help

[m0408]

I really need some help... I was wondering what does cystic fibrosis do to you guys like what is the everyday symptoms you have? Well i've been having a hard time because I'm 22 and about 2 yrs ago my doctor said i have asthma BUT a few weeks ago I took the test again and they say I don't have it... ever since I was like 17, 18 I have had this constant cough and having to spit stuff up, it's usually hard to get up it just feels like somethings in my rib area and throat its usually whiteish or clear and sticky like and i'm always coughing it seems it's just always there AND I have no idea if this would have anything at all to do with it but every now and then i will have these very odd heart palpitations, but my main thing is i'm trying to figure out if the syptoms i have sounds like it could be cystic fibrosis or am I too old? also I never cough blood up but a few weeks ago I coughed up a whole lot of blood but I guess that could be from other things like the day before my blood pressure was high but I really don't know I just wanted someone help please if you could help me out maybe. thank you

 

[anonymous]

I pulled up an old thread from the families section of this forum, you may want to take a look at it:

<a target=new class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=2841&FTVAR_MSGDBTABLE=
">http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=2841&FTVAR_MSGDBTABLE=
</a>
In addition to symptoms mentioned on this thread, sometimes clubbed fingers can be present in CF. Clubbed fingers are hard to describe, but it is where your fingers are bigger and/or round at the tips and your fingernails may curve down instead of being flat.
If any of the sytmptoms mentioned are present with you, I would suggest you ask for a sweat test or a blood test to be done just to rule it out or to confirm it.
Hope this helped.

 

[luke]

when you say "they" tested you for it who is "they" and what did they do to test you. You said you have a productive cough...is it clear...grey...green?


just wondering.



luke

 

[m0408]

my doctor re-tested me for asthma and it came back that I don't have it. the stuff that comes up is usually clear and sometimes like a really white color, it just feels like there is alot of it in my chest, ib area and throat.

 

[smoothdave]

they dont exactly the same as me, i got told i had asthma when i was a child. then it never effected me for about 15 years.... then i started coughin a bit.. then a bit more and i also started bringing up stuff now ( i was about 16years old at this point) so i was always going to the hospital gettin check ups to c if they could find out what it was about 2YEARS! later they told me i had CF ( 18) i had honestly never even heard of this before that day i got told, but they took so long to finally get to the bottom of it, all the pills they had givin me were a waste, 2 years takin the wrong med.. no help at all.
i also brung up some blood earlier on in the year. scary time! that is just my little story about how i got d/x, i was 18 and now i am 19! (gettin old)! so just like every one has said, u would be better off askin about it!
hope this has helped u relate this to ur self!
take care
dave

 

[anonymous]

Thanks for your reply and everyone else. I can really relate that to myself...because it seems it's always been something else my doctor says first they said asthma and now my doctor was saying it could be sinus in other words drip, but I asked him could that last over the years constantly and he was like yeah...but I just don't see how that could be because it's a non stop cough and it always seems I have this stuff in me.. so I do need to talk more about getting tested I think, I mean maybe he is right and maybe he isnt I really don't know I just know that it's a constant thing and I can't seem to get it straight. Thanks for the replys

 

[JustDucky]

The docs said I had asthma for the longest time, CF wasn't even considered. It was finally considered when I started to grow out some funky bugs with my sputum. They did a sweat test, they thought it would be negative, my pulmo actually said that there would be no way that it would be greater than 30....the first time was borderline at 58, the other pos. so they say I have an odd variant of CF and treat me like I have CF....meds and all. Also, the pancreatic insufficiency also clinched it too. I would go with the sweat test, it is easy, painless no needles involved and the doc can have the resuslts within the hour. If that is inconclusive, then go for the CF screening.....I didn't test positive for the regular screening, am now going through the Quest CF complete test, my doc thinks I have some funky mutations, not common. Just gotta get the insurance to cover it......I have Medicare, need I say more? LOL! To ease your mind, get the test. I had to do alot of convincing to my doc to just get the sweat test, he was that certain that I wouldn't test positive. I think it is because I have other genetic issues going on (long story..have muscular dystrophy) and he was probably thinking it would be astronomically rare to have both disorders at the same time. I never do anything the typical way...he should know that by now LOL! Good luck....Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

Yeah I REALLY know what you mean.. and it really gets frustrating. I called my doctor and asked about getting tested and they want to see how this med. they have me on now which is for this cold I'm getting over does then they will see about taking the test...he's thinking it could be sinus nasal drainage, but to me there is no way because it's been going on for years and i cough all the time and it just is always there the mucus stuff sometimes not alot sometimes more than others, and I don't understand really...also something I haven't mentioned to him because I really forgot was whenever I am very active ok this is going to sound weird but if I very fastly move my arms to one side and then to the other my chest makes this nasty noise or if i like run in place BUT its not weezing it's different, sounds odd i know, and sometimes i feel low on air and im always tired feeling...but all i know is im always coughing and the stuff seems to always be in me. just one question i know this sounds nasty but i just need some help what color is it that you tend to get up when it does come up? the thing here is when i am not sick with a cold it is usually clear or white its like i spit nothing up BUT when i do spit it feels like it helps its just really like sticky i dont know how to explain im just very confused as to what this is if it is CF, i hate to talk so nasty but i'm really just wanting some answers. thanks for your reply