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peasmom

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<img src="i/expressions/face-icon-small-happy.gif" border="0"> I finally have a few minutes to update everyone. The specialist we saw in Albany was GREAT!!!!!!!!!! He looked at all her chest x-ray's -9 in all and said she has had pneumonia 8 times, in approx a 6 month time span. This was a surprise to me. Our local hospitals X-ray Department final reports on 8 of the x-rays were either bronchitist, asthma or normal..only 1 report said she had pneumonia. Unfortunatly her Doctor only reads the reports and does not actually LOOK at the films. I was not too happy on that one, but that's a whole other story!!! Anyways, He said due to me being a carrier of the CF gene and her history he definitly feels she should have the sweet test done. He did say he does not think she has CF but the possibility is there and it is something that needs to be ruled out. He did say she does not have "asthma" but does have Reactive Airway Disease which is in the same family as asthma. I did alitlle research and did not really come up with anymore than I already know. A simple cold will put her in the Hosp if it is not treated agressively. He started her on Singulair once a day and is having her continue with the Pulmicort Neb treatments twice a day and wants to see what will happen when the "cold" season is over. We have an appt at the end of June for the sweat test and a followup appt. He also wants to be notified if she ends up having to be admitted again, so he can bring us down to his Hosp if needed.
As for Pea, she has been approx 3 weeks without an antibiotic and she is JUST starting to junk up again. He thinks (and I am hoping )that with the new medicine she will be able to fight it off like a normal kid. We will see what happens. So far it looks alittle promising, this is the longest she has been with out having to be put on something for either her ears, sinus, or ? pneumonia.
I want to first apologize for taking so long to get back to everyone and second thank you for all the advise and support. I hope you and your kids are all well and stay well. I will keep everyone posted on our next visit. <img src="i/expressions/heart.gif" border="0">
 

peasmom

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0"> I finally have a few minutes to update everyone. The specialist we saw in Albany was GREAT!!!!!!!!!! He looked at all her chest x-ray's -9 in all and said she has had pneumonia 8 times, in approx a 6 month time span. This was a surprise to me. Our local hospitals X-ray Department final reports on 8 of the x-rays were either bronchitist, asthma or normal..only 1 report said she had pneumonia. Unfortunatly her Doctor only reads the reports and does not actually LOOK at the films. I was not too happy on that one, but that's a whole other story!!! Anyways, He said due to me being a carrier of the CF gene and her history he definitly feels she should have the sweet test done. He did say he does not think she has CF but the possibility is there and it is something that needs to be ruled out. He did say she does not have "asthma" but does have Reactive Airway Disease which is in the same family as asthma. I did alitlle research and did not really come up with anymore than I already know. A simple cold will put her in the Hosp if it is not treated agressively. He started her on Singulair once a day and is having her continue with the Pulmicort Neb treatments twice a day and wants to see what will happen when the "cold" season is over. We have an appt at the end of June for the sweat test and a followup appt. He also wants to be notified if she ends up having to be admitted again, so he can bring us down to his Hosp if needed.
As for Pea, she has been approx 3 weeks without an antibiotic and she is JUST starting to junk up again. He thinks (and I am hoping )that with the new medicine she will be able to fight it off like a normal kid. We will see what happens. So far it looks alittle promising, this is the longest she has been with out having to be put on something for either her ears, sinus, or ? pneumonia.
I want to first apologize for taking so long to get back to everyone and second thank you for all the advise and support. I hope you and your kids are all well and stay well. I will keep everyone posted on our next visit. <img src="i/expressions/heart.gif" border="0">
 

peasmom

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0"> I finally have a few minutes to update everyone. The specialist we saw in Albany was GREAT!!!!!!!!!! He looked at all her chest x-ray's -9 in all and said she has had pneumonia 8 times, in approx a 6 month time span. This was a surprise to me. Our local hospitals X-ray Department final reports on 8 of the x-rays were either bronchitist, asthma or normal..only 1 report said she had pneumonia. Unfortunatly her Doctor only reads the reports and does not actually LOOK at the films. I was not too happy on that one, but that's a whole other story!!! Anyways, He said due to me being a carrier of the CF gene and her history he definitly feels she should have the sweet test done. He did say he does not think she has CF but the possibility is there and it is something that needs to be ruled out. He did say she does not have "asthma" but does have Reactive Airway Disease which is in the same family as asthma. I did alitlle research and did not really come up with anymore than I already know. A simple cold will put her in the Hosp if it is not treated agressively. He started her on Singulair once a day and is having her continue with the Pulmicort Neb treatments twice a day and wants to see what will happen when the "cold" season is over. We have an appt at the end of June for the sweat test and a followup appt. He also wants to be notified if she ends up having to be admitted again, so he can bring us down to his Hosp if needed.
As for Pea, she has been approx 3 weeks without an antibiotic and she is JUST starting to junk up again. He thinks (and I am hoping )that with the new medicine she will be able to fight it off like a normal kid. We will see what happens. So far it looks alittle promising, this is the longest she has been with out having to be put on something for either her ears, sinus, or ? pneumonia.
I want to first apologize for taking so long to get back to everyone and second thank you for all the advise and support. I hope you and your kids are all well and stay well. I will keep everyone posted on our next visit. <img src="i/expressions/heart.gif" border="0">
 
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