Holiday Stress

[Rebjane]

This time of year seems hard every year. Cold and flu season; plus having to visit family buy presents, work and continue with the day to day CF care. Trying to keep positive but twice yesterday I felt weepy..Not like me at all..It feels like an uphill battle. AND it's not even that bad. THings have been worse.

Maggie has had an ear infection going on near 17 days of augmentin; thought we were almost in the clear this past weekend and now she has a dry cough...acting pretty normal but just that insidious inflammation acting up...I'm going to give her more time, maybe til Monday to check in with her Cf doc; knowing that if I call he'll put her on Zyvox; great just in time for the holidays... Maggie is such a good kid, so positive and happy, both of my kids are..Sammy(my 12 year old) is getting straight A in all his classes in the highest level. I feel lucky just frustrated that this is the way it is. A neverending up hill battle. Thanks for listening, just feeling uncertain about the future.

 

[Rebjane]

This time of year seems hard every year. Cold and flu season; plus having to visit family buy presents, work and continue with the day to day CF care. Trying to keep positive but twice yesterday I felt weepy..Not like me at all..It feels like an uphill battle. AND it's not even that bad. THings have been worse.

Maggie has had an ear infection going on near 17 days of augmentin; thought we were almost in the clear this past weekend and now she has a dry cough...acting pretty normal but just that insidious inflammation acting up...I'm going to give her more time, maybe til Monday to check in with her Cf doc; knowing that if I call he'll put her on Zyvox; great just in time for the holidays... Maggie is such a good kid, so positive and happy, both of my kids are..Sammy(my 12 year old) is getting straight A in all his classes in the highest level. I feel lucky just frustrated that this is the way it is. A neverending up hill battle. Thanks for listening, just feeling uncertain about the future.

 

[Rebjane]

This time of year seems hard every year. Cold and flu season; plus having to visit family buy presents, work and continue with the day to day CF care. Trying to keep positive but twice yesterday I felt weepy..Not like me at all..It feels like an uphill battle. AND it's not even that bad. THings have been worse.
<br />
<br />Maggie has had an ear infection going on near 17 days of augmentin; thought we were almost in the clear this past weekend and now she has a dry cough...acting pretty normal but just that insidious inflammation acting up...I'm going to give her more time, maybe til Monday to check in with her Cf doc; knowing that if I call he'll put her on Zyvox; great just in time for the holidays... Maggie is such a good kid, so positive and happy, both of my kids are..Sammy(my 12 year old) is getting straight A in all his classes in the highest level. I feel lucky just frustrated that this is the way it is. A neverending up hill battle. Thanks for listening, just feeling uncertain about the future.
<br />
<br />

 

[Ratatosk]

You're not alone. I love seeing the holidays thru DS' eyes, he's so excited about decorations, presents..

Just wish I didn't have to worry about illness (waiting for the other shoe to drop), family drama, pulled in different directions, weather, christmas programs, birthday parties, cf event. And I'm pretty much wishing my life away, thinking that if I can just get thru this thing or that, I can breathe a sigh of relief.

 

[Ratatosk]

You're not alone. I love seeing the holidays thru DS' eyes, he's so excited about decorations, presents..

Just wish I didn't have to worry about illness (waiting for the other shoe to drop), family drama, pulled in different directions, weather, christmas programs, birthday parties, cf event. And I'm pretty much wishing my life away, thinking that if I can just get thru this thing or that, I can breathe a sigh of relief.

 

[Ratatosk]

You're not alone. I love seeing the holidays thru DS' eyes, he's so excited about decorations, presents..
<br />
<br />Just wish I didn't have to worry about illness (waiting for the other shoe to drop), family drama, pulled in different directions, weather, christmas programs, birthday parties, cf event. And I'm pretty much wishing my life away, thinking that if I can just get thru this thing or that, I can breathe a sigh of relief.

 

[JORDYSMOM]

It's a very stressful time of year! I have enough trouble keeping my anxiety disorder under control in normal circumstances. Add in all of the extra expense, activities, and running around, and I'm just a mess.

I know what you mean, Liza, about wishing your life away. I've been saying for years - If I can just get to this point, I can relax. Then, If we can just get past this, things will calm down. The fact is, CF isn't going away, and every year Jordan gets older, it gets harder for me. I mean I try not to think about it, but it's always there.

It does help to know that I'm not the only one dealing with these issues. <img src="i/expressions/heart.gif" border="0">

Stacey

 

[JORDYSMOM]

It's a very stressful time of year! I have enough trouble keeping my anxiety disorder under control in normal circumstances. Add in all of the extra expense, activities, and running around, and I'm just a mess.

I know what you mean, Liza, about wishing your life away. I've been saying for years - If I can just get to this point, I can relax. Then, If we can just get past this, things will calm down. The fact is, CF isn't going away, and every year Jordan gets older, it gets harder for me. I mean I try not to think about it, but it's always there.

It does help to know that I'm not the only one dealing with these issues. <img src="i/expressions/heart.gif" border="0">

Stacey

 

[JORDYSMOM]

It's a very stressful time of year! I have enough trouble keeping my anxiety disorder under control in normal circumstances. Add in all of the extra expense, activities, and running around, and I'm just a mess.
<br />
<br />I know what you mean, Liza, about wishing your life away. I've been saying for years - If I can just get to this point, I can relax. Then, If we can just get past this, things will calm down. The fact is, CF isn't going away, and every year Jordan gets older, it gets harder for me. I mean I try not to think about it, but it's always there.
<br />
<br />It does help to know that I'm not the only one dealing with these issues. <img src="i/expressions/heart.gif" border="0">
<br />
<br />Stacey

 

[KAC1210]

You certainly are not alone. This time of the year is very hard. It is cold out so , I feel like I need to stay in to avoid cold bugs. But then I feel alone and like I am making the boys miss out on thing. We have recently had issues with my husband's parents about them smoking in their house. But it's always hard and its not going anywhere. CF sucks and if people don't have to deal with it everyday they just aren't gonna get it. They don't see all the time spent on treatments and all the medicine given daily. It's so scary and sometimes I just feel so alone. I don't feel like anyone in the family cares enough about my son. They just make me feel like he is not worth it to them... its sad.

 

[KAC1210]

You certainly are not alone. This time of the year is very hard. It is cold out so , I feel like I need to stay in to avoid cold bugs. But then I feel alone and like I am making the boys miss out on thing. We have recently had issues with my husband's parents about them smoking in their house. But it's always hard and its not going anywhere. CF sucks and if people don't have to deal with it everyday they just aren't gonna get it. They don't see all the time spent on treatments and all the medicine given daily. It's so scary and sometimes I just feel so alone. I don't feel like anyone in the family cares enough about my son. They just make me feel like he is not worth it to them... its sad.

 

[KAC1210]

You certainly are not alone. This time of the year is very hard. It is cold out so , I feel like I need to stay in to avoid cold bugs. But then I feel alone and like I am making the boys miss out on thing. We have recently had issues with my husband's parents about them smoking in their house. But it's always hard and its not going anywhere. CF sucks and if people don't have to deal with it everyday they just aren't gonna get it. They don't see all the time spent on treatments and all the medicine given daily. It's so scary and sometimes I just feel so alone. I don't feel like anyone in the family cares enough about my son. They just make me feel like he is not worth it to them... its sad.

 

[hmw]

<div class="FTQUOTE"><begin quote>I know what you mean, Liza, about wishing your life away. I've been saying for years - If I can just get to this point, I can relax. Then, If we can just get past this, things will calm down. The fact is, CF isn't going away, and every year Jordan gets older, it gets harder for me. I mean I try not to think about it, but it's always there.</end quote></div>
Oh this just really resonated with me tonight. Nothing to do with time of year or holidays, but just... life and reality of late. My heart goes out to ALL here going through this, no matter the triggers for the extra stress... it's been a difficult time here too of late.

 

[hmw]

<div class="FTQUOTE"><begin quote>I know what you mean, Liza, about wishing your life away. I've been saying for years - If I can just get to this point, I can relax. Then, If we can just get past this, things will calm down. The fact is, CF isn't going away, and every year Jordan gets older, it gets harder for me. I mean I try not to think about it, but it's always there.</end quote>
Oh this just really resonated with me tonight. Nothing to do with time of year or holidays, but just... life and reality of late. My heart goes out to ALL here going through this, no matter the triggers for the extra stress... it's been a difficult time here too of late.

 

[hmw]

<div class="FTQUOTE"><begin quote>I know what you mean, Liza, about wishing your life away. I've been saying for years - If I can just get to this point, I can relax. Then, If we can just get past this, things will calm down. The fact is, CF isn't going away, and every year Jordan gets older, it gets harder for me. I mean I try not to think about it, but it's always there.</end quote>
<br />Oh this just really resonated with me tonight. Nothing to do with time of year or holidays, but just... life and reality of late. My heart goes out to ALL here going through this, no matter the triggers for the extra stress... it's been a difficult time here too of late.

 

[mneville]

Same here....We are usually very optimistic as well but lately I feel like I am floundering. I've been weepy and angry about all the demands of this CF life. Bills, pharmacies, PICCs,MRSA, doctor appts, missing work...it goes on and on. I am just overwhelmed and drained. Aidan is also having serious emotional issues with CF that are so heartbreaking.

I think I am going to talk to a counselor or something to try and get a handle on everything. I need to be my best to raise these kids to be their best and right now, I'm just not there....Hang in there, I'm trying...

Megan

 

[mneville]

Same here....We are usually very optimistic as well but lately I feel like I am floundering. I've been weepy and angry about all the demands of this CF life. Bills, pharmacies, PICCs,MRSA, doctor appts, missing work...it goes on and on. I am just overwhelmed and drained. Aidan is also having serious emotional issues with CF that are so heartbreaking.

I think I am going to talk to a counselor or something to try and get a handle on everything. I need to be my best to raise these kids to be their best and right now, I'm just not there....Hang in there, I'm trying...

Megan

 

[mneville]

Same here....We are usually very optimistic as well but lately I feel like I am floundering. I've been weepy and angry about all the demands of this CF life. Bills, pharmacies, PICCs,MRSA, doctor appts, missing work...it goes on and on. I am just overwhelmed and drained. Aidan is also having serious emotional issues with CF that are so heartbreaking.
<br />
<br />I think I am going to talk to a counselor or something to try and get a handle on everything. I need to be my best to raise these kids to be their best and right now, I'm just not there....Hang in there, I'm trying...
<br />
<br />Megan