Hey gang...

[mom2my3kids]

Hey CF Family,

Where do I start? Let's see after the death of my son Xander almost 11 months ago my older two kiddos were tested and "thought" to be only carriers. However, since my daughter Dakota has increasingly began to show symptoms that mimicked her brother we had her test repeated. Turns out she does indeed have CF...

I do not know how to feel...numb, angry, or what...will CF steal yet another child of mine from me or I pray to God a cure will be found to save my daughter?

Anyways, not that I ever left (because CF would always be a part of my life) but I am back now.

Jana

 

[mom2my3kids]

Hey CF Family,

Where do I start? Let's see after the death of my son Xander almost 11 months ago my older two kiddos were tested and "thought" to be only carriers. However, since my daughter Dakota has increasingly began to show symptoms that mimicked her brother we had her test repeated. Turns out she does indeed have CF...

I do not know how to feel...numb, angry, or what...will CF steal yet another child of mine from me or I pray to God a cure will be found to save my daughter?

Anyways, not that I ever left (because CF would always be a part of my life) but I am back now.

Jana

 

[mom2my3kids]

Hey CF Family,
<br />
<br />Where do I start? Let's see after the death of my son Xander almost 11 months ago my older two kiddos were tested and "thought" to be only carriers. However, since my daughter Dakota has increasingly began to show symptoms that mimicked her brother we had her test repeated. Turns out she does indeed have CF...
<br />
<br />I do not know how to feel...numb, angry, or what...will CF steal yet another child of mine from me or I pray to God a cure will be found to save my daughter?
<br />
<br />Anyways, not that I ever left (because CF would always be a part of my life) but I am back now.
<br />
<br />Jana

 

[auntcob]

Hi Jana--

Don't know what to say exactly--welcome back doesn't seem entirely fitting. My prayers and good thoughts to you and your family. I sincerely hope the CF journey with your Dakota takes a different path...

 

[auntcob]

Hi Jana--

Don't know what to say exactly--welcome back doesn't seem entirely fitting. My prayers and good thoughts to you and your family. I sincerely hope the CF journey with your Dakota takes a different path...

 

[auntcob]

Hi Jana--
<br />
<br />Don't know what to say exactly--welcome back doesn't seem entirely fitting. My prayers and good thoughts to you and your family. I sincerely hope the CF journey with your Dakota takes a different path...

 

[JORDYSMOM]

I'm sorry, Jana. It is good to have a dx, but I can only imagine how difficult this is for you.

<img src="i/expressions/heart.gif" border="0">

Stacey

 

[JORDYSMOM]

I'm sorry, Jana. It is good to have a dx, but I can only imagine how difficult this is for you.

<img src="i/expressions/heart.gif" border="0">

Stacey

 

[JORDYSMOM]

I'm sorry, Jana. It is good to have a dx, but I can only imagine how difficult this is for you.
<br />
<br /><img src="i/expressions/heart.gif" border="0">
<br />
<br />Stacey

 

[Mommafirst]

Oh Jana -- I have real tears upon reading this. I'm so sorry. You so deserve to have your other kiddos be CF-free. I'm so sorry you're "back". This sucks. I hope Dakota does well, stays healthy and is ready for a cure.


((((HUGS))))

 

[Mommafirst]

Oh Jana -- I have real tears upon reading this. I'm so sorry. You so deserve to have your other kiddos be CF-free. I'm so sorry you're "back". This sucks. I hope Dakota does well, stays healthy and is ready for a cure.


((((HUGS))))

 

[Mommafirst]

Oh Jana -- I have real tears upon reading this. I'm so sorry. You so deserve to have your other kiddos be CF-free. I'm so sorry you're "back". This sucks. I hope Dakota does well, stays healthy and is ready for a cure.
<br />
<br />
<br />((((HUGS))))

 

[thinker]

I didn't realize a child could be lost at such a young age with CF. How does that happen? Is there signs to watch out for due to this? I have a child who is 2. He looks sickly to me all the time. He gets tired out very easily. Would the Doctors tell you I think he won't live long?
I hope you don't mind me asking these questions.
I just found this website after having the CF stuff about 9 months and I didn't realize I could find out so much information here.
I thought I was doing ok but I think I need more help than I thought. We do the treatments everyday and go to all the doctors appts but I am thinking maybe I am doing something wrong.
I am so overwhelmed with my day to day I just don't have time to research this like I would like as well. How do others do this with so little time left at the end of the day?
Thanks

 

[thinker]

I didn't realize a child could be lost at such a young age with CF. How does that happen? Is there signs to watch out for due to this? I have a child who is 2. He looks sickly to me all the time. He gets tired out very easily. Would the Doctors tell you I think he won't live long?
I hope you don't mind me asking these questions.
I just found this website after having the CF stuff about 9 months and I didn't realize I could find out so much information here.
I thought I was doing ok but I think I need more help than I thought. We do the treatments everyday and go to all the doctors appts but I am thinking maybe I am doing something wrong.
I am so overwhelmed with my day to day I just don't have time to research this like I would like as well. How do others do this with so little time left at the end of the day?
Thanks

 

[thinker]

I didn't realize a child could be lost at such a young age with CF. How does that happen? Is there signs to watch out for due to this? I have a child who is 2. He looks sickly to me all the time. He gets tired out very easily. Would the Doctors tell you I think he won't live long?
<br />I hope you don't mind me asking these questions.
<br />I just found this website after having the CF stuff about 9 months and I didn't realize I could find out so much information here.
<br />I thought I was doing ok but I think I need more help than I thought. We do the treatments everyday and go to all the doctors appts but I am thinking maybe I am doing something wrong.
<br />I am so overwhelmed with my day to day I just don't have time to research this like I would like as well. How do others do this with so little time left at the end of the day?
<br />Thanks

 

[kitomd21]

Jana, I know you're aware that I think of your family often...I'm just so heavy-hearted that you're facing this yet again. Prayers and hugs.

 

[kitomd21]

Jana, I know you're aware that I think of your family often...I'm just so heavy-hearted that you're facing this yet again. Prayers and hugs.

 

[kitomd21]

Jana, I know you're aware that I think of your family often...I'm just so heavy-hearted that you're facing this yet again. Prayers and hugs.

 

[ashmomo]

I am so sorry to hear this. I hope she will live a long happy life with you. I aslo still think of you and your baby Xander. So sorry...hope you are doing okay. PM me if you need to chat.

 

[ashmomo]

I am so sorry to hear this. I hope she will live a long happy life with you. I aslo still think of you and your baby Xander. So sorry...hope you are doing okay. PM me if you need to chat.