Hey Annie,
I was told that I am not a typical person that gets put on the list. Up until July I was working between 24-36 hours a week as an ER nurse and living a fairly normal life. However, I have been on 3 weeks of IV abx every 6 weeks like clockwork for the last 2 years and my lungs have taken a beating, plus I have a huge pneumothorax that wont go away. Even though I maintain my o2 well, I only need o2 during bad exacerbations, my lungs are to scarred to work anymore. I would ask why your doctors dont think you are "sick enough" if you are on o2 constantly and have had 6 exacerbations this year. Have they atleast started the work up for a transplant?
I was told that I am not a typical person that gets put on the list. Up until July I was working between 24-36 hours a week as an ER nurse and living a fairly normal life. However, I have been on 3 weeks of IV abx every 6 weeks like clockwork for the last 2 years and my lungs have taken a beating, plus I have a huge pneumothorax that wont go away. Even though I maintain my o2 well, I only need o2 during bad exacerbations, my lungs are to scarred to work anymore. I would ask why your doctors dont think you are "sick enough" if you are on o2 constantly and have had 6 exacerbations this year. Have they atleast started the work up for a transplant?