Georgiatwins
New member
I just joined this site and saw this post, and as I'm sure you've now found out whether or not it IS CF since this was posted back in June, but thought I would add that I have identical twin girls and both newborn screens showed elevated IRT levels. The Neonatalogists kept telling us not to worry because they were often elevated in preemies (my girls were born at 33w5d due to Mono/Mono pregnancy -- same sac, twisted cords) and that it was probably a false positive. One of my daughters had to have emergency surgery at 3 days old due to a twisted bowel...they never said it was MI. The surgeon said that she may have suggested CF had it not been for the fact that the meconium that she pushed out of her intestine was in no way showing the typical signs of CF. It wasn't sticky, or gooey, it slid right out :0/ sooo, we kinda kept the thought in the back of our minds and didn't think any more about it. They ended up doing a DNA test to follow up on the elevated IRT levels and it showed that it was indeed CF. We found out the news at our first pediatricians appt. She had just received the results of the DNA test and it confirmed our worst fears. Both of my girls, being that they are identical, carry a double mutation of the Delta F508 gene. Neither my husband nor I knew that we were carriers of the defective gene. We've come to accept that our girls will have a frustrating life, but we'll be there with them every step of the way...all the way to a cure which I hope will be found within their lifetime! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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<br />Good Luck! :0
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<br />Good Luck! :0