Hemoptysis while on Tobi

awagner

New member
Has anyone every experienced blood in their sputum while on Tobi? I just started having blood for the first 1-2 coughs then the rest is clear of blood. Is this normal? I have been on Tobi for 9 days and started to see blood on day 7. My cough has not increased and I do not feel short of breath. Just wondering if this is the Tobi or is an infection coming on.
 

awagner

New member
Has anyone every experienced blood in their sputum while on Tobi? I just started having blood for the first1-2 coughs then the rest is clear of blood. Is this normal? I have been on Tobi for 9 days and started to see blood on day 7. My cough has not increased and I do not feel short of breath. Just wondering if this is the Tobi or is an infection coming on.
 

awagner

New member
<BR>Has anyone every experienced blood in their sputum while on Tobi? I just started having blood for the first1-2 coughs then the rest is clear of blood. Is this normal? I have been on Tobi for 9 days and started to see blood on day 7. My cough has not increased and I do not feel short of breath. Just wondering if this is the Tobi or is an infection coming on.
 

Jane

Digital opinion leader
My son Josh always gets some blood after 3 days of tobi. For years the docs didn't believe the tobi was causing the problem until we documented it for about 4 cycles. Now they do.
 

Jane

Digital opinion leader
My son Josh always gets some blood after 3 days of tobi. For years the docs didn't believe the tobi was causing the problem until we documented it for about 4 cycles. Now they do.
 

Jane

Digital opinion leader
My son Josh always gets some blood after 3 days of tobi. For years the docs didn't believe the tobi was causing the problem until we documented it for about 4 cycles. Now they do.
 

coltsfan715

New member
I used to get the same thing after about a week. It got to the point that I ended up doing (per doctors orders) two weeks on two weeks off TOBI instead of the normal 1 month on 1 month off.

I had that every time I used TOBI pre transplant ... as a side note I have had to take TOBI twice post transplant and have not had the same occurrence.

Lindsey
 

coltsfan715

New member
I used to get the same thing after about a week. It got to the point that I ended up doing (per doctors orders) two weeks on two weeks off TOBI instead of the normal 1 month on 1 month off.

I had that every time I used TOBI pre transplant ... as a side note I have had to take TOBI twice post transplant and have not had the same occurrence.

Lindsey
 

coltsfan715

New member
I used to get the same thing after about a week. It got to the point that I ended up doing (per doctors orders) two weeks on two weeks off TOBI instead of the normal 1 month on 1 month off.
<br />
<br />I had that every time I used TOBI pre transplant ... as a side note I have had to take TOBI twice post transplant and have not had the same occurrence.
<br />
<br />Lindsey
 
Top