lovemygirl
New member
Hi,
My daughter does really well with her CF and over the past couple of months has been the healthiest she has ever been. She came off her nebulizer a month ago and we were thrilled. She is 6 so we explained to her that she would have to go on it again some day. We were happy but we are also realistic.
About a week ago she got a fever and then it turned into a bad cough. We started antibiotics a few days ago but the cough is probably the worst we have seen yet. It is near 10pm and she is still awake in her bed. She's been trying to sleep for about 2 hours now and can't because she keeps coughing. I tried clapping which we haven't done for many months and then I brought out the PEP but that is not helping to loosen it up either. I'm sad and frustrated because there is nothing I can do to make her feel better and get the rest she needs.
I'm not looking for any advice...I just needed to vent. I know there are tougher times ahead but it is so hard to see her when she is not feeling well. It is tough when things are going so well and then turn so quickly and you don't even see it coming. I really hate this disease and wish I could take it from her.<img src="i/expressions/face-icon-small-sad.gif" border="0">
Friends, family and co-workers don't understand and on days like today it just seems to make it that much harder.
My daughter does really well with her CF and over the past couple of months has been the healthiest she has ever been. She came off her nebulizer a month ago and we were thrilled. She is 6 so we explained to her that she would have to go on it again some day. We were happy but we are also realistic.
About a week ago she got a fever and then it turned into a bad cough. We started antibiotics a few days ago but the cough is probably the worst we have seen yet. It is near 10pm and she is still awake in her bed. She's been trying to sleep for about 2 hours now and can't because she keeps coughing. I tried clapping which we haven't done for many months and then I brought out the PEP but that is not helping to loosen it up either. I'm sad and frustrated because there is nothing I can do to make her feel better and get the rest she needs.
I'm not looking for any advice...I just needed to vent. I know there are tougher times ahead but it is so hard to see her when she is not feeling well. It is tough when things are going so well and then turn so quickly and you don't even see it coming. I really hate this disease and wish I could take it from her.<img src="i/expressions/face-icon-small-sad.gif" border="0">
Friends, family and co-workers don't understand and on days like today it just seems to make it that much harder.