Help I don't know what else todo

AdamsMom

New member
My son is three he was born 9/4/2003. Unlike many I found out my son had CF when I was pregnant. I had him a couple of days before I turned 19 years old. I live in Miami, FL with my family I'am married to my sons father. I can't complain about having emotional support. I'am having financial support we both work minimum wage jobs and can't afford my sons visits or medicine about a year ago my sons Medicaid was taken away from him and I've been fighting ever since hes running out of his medicines and my mom has been helping me with what she can to give me out of her job at a pharmacy. I don't know what else todo if anyone knows what I can do or go please help.
 

AdamsMom

New member
My son is three he was born 9/4/2003. Unlike many I found out my son had CF when I was pregnant. I had him a couple of days before I turned 19 years old. I live in Miami, FL with my family I'am married to my sons father. I can't complain about having emotional support. I'am having financial support we both work minimum wage jobs and can't afford my sons visits or medicine about a year ago my sons Medicaid was taken away from him and I've been fighting ever since hes running out of his medicines and my mom has been helping me with what she can to give me out of her job at a pharmacy. I don't know what else todo if anyone knows what I can do or go please help.
 

AdamsMom

New member
My son is three he was born 9/4/2003. Unlike many I found out my son had CF when I was pregnant. I had him a couple of days before I turned 19 years old. I live in Miami, FL with my family I'am married to my sons father. I can't complain about having emotional support. I'am having financial support we both work minimum wage jobs and can't afford my sons visits or medicine about a year ago my sons Medicaid was taken away from him and I've been fighting ever since hes running out of his medicines and my mom has been helping me with what she can to give me out of her job at a pharmacy. I don't know what else todo if anyone knows what I can do or go please help.
 

bmombtoo

New member
That sucks. If you don't have medical iunsurance through your job than he should be getting Medicaid. There is a federal program called healthy kids or something like that; I think all states are mandated to have it.

Talk to the social worker at the CF clinic he goes to or talk to his doctor. Call a news station.
 

bmombtoo

New member
That sucks. If you don't have medical iunsurance through your job than he should be getting Medicaid. There is a federal program called healthy kids or something like that; I think all states are mandated to have it.

Talk to the social worker at the CF clinic he goes to or talk to his doctor. Call a news station.
 

bmombtoo

New member
That sucks. If you don't have medical iunsurance through your job than he should be getting Medicaid. There is a federal program called healthy kids or something like that; I think all states are mandated to have it.

Talk to the social worker at the CF clinic he goes to or talk to his doctor. Call a news station.
 

momuv2cf

New member
Call Genentech. The makers of Pulmozyme. The have a lot of different programs for assistance in this area.
 

momuv2cf

New member
Call Genentech. The makers of Pulmozyme. The have a lot of different programs for assistance in this area.
 

momuv2cf

New member
Call Genentech. The makers of Pulmozyme. The have a lot of different programs for assistance in this area.
 

JazzysMom

New member
Here is a link to a thread showing available assistance programs!


<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=17394&enterthread=y">http://forums.cysticfibrosis.c...id=17394&enterthread=y</a>
 

JazzysMom

New member
Here is a link to a thread showing available assistance programs!


<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=17394&enterthread=y">http://forums.cysticfibrosis.c...id=17394&enterthread=y</a>
 

JazzysMom

New member
Here is a link to a thread showing available assistance programs!


<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=17394&enterthread=y">http://forums.cysticfibrosis.c...id=17394&enterthread=y</a>
 
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