Hi LeChampion, I went through something similar last January when we switched to a high deductible health plan. Our deductible is $3,300 and out of pocket max is $6,600. Just as with your plan, prescriptions count toward the deductible/out of pocket max. The plan (United Healthcare) dictated that I filled specialty drugs through their pharmacy or they would not pay for it at all. Because Cayston could not be filled at their pharmacy they gave me an override to fill it w/ CF Services Pharmacy. CF Services handled all the "dirty work" for me and worked it out with the insurance company. I also ended up having to get an override fill Pulmozyme through CF Services because the specialty pharmacy they were trying to make me use could not bill Medicare as my secondary. To be honest, it was a huge pain in the butt and lots of phone calls but it did get worked out. These copays were all put toward our out of pocket max.
I think with the Cayston you could almost certainly get an override because you are not making a choice not to fill it through their specialty pharmacy, their pharmacy CAN'T fill it, so you have no choice but to go out of network. I think there would be a little red tape to clear, but in the end I think you could get it squared away and it would count toward your out of pocket max.
What pharmacy are you using to fill Cayston now? I think both CF Services and Foundation Care would advocate for you on this. In my opinion, it would be really ridiculous if this couldn't be worked out.
Off topic but do you get any assistance with prescription costs through the Cystic Fibrosis Patient Assistance Foundation or any copay card programs? I only ask because I was SUPER afraid of going on the high deductible plan but in the end I actually SAVED money because the assistance program picks up the huge copays of Cayston and Pulmozyme and that $ went toward my deductible. So it actually really helped me meet our deductible/out of pocket max.
Anyway, hope this helps at all. Let me know if you have any other questions that I could try to answer!
Take care,
Autumn 32 w/CF