Help malabsorbing

creation301 · Jul 23, 2007

We have a 2 year old that has been malabsorbing for over 4 months now. Almost everyday she has at least one greasy stool. We have tried several different enzymes (creon, ultrase, pancrecarb) and the result have been the same with all of them.

We went to a GI dr last week and he was not a lot of help. His only suggestion was to do a biopsy. We may need that, but...I would sure like to try something else first.

It doesn't seem to matter if we give her 3 or 6 enzymes the results are the same. She is also on prevacid, and a probiotic. Her weight was at 55% 4 months ago. Now it is at the 35%, and falling daily.

IS there anything to the amount of acid that she may have in her GI tract that is keeping her from absorbing, and how would we know, or what test would we even ask for??

I have only been dealing with this disease for two years and already I get so made at the constant worry involved at every angle. The germs, the cleaning, the insurance companies, the medicines, the pharmacy, the equipment, the eating, the STRESS of it all.

This week I have felt at the end of my rope. I am so frustrated that I can not figure out what to do to help our child!! The dr's are good, but bottom line they don't care like we do. It feels like it is up to us to figure out what is wrong.

Not only can we not figure out why she is malabsorbing, but now she has stopped eating as well. I guess I would to if I was pooping all of the time.

Sorry this is so long, but I am a mom at the end of her rope and despartely trying ot hang on. I know that feeding tube is always out there, and we are trying very hard to not go there if we don't have to.

But we need to figure out something soon. If anyone has any ideas please let us know.

Thanks- Tiffany

creation301 · Jul 23, 2007

We have a 2 year old that has been malabsorbing for over 4 months now. Almost everyday she has at least one greasy stool. We have tried several different enzymes (creon, ultrase, pancrecarb) and the result have been the same with all of them.

We went to a GI dr last week and he was not a lot of help. His only suggestion was to do a biopsy. We may need that, but...I would sure like to try something else first.

It doesn't seem to matter if we give her 3 or 6 enzymes the results are the same. She is also on prevacid, and a probiotic. Her weight was at 55% 4 months ago. Now it is at the 35%, and falling daily.

IS there anything to the amount of acid that she may have in her GI tract that is keeping her from absorbing, and how would we know, or what test would we even ask for??

I have only been dealing with this disease for two years and already I get so made at the constant worry involved at every angle. The germs, the cleaning, the insurance companies, the medicines, the pharmacy, the equipment, the eating, the STRESS of it all.

This week I have felt at the end of my rope. I am so frustrated that I can not figure out what to do to help our child!! The dr's are good, but bottom line they don't care like we do. It feels like it is up to us to figure out what is wrong.

Not only can we not figure out why she is malabsorbing, but now she has stopped eating as well. I guess I would to if I was pooping all of the time.

Sorry this is so long, but I am a mom at the end of her rope and despartely trying ot hang on. I know that feeding tube is always out there, and we are trying very hard to not go there if we don't have to.

But we need to figure out something soon. If anyone has any ideas please let us know.

Thanks- Tiffany

creation301 · Jul 23, 2007

We have a 2 year old that has been malabsorbing for over 4 months now. Almost everyday she has at least one greasy stool. We have tried several different enzymes (creon, ultrase, pancrecarb) and the result have been the same with all of them.

We went to a GI dr last week and he was not a lot of help. His only suggestion was to do a biopsy. We may need that, but...I would sure like to try something else first.

It doesn't seem to matter if we give her 3 or 6 enzymes the results are the same. She is also on prevacid, and a probiotic. Her weight was at 55% 4 months ago. Now it is at the 35%, and falling daily.

IS there anything to the amount of acid that she may have in her GI tract that is keeping her from absorbing, and how would we know, or what test would we even ask for??

I have only been dealing with this disease for two years and already I get so made at the constant worry involved at every angle. The germs, the cleaning, the insurance companies, the medicines, the pharmacy, the equipment, the eating, the STRESS of it all.

This week I have felt at the end of my rope. I am so frustrated that I can not figure out what to do to help our child!! The dr's are good, but bottom line they don't care like we do. It feels like it is up to us to figure out what is wrong.

Not only can we not figure out why she is malabsorbing, but now she has stopped eating as well. I guess I would to if I was pooping all of the time.

Sorry this is so long, but I am a mom at the end of her rope and despartely trying ot hang on. I know that feeding tube is always out there, and we are trying very hard to not go there if we don't have to.

But we need to figure out something soon. If anyone has any ideas please let us know.

Thanks- Tiffany

creation301 · Jul 23, 2007

We have a 2 year old that has been malabsorbing for over 4 months now. Almost everyday she has at least one greasy stool. We have tried several different enzymes (creon, ultrase, pancrecarb) and the result have been the same with all of them.

We went to a GI dr last week and he was not a lot of help. His only suggestion was to do a biopsy. We may need that, but...I would sure like to try something else first.

It doesn't seem to matter if we give her 3 or 6 enzymes the results are the same. She is also on prevacid, and a probiotic. Her weight was at 55% 4 months ago. Now it is at the 35%, and falling daily.

IS there anything to the amount of acid that she may have in her GI tract that is keeping her from absorbing, and how would we know, or what test would we even ask for??

I have only been dealing with this disease for two years and already I get so made at the constant worry involved at every angle. The germs, the cleaning, the insurance companies, the medicines, the pharmacy, the equipment, the eating, the STRESS of it all.

This week I have felt at the end of my rope. I am so frustrated that I can not figure out what to do to help our child!! The dr's are good, but bottom line they don't care like we do. It feels like it is up to us to figure out what is wrong.

Not only can we not figure out why she is malabsorbing, but now she has stopped eating as well. I guess I would to if I was pooping all of the time.

Sorry this is so long, but I am a mom at the end of her rope and despartely trying ot hang on. I know that feeding tube is always out there, and we are trying very hard to not go there if we don't have to.

But we need to figure out something soon. If anyone has any ideas please let us know.

Thanks- Tiffany

creation301 · Jul 23, 2007

We have a 2 year old that has been malabsorbing for over 4 months now. Almost everyday she has at least one greasy stool. We have tried several different enzymes (creon, ultrase, pancrecarb) and the result have been the same with all of them.

We went to a GI dr last week and he was not a lot of help. His only suggestion was to do a biopsy. We may need that, but...I would sure like to try something else first.

It doesn't seem to matter if we give her 3 or 6 enzymes the results are the same. She is also on prevacid, and a probiotic. Her weight was at 55% 4 months ago. Now it is at the 35%, and falling daily.

IS there anything to the amount of acid that she may have in her GI tract that is keeping her from absorbing, and how would we know, or what test would we even ask for??

I have only been dealing with this disease for two years and already I get so made at the constant worry involved at every angle. The germs, the cleaning, the insurance companies, the medicines, the pharmacy, the equipment, the eating, the STRESS of it all.

This week I have felt at the end of my rope. I am so frustrated that I can not figure out what to do to help our child!! The dr's are good, but bottom line they don't care like we do. It feels like it is up to us to figure out what is wrong.

Not only can we not figure out why she is malabsorbing, but now she has stopped eating as well. I guess I would to if I was pooping all of the time.

Sorry this is so long, but I am a mom at the end of her rope and despartely trying ot hang on. I know that feeding tube is always out there, and we are trying very hard to not go there if we don't have to.

But we need to figure out something soon. If anyone has any ideas please let us know.

Thanks- Tiffany

creation301 · Jul 23, 2007

We have a 2 year old that has been malabsorbing for over 4 months now. Almost everyday she has at least one greasy stool. We have tried several different enzymes (creon, ultrase, pancrecarb) and the result have been the same with all of them.

We went to a GI dr last week and he was not a lot of help. His only suggestion was to do a biopsy. We may need that, but...I would sure like to try something else first.

It doesn't seem to matter if we give her 3 or 6 enzymes the results are the same. She is also on prevacid, and a probiotic. Her weight was at 55% 4 months ago. Now it is at the 35%, and falling daily.

IS there anything to the amount of acid that she may have in her GI tract that is keeping her from absorbing, and how would we know, or what test would we even ask for??

I have only been dealing with this disease for two years and already I get so made at the constant worry involved at every angle. The germs, the cleaning, the insurance companies, the medicines, the pharmacy, the equipment, the eating, the STRESS of it all.

This week I have felt at the end of my rope. I am so frustrated that I can not figure out what to do to help our child!! The dr's are good, but bottom line they don't care like we do. It feels like it is up to us to figure out what is wrong.

Not only can we not figure out why she is malabsorbing, but now she has stopped eating as well. I guess I would to if I was pooping all of the time.

Sorry this is so long, but I am a mom at the end of her rope and despartely trying ot hang on. I know that feeding tube is always out there, and we are trying very hard to not go there if we don't have to.

But we need to figure out something soon. If anyone has any ideas please let us know.

Thanks- Tiffany

lightNlife · Jul 23, 2007

Have you done a fecal fat study? It's a test that involved feeding your child a very specific diet for a day or two and collecting a stool sample to determine exactly how much isn't getting absorbed.

What sort of probiotic is she on? For most of my life I only had acidophilus milk to drink and that made a huge difference. I'm sure someone's mentioned the BRAT diet by now...any luck with that?

Unfortunately, sorting out GI problems with CF is a lot of trial and error. Are you giving the enzymes before the meal? Has your child's diet been assessed by a dietitian? Sorry if I'm asking questions that frustrate you. You're probably sick of answering questions and would rather have some answers by now.

I'm so sorry you feel like you're at the end of your rope. {hugs} to you, my friend. I hope I can help somehow.

lightNlife · Jul 23, 2007

Have you done a fecal fat study? It's a test that involved feeding your child a very specific diet for a day or two and collecting a stool sample to determine exactly how much isn't getting absorbed.

What sort of probiotic is she on? For most of my life I only had acidophilus milk to drink and that made a huge difference. I'm sure someone's mentioned the BRAT diet by now...any luck with that?

Unfortunately, sorting out GI problems with CF is a lot of trial and error. Are you giving the enzymes before the meal? Has your child's diet been assessed by a dietitian? Sorry if I'm asking questions that frustrate you. You're probably sick of answering questions and would rather have some answers by now.

I'm so sorry you feel like you're at the end of your rope. {hugs} to you, my friend. I hope I can help somehow.

lightNlife · Jul 23, 2007

Have you done a fecal fat study? It's a test that involved feeding your child a very specific diet for a day or two and collecting a stool sample to determine exactly how much isn't getting absorbed.

What sort of probiotic is she on? For most of my life I only had acidophilus milk to drink and that made a huge difference. I'm sure someone's mentioned the BRAT diet by now...any luck with that?

Unfortunately, sorting out GI problems with CF is a lot of trial and error. Are you giving the enzymes before the meal? Has your child's diet been assessed by a dietitian? Sorry if I'm asking questions that frustrate you. You're probably sick of answering questions and would rather have some answers by now.

I'm so sorry you feel like you're at the end of your rope. {hugs} to you, my friend. I hope I can help somehow.

lightNlife · Jul 23, 2007

Have you done a fecal fat study? It's a test that involved feeding your child a very specific diet for a day or two and collecting a stool sample to determine exactly how much isn't getting absorbed.

What sort of probiotic is she on? For most of my life I only had acidophilus milk to drink and that made a huge difference. I'm sure someone's mentioned the BRAT diet by now...any luck with that?

Unfortunately, sorting out GI problems with CF is a lot of trial and error. Are you giving the enzymes before the meal? Has your child's diet been assessed by a dietitian? Sorry if I'm asking questions that frustrate you. You're probably sick of answering questions and would rather have some answers by now.

I'm so sorry you feel like you're at the end of your rope. {hugs} to you, my friend. I hope I can help somehow.

lightNlife · Jul 23, 2007

Have you done a fecal fat study? It's a test that involved feeding your child a very specific diet for a day or two and collecting a stool sample to determine exactly how much isn't getting absorbed.

What sort of probiotic is she on? For most of my life I only had acidophilus milk to drink and that made a huge difference. I'm sure someone's mentioned the BRAT diet by now...any luck with that?

Unfortunately, sorting out GI problems with CF is a lot of trial and error. Are you giving the enzymes before the meal? Has your child's diet been assessed by a dietitian? Sorry if I'm asking questions that frustrate you. You're probably sick of answering questions and would rather have some answers by now.

I'm so sorry you feel like you're at the end of your rope. {hugs} to you, my friend. I hope I can help somehow.

lightNlife · Jul 23, 2007

Have you done a fecal fat study? It's a test that involved feeding your child a very specific diet for a day or two and collecting a stool sample to determine exactly how much isn't getting absorbed.

What sort of probiotic is she on? For most of my life I only had acidophilus milk to drink and that made a huge difference. I'm sure someone's mentioned the BRAT diet by now...any luck with that?

Unfortunately, sorting out GI problems with CF is a lot of trial and error. Are you giving the enzymes before the meal? Has your child's diet been assessed by a dietitian? Sorry if I'm asking questions that frustrate you. You're probably sick of answering questions and would rather have some answers by now.

I'm so sorry you feel like you're at the end of your rope. {hugs} to you, my friend. I hope I can help somehow.

mom2lillian · Jul 23, 2007

I would say to try giving her a proton pump inhibitor for the acid and give it a go with the enzymes for a month and see if it makes a difference. Don't settle for one of the generic PPI's becuase in my experience there is a world of difference between the newer versions and the old generics of the originals and I have had some severe bouts with reflux.

Dr.Perricone's anti inflammatory diet may also be worth looking in to, since the fats are all natural and the way of eating is overall easier on the body you may get a very good result. Dramama is one of the individuals who has had a phenomenal result from the diet, you may want to check her blog or PM her.

mom2lillian · Jul 23, 2007

I would say to try giving her a proton pump inhibitor for the acid and give it a go with the enzymes for a month and see if it makes a difference. Don't settle for one of the generic PPI's becuase in my experience there is a world of difference between the newer versions and the old generics of the originals and I have had some severe bouts with reflux.

Dr.Perricone's anti inflammatory diet may also be worth looking in to, since the fats are all natural and the way of eating is overall easier on the body you may get a very good result. Dramama is one of the individuals who has had a phenomenal result from the diet, you may want to check her blog or PM her.

mom2lillian · Jul 23, 2007

I would say to try giving her a proton pump inhibitor for the acid and give it a go with the enzymes for a month and see if it makes a difference. Don't settle for one of the generic PPI's becuase in my experience there is a world of difference between the newer versions and the old generics of the originals and I have had some severe bouts with reflux.

Dr.Perricone's anti inflammatory diet may also be worth looking in to, since the fats are all natural and the way of eating is overall easier on the body you may get a very good result. Dramama is one of the individuals who has had a phenomenal result from the diet, you may want to check her blog or PM her.

mom2lillian · Jul 23, 2007

I would say to try giving her a proton pump inhibitor for the acid and give it a go with the enzymes for a month and see if it makes a difference. Don't settle for one of the generic PPI's becuase in my experience there is a world of difference between the newer versions and the old generics of the originals and I have had some severe bouts with reflux.

Dr.Perricone's anti inflammatory diet may also be worth looking in to, since the fats are all natural and the way of eating is overall easier on the body you may get a very good result. Dramama is one of the individuals who has had a phenomenal result from the diet, you may want to check her blog or PM her.

mom2lillian · Jul 23, 2007

I would say to try giving her a proton pump inhibitor for the acid and give it a go with the enzymes for a month and see if it makes a difference. Don't settle for one of the generic PPI's becuase in my experience there is a world of difference between the newer versions and the old generics of the originals and I have had some severe bouts with reflux.

Dr.Perricone's anti inflammatory diet may also be worth looking in to, since the fats are all natural and the way of eating is overall easier on the body you may get a very good result. Dramama is one of the individuals who has had a phenomenal result from the diet, you may want to check her blog or PM her.

mom2lillian · Jul 23, 2007

I would say to try giving her a proton pump inhibitor for the acid and give it a go with the enzymes for a month and see if it makes a difference. Don't settle for one of the generic PPI's becuase in my experience there is a world of difference between the newer versions and the old generics of the originals and I have had some severe bouts with reflux.

Dr.Perricone's anti inflammatory diet may also be worth looking in to, since the fats are all natural and the way of eating is overall easier on the body you may get a very good result. Dramama is one of the individuals who has had a phenomenal result from the diet, you may want to check her blog or PM her.

EnergyGal · Jul 23, 2007

I believe eating foods that are anti imflammatory is the ticket to success for all of us non cf and especially cf patients to keep our bodies as healthy as possible.

I believe this Enzyme has saved me from many problems.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.luckyvitamin.com/755571011923.html
">http://www.luckyvitamin.com/755571011923.html
</a>

The company who makes this enzyme is Metagenics. The product is called Azeo Pangeon.

I gained lots of weight with this one enzyme. I am only taking this one enzyme with each meal and if I eat anything with any kind of oil or meat, I increase to one and a half pills.

They crush easily and are easily digest well for me. My doctors approved this for me when I was in the ICU when I was not doing well. Once I was allowed to take my enzymes, I started to thrive and I was out of the ICU in a week after a long batte.

This enzyme has all the properties that all CF enzymes have from what I have seen but you need to be the judge of that.

I was first introduced to this line of supplements from a nutritionist.

From now on, I will stay on this product for as long as it works for me.

I hope u find the right one that works. By the way, with this supplement, I no longer need protonix. If enzymes are working well and the body is eating the right foods, I believe the body will become less acidic and it will move toward an alkaline balance.

EnergyGal · Jul 23, 2007

I believe eating foods that are anti imflammatory is the ticket to success for all of us non cf and especially cf patients to keep our bodies as healthy as possible.

I believe this Enzyme has saved me from many problems.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.luckyvitamin.com/755571011923.html
">http://www.luckyvitamin.com/755571011923.html
</a>

The company who makes this enzyme is Metagenics. The product is called Azeo Pangeon.

I gained lots of weight with this one enzyme. I am only taking this one enzyme with each meal and if I eat anything with any kind of oil or meat, I increase to one and a half pills.

They crush easily and are easily digest well for me. My doctors approved this for me when I was in the ICU when I was not doing well. Once I was allowed to take my enzymes, I started to thrive and I was out of the ICU in a week after a long batte.

This enzyme has all the properties that all CF enzymes have from what I have seen but you need to be the judge of that.

I was first introduced to this line of supplements from a nutritionist.

From now on, I will stay on this product for as long as it works for me.

I hope u find the right one that works. By the way, with this supplement, I no longer need protonix. If enzymes are working well and the body is eating the right foods, I believe the body will become less acidic and it will move toward an alkaline balance.

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