Oh please don't get me wrong. If this holds any truth at all then I am glad they were told this. I am just a firm believer in telling the truth. I don't want them having false hope.
So Lauren said that they will be doing 2 breathing treatments everyday and they put them on enzymes and some type of inhaler twice a day. And she also said that they were looking into getting them this thing that they would blow into to break up the mucous in the lungs<<not sure what this is? But anyhow, I know she was having a hard time remembering everything to tell me but I do know that they both feel better after going to the doctor. That whole comment just disturbed me because I didn't know 70's was an attainable age. I am totally ignorant to a lot of this stuff. Just now learning more about it. I guess they are doing genetic testing. I don't think they ever had the genetic testing done. Not real sure why. I am pretty sure they were diagnosed based on sweat tests and the fact that Lauren was hospitalized 3-4 times in a couple of months for pneumonia when she was first born. Then they tested us all and found it in Joe too. I guess they told Joe that his seems more like asthma than CF. <<see I don't think this should have been said either not knowing for sure. Lauren also said they both had positive sweat tests yesterday too.
Anyhow, which ever way since I can't be there I am glad they are getting what they need. At least I hope they are. It has to be better than what they were getting. If I find out anything else today I will let you all know. Thanks for letting me vent here.
