope that it is not CF but if it is I want you to know that it will be okay. I almost feel to the floor when the doctors came into the NICU and told me that Mason had CF. I had no idea what it was and when I read about it what I found really scared me. All I could think is that my child is going to die.

Mason also has a 3 year old brother who also has CF. My boys have mild lung disease but still do Vest and albuterol as a proactive approach. Mason is on Pulmozyme and has a g button for weight gain. Both of my boys have a hard time gaining weight, or at least Mason did until he got the g button. I know all of the information that you have can be overwhelming but please feel free to contact me with any questions that you might have. Hang in there and keep your head up.....<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
J

JennyCoulon

New member
Rachel,
I am from Plattsmouth, NE and I take my kids to the Nebraska Medical Center. My oldest son is 8 and was diagnosed at birth with CF. He is a very active little guy, he loves to be outside regardless if it is 110 degrees or 40 below. He loves to play soccer, basketball, baseball, etc.

They say that keeping their lungs active is the very best thing along with regular treament. I hope that it is not CF but if it is I want you to know that it will be okay. I almost feel to the floor when the doctors came into the NICU and told me that Mason had CF. I had no idea what it was and when I read about it what I found really scared me. All I could think is that my child is going to die.

Mason also has a 3 year old brother who also has CF. My boys have mild lung disease but still do Vest and albuterol as a proactive approach. Mason is on Pulmozyme and has a g button for weight gain. Both of my boys have a hard time gaining weight, or at least Mason did until he got the g button. I know all of the information that you have can be overwhelming but please feel free to contact me with any questions that you might have. Hang in there and keep your head up.....<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
J

JennyCoulon

New member
Rachel,
I am from Plattsmouth, NE and I take my kids to the Nebraska Medical Center. My oldest son is 8 and was diagnosed at birth with CF. He is a very active little guy, he loves to be outside regardless if it is 110 degrees or 40 below. He loves to play soccer, basketball, baseball, etc.

They say that keeping their lungs active is the very best thing along with regular treament. I hope that it is not CF but if it is I want you to know that it will be okay. I almost feel to the floor when the doctors came into the NICU and told me that Mason had CF. I had no idea what it was and when I read about it what I found really scared me. All I could think is that my child is going to die.

Mason also has a 3 year old brother who also has CF. My boys have mild lung disease but still do Vest and albuterol as a proactive approach. Mason is on Pulmozyme and has a g button for weight gain. Both of my boys have a hard time gaining weight, or at least Mason did until he got the g button. I know all of the information that you have can be overwhelming but please feel free to contact me with any questions that you might have. Hang in there and keep your head up.....<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
J

JennyCoulon

New member
Rachel,
<br />I am from Plattsmouth, NE and I take my kids to the Nebraska Medical Center. My oldest son is 8 and was diagnosed at birth with CF. He is a very active little guy, he loves to be outside regardless if it is 110 degrees or 40 below. He loves to play soccer, basketball, baseball, etc.
<br />
<br />They say that keeping their lungs active is the very best thing along with regular treament. I hope that it is not CF but if it is I want you to know that it will be okay. I almost feel to the floor when the doctors came into the NICU and told me that Mason had CF. I had no idea what it was and when I read about it what I found really scared me. All I could think is that my child is going to die.
<br />
<br />Mason also has a 3 year old brother who also has CF. My boys have mild lung disease but still do Vest and albuterol as a proactive approach. Mason is on Pulmozyme and has a g button for weight gain. Both of my boys have a hard time gaining weight, or at least Mason did until he got the g button. I know all of the information that you have can be overwhelming but please feel free to contact me with any questions that you might have. Hang in there and keep your head up.....<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
A

Alyssa

New member
Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems.

My son didn't show any symptoms until 21 years old.

Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone can have a sweat test number that is normal but still have CF.
 
A

Alyssa

New member
Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems.

My son didn't show any symptoms until 21 years old.

Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone can have a sweat test number that is normal but still have CF.
 
A

Alyssa

New member
Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems.

My son didn't show any symptoms until 21 years old.

Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone can have a sweat test number that is normal but still have CF.
 
A

Alyssa

New member
Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems.

My son didn't show any symptoms until 21 years old.

Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone can have a sweat test number that is normal but still have CF.
 
A

Alyssa

New member
Unfortunately your story is not all that unfamiliar. Many people with CF are very athletic and show little other symptoms besides sinus problems.
<br />
<br />My son didn't show any symptoms until 21 years old.
<br />
<br />Hang in there. Oh, and by the way my kids sweat test numbers are 38 and 41, so again yes someone can have a sweat test number that is normal but still have CF.
 
M

MicheleGazelle

New member
I am primarily a sinus sufferer. I was nearly 36 when I was diagnosed. I took gymnastics in my teens and was the most athletic of the three kids in my family growing up. Especially since the numbers are relatively low for a CF diagnosis, your child can absolutely have "mild" CF and no one knew for years. The month after I was diagnosed, they tested my sons and my oldest was diagnosed at age 14.

The good news: My life has been so much better with a diagnosis than it ever was without. If there is a problem, knowing what the problem is means you are empowered to cope more effectively with it. Taking shots in the dark is a good way to miss the mark most of the time. My son and I have gotten tons healthier since were diagnosed a little over 7 years ago.
 
M

MicheleGazelle

New member
I am primarily a sinus sufferer. I was nearly 36 when I was diagnosed. I took gymnastics in my teens and was the most athletic of the three kids in my family growing up. Especially since the numbers are relatively low for a CF diagnosis, your child can absolutely have "mild" CF and no one knew for years. The month after I was diagnosed, they tested my sons and my oldest was diagnosed at age 14.

The good news: My life has been so much better with a diagnosis than it ever was without. If there is a problem, knowing what the problem is means you are empowered to cope more effectively with it. Taking shots in the dark is a good way to miss the mark most of the time. My son and I have gotten tons healthier since were diagnosed a little over 7 years ago.
 
M

MicheleGazelle

New member
I am primarily a sinus sufferer. I was nearly 36 when I was diagnosed. I took gymnastics in my teens and was the most athletic of the three kids in my family growing up. Especially since the numbers are relatively low for a CF diagnosis, your child can absolutely have "mild" CF and no one knew for years. The month after I was diagnosed, they tested my sons and my oldest was diagnosed at age 14.

The good news: My life has been so much better with a diagnosis than it ever was without. If there is a problem, knowing what the problem is means you are empowered to cope more effectively with it. Taking shots in the dark is a good way to miss the mark most of the time. My son and I have gotten tons healthier since were diagnosed a little over 7 years ago.
 
M

MicheleGazelle

New member
I am primarily a sinus sufferer. I was nearly 36 when I was diagnosed. I took gymnastics in my teens and was the most athletic of the three kids in my family growing up. Especially since the numbers are relatively low for a CF diagnosis, your child can absolutely have "mild" CF and no one knew for years. The month after I was diagnosed, they tested my sons and my oldest was diagnosed at age 14.

The good news: My life has been so much better with a diagnosis than it ever was without. If there is a problem, knowing what the problem is means you are empowered to cope more effectively with it. Taking shots in the dark is a good way to miss the mark most of the time. My son and I have gotten tons healthier since were diagnosed a little over 7 years ago.
 
M

MicheleGazelle

New member
I am primarily a sinus sufferer. I was nearly 36 when I was diagnosed. I took gymnastics in my teens and was the most athletic of the three kids in my family growing up. Especially since the numbers are relatively low for a CF diagnosis, your child can absolutely have "mild" CF and no one knew for years. The month after I was diagnosed, they tested my sons and my oldest was diagnosed at age 14.
<br />
<br />The good news: My life has been so much better with a diagnosis than it ever was without. If there is a problem, knowing what the problem is means you are empowered to cope more effectively with it. Taking shots in the dark is a good way to miss the mark most of the time. My son and I have gotten tons healthier since were diagnosed a little over 7 years ago.
 
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