help

faceache · Jun 23, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....</end quote></div>

no they are not accredited cf centre it was at the hospital and they have a clinic for cf my son was diagnosed with asthma at birth but they have never been able to controll it he has foul smelling motions and he doesnt digest his food properly he does not seem to put on any weight and is a bag of bones he suffers alot from allergies and is being tested for this he is always loseing his voice and suffers really badly from glue ear i hope this is of some help

faceache · Jun 23, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....</end quote></div>

no they are not accredited cf centre it was at the hospital and they have a clinic for cf my son was diagnosed with asthma at birth but they have never been able to controll it he has foul smelling motions and he doesnt digest his food properly he does not seem to put on any weight and is a bag of bones he suffers alot from allergies and is being tested for this he is always loseing his voice and suffers really badly from glue ear i hope this is of some help

faceache · Jun 23, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....</end quote>

no they are not accredited cf centre it was at the hospital and they have a clinic for cf my son was diagnosed with asthma at birth but they have never been able to controll it he has foul smelling motions and he doesnt digest his food properly he does not seem to put on any weight and is a bag of bones he suffers alot from allergies and is being tested for this he is always loseing his voice and suffers really badly from glue ear i hope this is of some help

faceache · Jun 23, 2007

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Lets start with what led to them doing a sweat test......if he had some classic symptoms of CF & they test was borderline that I would push for genetic testing to find CF gene mutations.

If they tested just for ha ha's (dont why they would, but you never know) then I wouldnt push it.

Since the cases are usually that you CANT get doctors to test for CF you should be grateful they tested, but it sounds a bit "inconclusive" to determine for sure. The doctors that did it or the ones you are going to in July....are they an accredited CF center? The sweat test needs to be done by one to assure accurate results.

If you could give a bit more background that led to testing maybe we would have more ideas for you.....</end quote>

no they are not accredited cf centre it was at the hospital and they have a clinic for cf my son was diagnosed with asthma at birth but they have never been able to controll it he has foul smelling motions and he doesnt digest his food properly he does not seem to put on any weight and is a bag of bones he suffers alot from allergies and is being tested for this he is always loseing his voice and suffers really badly from glue ear i hope this is of some help

JazzysMom · Jun 23, 2007

Just the things you mentioned are classic symptoms of CF. I really urge you to get to an accredited CF Center. Are you in the US? Here is a link for you to find the closest one to you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cf_centers.cfm
">http://www.cysticfibrosis.com/cf_centers.cfm
</a>
IF he does have CF its important to find out as early as possible. Depending on what insurance coverage you have, they might require another sweat test before proceding with genetic testing. BUT either way it should be done through an accredited CF center. Please keep us updated and we are here for any ?? you might have. ~HUGS~

JazzysMom · Jun 23, 2007

Just the things you mentioned are classic symptoms of CF. I really urge you to get to an accredited CF Center. Are you in the US? Here is a link for you to find the closest one to you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cf_centers.cfm
">http://www.cysticfibrosis.com/cf_centers.cfm
</a>
IF he does have CF its important to find out as early as possible. Depending on what insurance coverage you have, they might require another sweat test before proceding with genetic testing. BUT either way it should be done through an accredited CF center. Please keep us updated and we are here for any ?? you might have. ~HUGS~

JazzysMom · Jun 23, 2007

Just the things you mentioned are classic symptoms of CF. I really urge you to get to an accredited CF Center. Are you in the US? Here is a link for you to find the closest one to you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cf_centers.cfm
">http://www.cysticfibrosis.com/cf_centers.cfm
</a>
IF he does have CF its important to find out as early as possible. Depending on what insurance coverage you have, they might require another sweat test before proceding with genetic testing. BUT either way it should be done through an accredited CF center. Please keep us updated and we are here for any ?? you might have. ~HUGS~

JazzysMom · Jun 23, 2007

Just the things you mentioned are classic symptoms of CF. I really urge you to get to an accredited CF Center. Are you in the US? Here is a link for you to find the closest one to you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cf_centers.cfm
">http://www.cysticfibrosis.com/cf_centers.cfm
</a>
IF he does have CF its important to find out as early as possible. Depending on what insurance coverage you have, they might require another sweat test before proceding with genetic testing. BUT either way it should be done through an accredited CF center. Please keep us updated and we are here for any ?? you might have. ~HUGS~

JazzysMom · Jun 23, 2007

Just the things you mentioned are classic symptoms of CF. I really urge you to get to an accredited CF Center. Are you in the US? Here is a link for you to find the closest one to you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cf_centers.cfm
">http://www.cysticfibrosis.com/cf_centers.cfm
</a>
IF he does have CF its important to find out as early as possible. Depending on what insurance coverage you have, they might require another sweat test before proceding with genetic testing. BUT either way it should be done through an accredited CF center. Please keep us updated and we are here for any ?? you might have. ~HUGS~

JazzysMom · Jun 23, 2007

Just the things you mentioned are classic symptoms of CF. I really urge you to get to an accredited CF Center. Are you in the US? Here is a link for you to find the closest one to you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cf_centers.cfm
">http://www.cysticfibrosis.com/cf_centers.cfm
</a>
IF he does have CF its important to find out as early as possible. Depending on what insurance coverage you have, they might require another sweat test before proceding with genetic testing. BUT either way it should be done through an accredited CF center. Please keep us updated and we are here for any ?? you might have. ~HUGS~

faceache · Jun 23, 2007