Hemoptysis in Cf Patients

[my65roses4me]

I was researching hemoptysis today mostly because I had a pretty
large bleed last night. Not quite massive but scary. Her is the
link, just thought some of you would find it interesting.<br>
http://www.redorbit.com/news/health/216698/massive_hemoptysis_in_cystic_fibrosis/index.html?source=247

 

[Jane]

It does sound interesting, but I couldn't make the link work.<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[thelizardqueen]

Here's the link Jane:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.redorbit.com/news/h...html?source=247
">"><a target=_blank class=ftalternatingbarlinklarge href="http://www.redorbit.com/news/health/216698/massive_hemoptysis_in_cystic_fibrosis/index.html?source=247
<br ">http://www.redorbit.com/news/h...?source=247
</a></a>

I find it kind of funny, that it says it occures more frequently in "older" patients - older being 24.2 year og age. Guess that makes me old. LOL.

I also don't find this to be true: "Massive hemoptysis is a serious complication in CF patients, occurring more commonly in older patients with more advanced lung disease." - I had an episode of massive hemoptysis that required an embolization, and I don't have advanced lung disease, nor do I have Staph (Staph was mentioned in the article as well as being a trigger). Although it does mention that it can happen to people with mild lung disease.

This article is definitly a really good read though. I think I'll be printing it out to have on hand.

Edited to add: I also found it interesting that if you have CFRD you are more prone to Hemoptysis. Very interesting.

 

[thelizardqueen]

Its also noted, that those with a severe Hemoptysis (like myself), had a significan drop in FEV1. This makes sense to me, as before my episode 2 years ago my FEV1 was in the 80s, and following I've dropped to the 60s - 70s.

 

[ladybug]

I didn't realize this could cause asphixiation (? spelling)! Is this common for CFers? Do many actually die from this?

 

[Diane]

Yes, unfortunately people do die from that . I dont think its too common, but it does happen. So sad for anyone to go like that <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[anonymous]

I am 28 w/cf and I have massive hemoptysis. I have had 6 lung embolizations in the last 2 years. Ugghh, I know. I just started on a very new medicine called Tranexamic Acid. My doctor could only find two case studies of cf'ers who have used this. It is a coagulent, blood clotting med. I have been on it for two weeks and have coughed up blood once. This is great compared to the last two months, where I was coughing up blood every other day. Look into it. I hope it works!

Alaina

 

[coltsfan715]

I know this may seem like a dumb question to many, but I have been fortunate enough (knock on wood) to have not experienced a major bleed. I was wondering what exactly an embolization was? I have heard and read many people on here saying they had to have them done, but have not had one nor have I asked about one. I was mainly just curious.

Thanks ahead of time.
Lindsey

 

[Allisa35]

I can luckily say I have never had any major bleed. I have had a few streaks of blood here and there, but nothing where I have ever coughed up pure blood (thank goodness). I'm 35 and my last FEV1 was 1.57 liter (don't remember the percentage) and I have Staph, so I guess I should consider myself very lucky.

Lindsey, I think an embolization is where they go in and cauterize the artery to stop it from bleeding. Not sure, but I think that's what it is. My sister almost had to have it done but ended up not having to do it.

 

[lightNlife]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i> Yes, unfortunately
people do die from that . I dont think its too common, but it does
happen. So sad for anyone to go like that <img src="i/expressions/face-icon-small-sad.gif" border="0"></end quote></div><br>
<br>
Technically speaking, everyone dies of intrinsic asphyxiation.

 

[thelizardqueen]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>

I was wondering what exactly an embolization was?</end quote></div>

Here Lindsay - hope this helps:

<a target=_blank class=ftalternatingbarlinklarge href="http://neuro.wehealny.org/endo/proc_embolizations.asp
">http://neuro.wehealny.org/endo/proc_embolizations.asp
</a>
"During the embolization procedure, the physician inserts a catheter through a tiny incision in the skin of the groin into the femoral artery, a large blood vessel in the leg. Using fluoroscopy or x-ray guidance, the catheter is navigated to the site of the abnormality, by way of the circulatory system's network of blood vessels, until the tip of the catheter is positioned at the problem site.

Next, an embolizing agent - a material used to seal the blood vessel - is injected through the catheter. There are a variety of embolic agents used depending on the specific requirements. They include: small plastic particles, glue, metal coils, foam and/or a balloon; each has a specific use depending on the vascular disorder being treated."

 

[coltsfan715]

Thanks a ton Liz. I appreciate it.

Lindsey