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anonymous

New member
Hi Robbie! My name is Aimee. I am 19 and I have Cystic fibrosis and i would love to answer any quuestions you have about CF. My E-mail is Amos3117@hotmail.com.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
hey my name is nisha and i am doing a project on cf and i need information for a school project. i would ask my girlfriend but i don't think she would be comfortable telling me the things she go through when i'm not around her. to give me information my e-mail address is shauty_69@yahoo.com thanksi'll pray for every one of you.thanks nisha
 

anonymous

New member
Hey Robby!My name is Kayla Whitley. Well pal, good news, I HAVE CF!!!!!!! so if you have any ?s about it, I would like to know. Just call: 1-217-854-2315. And ask for Kayla. I'm always open for ?s like that. I'm also 13 years old. and I would like to help you. So just give me a call. I'll try to answer any ?s you might have. You can also ask my Mom, and she'll answer any ?s I can't answer. OK?Kayla Whitley<img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/lips.gif" border="0">
 

anonymous

New member
James,My name is Kayla Whitley, the last time I checked it was 35. But I thank it has gone up. So maby that can give you an <img src="i/expressions/light.gif" border="0">idea.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
hmmmm....i´m wondering how you get CF. from what i understand it is passed on from the parents, to the child.i was diagnosed with CF last year. but none of my parents was carriers of it from what i understood.can you get CF anyway???the doctor also said something that there was "tops" missing in my DNA..someone know what that means???
 

anonymous

New member
Ok, nearly all of the time, both parents MUST be carriers of the gene. this doesn't mean that they have CF. Your parents would need to be genetically screened with a blood test to make sure.There are such things as point mutatuons in genes, and this can cause genetic disorders althought there is no prior history. Debbie22 yr old w/ CF
 

anonymous

New member
"Your parents would need to be genetically screened with a blood test to make sure."Hmmmm the hospital took blood tests of me and my parents and sent ém to a lab. i think the lab results said that none of my parents were carriers.but they thought that the result from my blood was strange, so they sent it to another more advanced lab,i´m still waiting for the results from that lab. My CF-doc said that she has never seen anything like it before.../Ben... 18 y/o (i wrote this one ---->Saturday March 20, 2004 8:19 PM)
 

anonymous

New member
Well, I am a 14/f/ca Who has CF. When ever i get sick.. i usually take TOBI.. as shown on the homepage of this site. I take it from my Nebulizer, (plomomate) and it usually gets me better... so i hope it works for you!
 
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