hi - new here

M

Mommafirst

Guest
Hi Sarah, Welcome!!

My daughter was diagnosed late last June, and I'm still longing for Italy too!! I'm sorry you had a tough year. Ours was tougher than the doctor's had expected, but all-in-all could have been worse (trying to keep perspective). I'm sure you will appreciate the people on this site, I have found unending information and support.
 

Samsmom

New member
Hi Sarah, and welcome to the site. My daughter was diagnoses last spring at age 12 and we are missing Italy very much, but adjusting also. You will find loads of info. and support here. Take it one day at a time and stop to smell the tulips!!!
 

Samsmom

New member
Hi Sarah, and welcome to the site. My daughter was diagnoses last spring at age 12 and we are missing Italy very much, but adjusting also. You will find loads of info. and support here. Take it one day at a time and stop to smell the tulips!!!
 

Samsmom

New member
Hi Sarah, and welcome to the site. My daughter was diagnoses last spring at age 12 and we are missing Italy very much, but adjusting also. You will find loads of info. and support here. Take it one day at a time and stop to smell the tulips!!!
 

janddburke

New member
Where did that Welcome to Holland post come from? did you make it up?
my niece just got diagnosed with Diabetes and I'd love to send it to my SIL.
She is a little overwhelmed right now and I couldn't possibly understand how she feels.
Isn't that a riot!!!!!!!
I just told her basically what I tell everyone else. Jess is a KID with CF. KID comes first. just don't lose sight of that.
 

janddburke

New member
Where did that Welcome to Holland post come from? did you make it up?
my niece just got diagnosed with Diabetes and I'd love to send it to my SIL.
She is a little overwhelmed right now and I couldn't possibly understand how she feels.
Isn't that a riot!!!!!!!
I just told her basically what I tell everyone else. Jess is a KID with CF. KID comes first. just don't lose sight of that.
 

janddburke

New member
Where did that Welcome to Holland post come from? did you make it up?
my niece just got diagnosed with Diabetes and I'd love to send it to my SIL.
She is a little overwhelmed right now and I couldn't possibly understand how she feels.
Isn't that a riot!!!!!!!
I just told her basically what I tell everyone else. Jess is a KID with CF. KID comes first. just don't lose sight of that.
 
M

Mommafirst

Guest
Welcome to Holland was written by Emily Kingley and there was a follow up written by another author.

I'll see if I can grab them both...

WELCOME TO HOLLAND
by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things .. about Holland.


CELEBRATING HOLLAND - I'M HOME
By Cathy Anthony



I have been in Holland for over a decade now. It has become home. I have had time to catch my breath, to settle and adjust, to accept something different than I'd planned.


I reflect back on those years of past when I had first landed in Holland. I remember clearly my shock, my fear, my anger - the pain and uncertainty. In those first few years, I tried to get back to Italy as planned, but Holland was where I was to stay. Today, I can say how far I have come on this unexpected journey. I have learned so much more. But, this too has been a journey of time.


I worked hard. I bought new guidebooks. I learned a new language and I slowly found my way around this new land. I have met others whose plans had changed like mine, and who could share my experience. We supported one another and some have become very special friends.

Some of these fellow travelers had been in Holland longer than I and were seasoned guides, assisting me along the way. Many have encouraged me. Many have taught me to open my eyes to the wonder and gifts to behold in this new land. I have discovered a community of caring. Holland wasn't so bad.


I think that Holland is used to wayward travelers like me and grew to become a land of hospitality, reaching out to welcome, to assist and to support newcomers like me in this new land. Over the years, I've wondered what life would have been like if I'd landed in Italy as planned. Would life have been easier? Would it have been as rewarding? Would I have learned some of the important lessons I hold today?

Sure, this journey has been more challenging and at times I would (and still do) stomp my feet and cry out in frustration and protest.


And, yes, Holland is slower paced than Italy and less flashy than Italy, but this too has been an unexpected gift. I have learned to slow down in ways too and look closer at things with a new appreciation for the remarkable beauty of Holland with its' tulips, windmills and Rembrandt's.


I have come to love Holland and call it Home.

I have become a world traveler and discovered that it doesn't matter where you land. What's more important is what you make of your journey and how you see and enjoy the very special, the very lovely, things that Holland, or any land, has to offer.


Yes, over a decade ago I landed in a place I hadn't planned. Yet I am thankful, for this destination has been richer than I could have imagined!
 
M

Mommafirst

Guest
Welcome to Holland was written by Emily Kingley and there was a follow up written by another author.

I'll see if I can grab them both...

WELCOME TO HOLLAND
by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things .. about Holland.


CELEBRATING HOLLAND - I'M HOME
By Cathy Anthony



I have been in Holland for over a decade now. It has become home. I have had time to catch my breath, to settle and adjust, to accept something different than I'd planned.


I reflect back on those years of past when I had first landed in Holland. I remember clearly my shock, my fear, my anger - the pain and uncertainty. In those first few years, I tried to get back to Italy as planned, but Holland was where I was to stay. Today, I can say how far I have come on this unexpected journey. I have learned so much more. But, this too has been a journey of time.


I worked hard. I bought new guidebooks. I learned a new language and I slowly found my way around this new land. I have met others whose plans had changed like mine, and who could share my experience. We supported one another and some have become very special friends.

Some of these fellow travelers had been in Holland longer than I and were seasoned guides, assisting me along the way. Many have encouraged me. Many have taught me to open my eyes to the wonder and gifts to behold in this new land. I have discovered a community of caring. Holland wasn't so bad.


I think that Holland is used to wayward travelers like me and grew to become a land of hospitality, reaching out to welcome, to assist and to support newcomers like me in this new land. Over the years, I've wondered what life would have been like if I'd landed in Italy as planned. Would life have been easier? Would it have been as rewarding? Would I have learned some of the important lessons I hold today?

Sure, this journey has been more challenging and at times I would (and still do) stomp my feet and cry out in frustration and protest.


And, yes, Holland is slower paced than Italy and less flashy than Italy, but this too has been an unexpected gift. I have learned to slow down in ways too and look closer at things with a new appreciation for the remarkable beauty of Holland with its' tulips, windmills and Rembrandt's.


I have come to love Holland and call it Home.

I have become a world traveler and discovered that it doesn't matter where you land. What's more important is what you make of your journey and how you see and enjoy the very special, the very lovely, things that Holland, or any land, has to offer.


Yes, over a decade ago I landed in a place I hadn't planned. Yet I am thankful, for this destination has been richer than I could have imagined!
 
M

Mommafirst

Guest
Welcome to Holland was written by Emily Kingley and there was a follow up written by another author.

I'll see if I can grab them both...

WELCOME TO HOLLAND
by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things .. about Holland.


CELEBRATING HOLLAND - I'M HOME
By Cathy Anthony



I have been in Holland for over a decade now. It has become home. I have had time to catch my breath, to settle and adjust, to accept something different than I'd planned.


I reflect back on those years of past when I had first landed in Holland. I remember clearly my shock, my fear, my anger - the pain and uncertainty. In those first few years, I tried to get back to Italy as planned, but Holland was where I was to stay. Today, I can say how far I have come on this unexpected journey. I have learned so much more. But, this too has been a journey of time.


I worked hard. I bought new guidebooks. I learned a new language and I slowly found my way around this new land. I have met others whose plans had changed like mine, and who could share my experience. We supported one another and some have become very special friends.

Some of these fellow travelers had been in Holland longer than I and were seasoned guides, assisting me along the way. Many have encouraged me. Many have taught me to open my eyes to the wonder and gifts to behold in this new land. I have discovered a community of caring. Holland wasn't so bad.


I think that Holland is used to wayward travelers like me and grew to become a land of hospitality, reaching out to welcome, to assist and to support newcomers like me in this new land. Over the years, I've wondered what life would have been like if I'd landed in Italy as planned. Would life have been easier? Would it have been as rewarding? Would I have learned some of the important lessons I hold today?

Sure, this journey has been more challenging and at times I would (and still do) stomp my feet and cry out in frustration and protest.


And, yes, Holland is slower paced than Italy and less flashy than Italy, but this too has been an unexpected gift. I have learned to slow down in ways too and look closer at things with a new appreciation for the remarkable beauty of Holland with its' tulips, windmills and Rembrandt's.


I have come to love Holland and call it Home.

I have become a world traveler and discovered that it doesn't matter where you land. What's more important is what you make of your journey and how you see and enjoy the very special, the very lovely, things that Holland, or any land, has to offer.


Yes, over a decade ago I landed in a place I hadn't planned. Yet I am thankful, for this destination has been richer than I could have imagined!
 

craigsmum

New member
Hi Sarah

Welcome to you. Everyone is great on here. My son Craig was diagnosed almost two years ago. I'm just starting to come on here as well.

Liz
 

craigsmum

New member
Hi Sarah

Welcome to you. Everyone is great on here. My son Craig was diagnosed almost two years ago. I'm just starting to come on here as well.

Liz
 

craigsmum

New member
Hi Sarah

Welcome to you. Everyone is great on here. My son Craig was diagnosed almost two years ago. I'm just starting to come on here as well.

Liz
 
2

2perfectboys

Guest
Welcome Sarah,

Yes I've been to Holland too. Holland does have a lot of promise, at least I did not end up in Cuba, Irag or Norh Korea. Now that's a real bleak future.

Lori
 
2

2perfectboys

Guest
Welcome Sarah,

Yes I've been to Holland too. Holland does have a lot of promise, at least I did not end up in Cuba, Irag or Norh Korea. Now that's a real bleak future.

Lori
 
2

2perfectboys

Guest
Welcome Sarah,

Yes I've been to Holland too. Holland does have a lot of promise, at least I did not end up in Cuba, Irag or Norh Korea. Now that's a real bleak future.

Lori
 

lilismom

Active member
thanks all for your warm welcome to this forum. Lili's cf diagnosis has gotten harder for me now that she is asking more questions about it and saying she wishes she didn't have it - it breaks my heart. She is a true gift to us - very kind, thoughtful beyond her years and very silly.
funny about your SIL, people just don't have a clue if they don't have a family member with a chronic illness or disability, I guess I didn't either before Lili's diagnosis last year.
 

lilismom

Active member
thanks all for your warm welcome to this forum. Lili's cf diagnosis has gotten harder for me now that she is asking more questions about it and saying she wishes she didn't have it - it breaks my heart. She is a true gift to us - very kind, thoughtful beyond her years and very silly.
funny about your SIL, people just don't have a clue if they don't have a family member with a chronic illness or disability, I guess I didn't either before Lili's diagnosis last year.
 

lilismom

Active member
thanks all for your warm welcome to this forum. Lili's cf diagnosis has gotten harder for me now that she is asking more questions about it and saying she wishes she didn't have it - it breaks my heart. She is a true gift to us - very kind, thoughtful beyond her years and very silly.
funny about your SIL, people just don't have a clue if they don't have a family member with a chronic illness or disability, I guess I didn't either before Lili's diagnosis last year.
 

kayleesgrandma

New member
Welcome Sarah, I'm sorry, I missed your post somehow. You will find so much support here. We are a large, sometimes dysfunctional, but always "there for you" family here. I hope to hear more about you and your family, set up a blog soon! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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