help

faceache

New member
i am new on here i am looking for advice my six year old son has had three sweat tests and they all came back as borderline i really donot no what to think has he go cf or not we are not seeing the docs untill 16th of july please help i do not no what to think does he cf or not
 

faceache

New member
i am new on here i am looking for advice my six year old son has had three sweat tests and they all came back as borderline i really donot no what to think has he go cf or not we are not seeing the docs untill 16th of july please help i do not no what to think does he cf or not
 

faceache

New member
i am new on here i am looking for advice my six year old son has had three sweat tests and they all came back as borderline i really donot no what to think has he go cf or not we are not seeing the docs untill 16th of july please help i do not no what to think does he cf or not
 

faceache

New member
i am new on here i am looking for advice my six year old son has had three sweat tests and they all came back as borderline i really donot no what to think has he go cf or not we are not seeing the docs untill 16th of july please help i do not no what to think does he cf or not
 

faceache

New member
i am new on here i am looking for advice my six year old son has had three sweat tests and they all came back as borderline i really donot no what to think has he go cf or not we are not seeing the docs untill 16th of july please help i do not no what to think does he cf or not
 

faceache

New member
i am new on here i am looking for advice my six year old son has had three sweat tests and they all came back as borderline i really donot no what to think has he go cf or not we are not seeing the docs untill 16th of july please help i do not no what to think does he cf or not
 

NoExcuses

New member
Get a Full Panel Ambry genetic test.

This will test for all known CF mutations and will give you a more definitive diagnosis.
 

NoExcuses

New member
Get a Full Panel Ambry genetic test.

This will test for all known CF mutations and will give you a more definitive diagnosis.
 

NoExcuses

New member
Get a Full Panel Ambry genetic test.

This will test for all known CF mutations and will give you a more definitive diagnosis.
 

NoExcuses

New member
Get a Full Panel Ambry genetic test.

This will test for all known CF mutations and will give you a more definitive diagnosis.
 

NoExcuses

New member
Get a Full Panel Ambry genetic test.

This will test for all known CF mutations and will give you a more definitive diagnosis.
 

NoExcuses

New member
Get a Full Panel Ambry genetic test.

This will test for all known CF mutations and will give you a more definitive diagnosis.
 

JazzysMom

New member
Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....
 

JazzysMom

New member
Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....
 

JazzysMom

New member
Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....
 

JazzysMom

New member
Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....
 

JazzysMom

New member
Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....
 

JazzysMom

New member
Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....
 

faceache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.



If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.



Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.



If you could give a bit more background that led to testing maybe we would have more ideas for you.....</end quote></div>

no they are not accredited cf centre it was at the hospital and they have a clinic for cf my son was diagnosed with asthma at birth but they have never been able to controll it he has foul smelling motions and he doesnt digest his food properly he does not seem to put on any weight and is a bag of bones he suffers alot from allergies and is being tested for this he is always loseing his voice and suffers really badly from glue ear i hope this is of some help
 

faceache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.



If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.



Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.



If you could give a bit more background that led to testing maybe we would have more ideas for you.....</end quote></div>

no they are not accredited cf centre it was at the hospital and they have a clinic for cf my son was diagnosed with asthma at birth but they have never been able to controll it he has foul smelling motions and he doesnt digest his food properly he does not seem to put on any weight and is a bag of bones he suffers alot from allergies and is being tested for this he is always loseing his voice and suffers really badly from glue ear i hope this is of some help
 
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