help :)

H

hbollotte

New member
thanks. a tracking chart sounds really good. i'm going o make one, like a chore chart. wow, never thought of that. i can get little stickers and everything <img src="i/expressions/face-icon-small-smile.gif" border="0">

the other day i was at a funeral and got tears in my eyes because i thought of me being in the coffin and dustin and morgan in tears. i know the reality and i just don't do it. i think finally i have it in my head.

i'm 26 and i know i shouldn't need people to nag or remind me everyday, but your reply helped.
 
H

hbollotte

New member
thanks. a tracking chart sounds really good. i'm going o make one, like a chore chart. wow, never thought of that. i can get little stickers and everything <img src="i/expressions/face-icon-small-smile.gif" border="0">

the other day i was at a funeral and got tears in my eyes because i thought of me being in the coffin and dustin and morgan in tears. i know the reality and i just don't do it. i think finally i have it in my head.

i'm 26 and i know i shouldn't need people to nag or remind me everyday, but your reply helped.
 
H

hbollotte

New member
thanks. a tracking chart sounds really good. i'm going o make one, like a chore chart. wow, never thought of that. i can get little stickers and everything <img src="i/expressions/face-icon-small-smile.gif" border="0">

the other day i was at a funeral and got tears in my eyes because i thought of me being in the coffin and dustin and morgan in tears. i know the reality and i just don't do it. i think finally i have it in my head.

i'm 26 and i know i shouldn't need people to nag or remind me everyday, but your reply helped.
 
H

hbollotte

New member
thanks. a tracking chart sounds really good. i'm going o make one, like a chore chart. wow, never thought of that. i can get little stickers and everything <img src="i/expressions/face-icon-small-smile.gif" border="0">

the other day i was at a funeral and got tears in my eyes because i thought of me being in the coffin and dustin and morgan in tears. i know the reality and i just don't do it. i think finally i have it in my head.

i'm 26 and i know i shouldn't need people to nag or remind me everyday, but your reply helped.
 
H

hbollotte

New member
thanks. a tracking chart sounds really good. i'm going o make one, like a chore chart. wow, never thought of that. i can get little stickers and everything <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />the other day i was at a funeral and got tears in my eyes because i thought of me being in the coffin and dustin and morgan in tears. i know the reality and i just don't do it. i think finally i have it in my head.
<br />
<br />i'm 26 and i know i shouldn't need people to nag or remind me everyday, but your reply helped.
 
M

mom2lillian

New member
Haley-glad you didnt take offense to my non-sugar coating <img src="i/expressions/face-icon-small-happy.gif" border="0">. I got the tracking chart idea from here initially, I used it for at least the first month of getting myself into a routine and then later a new imporved one to tweak my routine and now I have one for whenver I get sick to keep everything straight with the extra physio IV's etc.

best of luck

oh and depsite being in our twenties sometimes someone does just need to kick our butt, sometimes when I fall asleep without doing an evening treatment I have had him turn lights on, pull blankets off and pretty much drag my butt out of bed, at time I get pissy but I am always grateful later--I imagine not having Dustin there to help encourage or help you out is hard.


ps Lillian likes the baby picture, she said "baby, messy, orange" and wanted me to come back to his picture
 
M

mom2lillian

New member
Haley-glad you didnt take offense to my non-sugar coating <img src="i/expressions/face-icon-small-happy.gif" border="0">. I got the tracking chart idea from here initially, I used it for at least the first month of getting myself into a routine and then later a new imporved one to tweak my routine and now I have one for whenver I get sick to keep everything straight with the extra physio IV's etc.

best of luck

oh and depsite being in our twenties sometimes someone does just need to kick our butt, sometimes when I fall asleep without doing an evening treatment I have had him turn lights on, pull blankets off and pretty much drag my butt out of bed, at time I get pissy but I am always grateful later--I imagine not having Dustin there to help encourage or help you out is hard.


ps Lillian likes the baby picture, she said "baby, messy, orange" and wanted me to come back to his picture
 
M

mom2lillian

New member
Haley-glad you didnt take offense to my non-sugar coating <img src="i/expressions/face-icon-small-happy.gif" border="0">. I got the tracking chart idea from here initially, I used it for at least the first month of getting myself into a routine and then later a new imporved one to tweak my routine and now I have one for whenver I get sick to keep everything straight with the extra physio IV's etc.

best of luck

oh and depsite being in our twenties sometimes someone does just need to kick our butt, sometimes when I fall asleep without doing an evening treatment I have had him turn lights on, pull blankets off and pretty much drag my butt out of bed, at time I get pissy but I am always grateful later--I imagine not having Dustin there to help encourage or help you out is hard.


ps Lillian likes the baby picture, she said "baby, messy, orange" and wanted me to come back to his picture
 
M

mom2lillian

New member
Haley-glad you didnt take offense to my non-sugar coating <img src="i/expressions/face-icon-small-happy.gif" border="0">. I got the tracking chart idea from here initially, I used it for at least the first month of getting myself into a routine and then later a new imporved one to tweak my routine and now I have one for whenver I get sick to keep everything straight with the extra physio IV's etc.

best of luck

oh and depsite being in our twenties sometimes someone does just need to kick our butt, sometimes when I fall asleep without doing an evening treatment I have had him turn lights on, pull blankets off and pretty much drag my butt out of bed, at time I get pissy but I am always grateful later--I imagine not having Dustin there to help encourage or help you out is hard.


ps Lillian likes the baby picture, she said "baby, messy, orange" and wanted me to come back to his picture
 
M

mom2lillian

New member
Haley-glad you didnt take offense to my non-sugar coating <img src="i/expressions/face-icon-small-happy.gif" border="0">. I got the tracking chart idea from here initially, I used it for at least the first month of getting myself into a routine and then later a new imporved one to tweak my routine and now I have one for whenver I get sick to keep everything straight with the extra physio IV's etc.
<br />
<br />best of luck
<br />
<br />oh and depsite being in our twenties sometimes someone does just need to kick our butt, sometimes when I fall asleep without doing an evening treatment I have had him turn lights on, pull blankets off and pretty much drag my butt out of bed, at time I get pissy but I am always grateful later--I imagine not having Dustin there to help encourage or help you out is hard.
<br />
<br />
<br />ps Lillian likes the baby picture, she said "baby, messy, orange" and wanted me to come back to his picture
 
C

CFcarebear

New member
Haley,

Do you have a battery operated nebulizer? My husband (29) and sister-in-law (26) both have one and many times do treatments on the go (in the car, around the house) They like it.

Also, my husband is doing an "Aztreonam" study right now. He loves it beacause he does TOBI for one month and Aztreonam the next month. It has a really cool new nebulizer that finishes in only 1 minute!! Isn't that awesome! WAY slower than TOBI. I am nor sure what your lung function is, but Jake qualified beacause he is below 50% FEV1. His sister was too high so she didn't qualify.

Anyway, the faster the better and the nore convenient the better.

Take care!
 
C

CFcarebear

New member
Haley,

Do you have a battery operated nebulizer? My husband (29) and sister-in-law (26) both have one and many times do treatments on the go (in the car, around the house) They like it.

Also, my husband is doing an "Aztreonam" study right now. He loves it beacause he does TOBI for one month and Aztreonam the next month. It has a really cool new nebulizer that finishes in only 1 minute!! Isn't that awesome! WAY slower than TOBI. I am nor sure what your lung function is, but Jake qualified beacause he is below 50% FEV1. His sister was too high so she didn't qualify.

Anyway, the faster the better and the nore convenient the better.

Take care!
 
C

CFcarebear

New member
Haley,

Do you have a battery operated nebulizer? My husband (29) and sister-in-law (26) both have one and many times do treatments on the go (in the car, around the house) They like it.

Also, my husband is doing an "Aztreonam" study right now. He loves it beacause he does TOBI for one month and Aztreonam the next month. It has a really cool new nebulizer that finishes in only 1 minute!! Isn't that awesome! WAY slower than TOBI. I am nor sure what your lung function is, but Jake qualified beacause he is below 50% FEV1. His sister was too high so she didn't qualify.

Anyway, the faster the better and the nore convenient the better.

Take care!
 
C

CFcarebear

New member
Haley,

Do you have a battery operated nebulizer? My husband (29) and sister-in-law (26) both have one and many times do treatments on the go (in the car, around the house) They like it.

Also, my husband is doing an "Aztreonam" study right now. He loves it beacause he does TOBI for one month and Aztreonam the next month. It has a really cool new nebulizer that finishes in only 1 minute!! Isn't that awesome! WAY slower than TOBI. I am nor sure what your lung function is, but Jake qualified beacause he is below 50% FEV1. His sister was too high so she didn't qualify.

Anyway, the faster the better and the nore convenient the better.

Take care!
 
C

CFcarebear

New member
Haley,
<br />
<br />Do you have a battery operated nebulizer? My husband (29) and sister-in-law (26) both have one and many times do treatments on the go (in the car, around the house) They like it.
<br />
<br />Also, my husband is doing an "Aztreonam" study right now. He loves it beacause he does TOBI for one month and Aztreonam the next month. It has a really cool new nebulizer that finishes in only 1 minute!! Isn't that awesome! WAY slower than TOBI. I am nor sure what your lung function is, but Jake qualified beacause he is below 50% FEV1. His sister was too high so she didn't qualify.
<br />
<br />Anyway, the faster the better and the nore convenient the better.
<br />
<br />Take care!
 
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