hospital question

tara · Nov 4, 2007

Hi Tonya,

Ask your CF Center what the recommend you bring, because based on the responses, every hospital is different. I agree with Lauren, one day's worth of meds is good because there's a lot of sitting and waiting during that first 24 hours. Keep a bottle of enzymes for your room, it's hard to get them when you need a snack sometimes.

I always bring my own vest because I like it better than the hospital disposable vests. That's the only "equipment" I bring. I've also been admitted once when there were so many CFers there was no vest for me! I had to use IPV instead. My hospital doesn't do manual CPT unless you ask for it.

I also pack the following:

Lysol Wipes to disinfect the whole room (call buttons, TV remote and door knobs for sure!)
Finger pricker (if Andrew is diabetic, the finger pricker in his accu check kit is easier on the fingers than the disposable hospital pricker.)
Favorite snacks
t-shirts, shorts and underwear
one outfit for leaving hospital grounds. (so I can look normal if I go out for lunch!)
toiletries (including soap, hospital grade = not so fun.)
own pillows with bright color pillow cases - hospital pillow are terrible! and the bright colors so they don't get thrown in the hospital laundry.
extra pillow cases so they stay fresh every few days
facial washcloths for the shower (the hospital grade are scratchy)
laptop
modem to get online (my hospital doesn't have WiFi)
movies
cell phone

I try and keep it minimal, but enough to entertain me and make me feel comfortable.

tara · Nov 4, 2007

Hi Tonya,

Ask your CF Center what the recommend you bring, because based on the responses, every hospital is different. I agree with Lauren, one day's worth of meds is good because there's a lot of sitting and waiting during that first 24 hours. Keep a bottle of enzymes for your room, it's hard to get them when you need a snack sometimes.

I always bring my own vest because I like it better than the hospital disposable vests. That's the only "equipment" I bring. I've also been admitted once when there were so many CFers there was no vest for me! I had to use IPV instead. My hospital doesn't do manual CPT unless you ask for it.

I also pack the following:

Lysol Wipes to disinfect the whole room (call buttons, TV remote and door knobs for sure!)
Finger pricker (if Andrew is diabetic, the finger pricker in his accu check kit is easier on the fingers than the disposable hospital pricker.)
Favorite snacks
t-shirts, shorts and underwear
one outfit for leaving hospital grounds. (so I can look normal if I go out for lunch!)
toiletries (including soap, hospital grade = not so fun.)
own pillows with bright color pillow cases - hospital pillow are terrible! and the bright colors so they don't get thrown in the hospital laundry.
extra pillow cases so they stay fresh every few days
facial washcloths for the shower (the hospital grade are scratchy)
laptop
modem to get online (my hospital doesn't have WiFi)
movies
cell phone

I try and keep it minimal, but enough to entertain me and make me feel comfortable.

tara · Nov 4, 2007

Hi Tonya,

Ask your CF Center what the recommend you bring, because based on the responses, every hospital is different. I agree with Lauren, one day's worth of meds is good because there's a lot of sitting and waiting during that first 24 hours. Keep a bottle of enzymes for your room, it's hard to get them when you need a snack sometimes.

I always bring my own vest because I like it better than the hospital disposable vests. That's the only "equipment" I bring. I've also been admitted once when there were so many CFers there was no vest for me! I had to use IPV instead. My hospital doesn't do manual CPT unless you ask for it.

I also pack the following:

Lysol Wipes to disinfect the whole room (call buttons, TV remote and door knobs for sure!)
Finger pricker (if Andrew is diabetic, the finger pricker in his accu check kit is easier on the fingers than the disposable hospital pricker.)
Favorite snacks
t-shirts, shorts and underwear
one outfit for leaving hospital grounds. (so I can look normal if I go out for lunch!)
toiletries (including soap, hospital grade = not so fun.)
own pillows with bright color pillow cases - hospital pillow are terrible! and the bright colors so they don't get thrown in the hospital laundry.
extra pillow cases so they stay fresh every few days
facial washcloths for the shower (the hospital grade are scratchy)
laptop
modem to get online (my hospital doesn't have WiFi)
movies
cell phone

I try and keep it minimal, but enough to entertain me and make me feel comfortable.

tara · Nov 4, 2007

Hi Tonya,

Ask your CF Center what the recommend you bring, because based on the responses, every hospital is different. I agree with Lauren, one day's worth of meds is good because there's a lot of sitting and waiting during that first 24 hours. Keep a bottle of enzymes for your room, it's hard to get them when you need a snack sometimes.

I always bring my own vest because I like it better than the hospital disposable vests. That's the only "equipment" I bring. I've also been admitted once when there were so many CFers there was no vest for me! I had to use IPV instead. My hospital doesn't do manual CPT unless you ask for it.

I also pack the following:

Lysol Wipes to disinfect the whole room (call buttons, TV remote and door knobs for sure!)
Finger pricker (if Andrew is diabetic, the finger pricker in his accu check kit is easier on the fingers than the disposable hospital pricker.)
Favorite snacks
t-shirts, shorts and underwear
one outfit for leaving hospital grounds. (so I can look normal if I go out for lunch!)
toiletries (including soap, hospital grade = not so fun.)
own pillows with bright color pillow cases - hospital pillow are terrible! and the bright colors so they don't get thrown in the hospital laundry.
extra pillow cases so they stay fresh every few days
facial washcloths for the shower (the hospital grade are scratchy)
laptop
modem to get online (my hospital doesn't have WiFi)
movies
cell phone

I try and keep it minimal, but enough to entertain me and make me feel comfortable.

tara · Nov 4, 2007

Hi Tonya,

Ask your CF Center what the recommend you bring, because based on the responses, every hospital is different. I agree with Lauren, one day's worth of meds is good because there's a lot of sitting and waiting during that first 24 hours. Keep a bottle of enzymes for your room, it's hard to get them when you need a snack sometimes.

I always bring my own vest because I like it better than the hospital disposable vests. That's the only "equipment" I bring. I've also been admitted once when there were so many CFers there was no vest for me! I had to use IPV instead. My hospital doesn't do manual CPT unless you ask for it.

I also pack the following:

Lysol Wipes to disinfect the whole room (call buttons, TV remote and door knobs for sure!)
Finger pricker (if Andrew is diabetic, the finger pricker in his accu check kit is easier on the fingers than the disposable hospital pricker.)
Favorite snacks
t-shirts, shorts and underwear
one outfit for leaving hospital grounds. (so I can look normal if I go out for lunch!)
toiletries (including soap, hospital grade = not so fun.)
own pillows with bright color pillow cases - hospital pillow are terrible! and the bright colors so they don't get thrown in the hospital laundry.
extra pillow cases so they stay fresh every few days
facial washcloths for the shower (the hospital grade are scratchy)
laptop
modem to get online (my hospital doesn't have WiFi)
movies
cell phone

I try and keep it minimal, but enough to entertain me and make me feel comfortable.

thelizardqueen · Nov 5, 2007

With my hospital, they are perfectly fine if you bring in your own meds, or they're equally fine if you don't, because they can simply order it up from the pharmacy for you. When I'm in, I only bring a days worth of my meds with me, and all of my insulin *as I self administer that*, and they supply me with what I need when I need it for the remainder of my stay. My acapella I bring in though only if I feel I need an extra session of physio when my physio guy isn't around.

thelizardqueen · Nov 5, 2007

With my hospital, they are perfectly fine if you bring in your own meds, or they're equally fine if you don't, because they can simply order it up from the pharmacy for you. When I'm in, I only bring a days worth of my meds with me, and all of my insulin *as I self administer that*, and they supply me with what I need when I need it for the remainder of my stay. My acapella I bring in though only if I feel I need an extra session of physio when my physio guy isn't around.

thelizardqueen · Nov 5, 2007

With my hospital, they are perfectly fine if you bring in your own meds, or they're equally fine if you don't, because they can simply order it up from the pharmacy for you. When I'm in, I only bring a days worth of my meds with me, and all of my insulin *as I self administer that*, and they supply me with what I need when I need it for the remainder of my stay. My acapella I bring in though only if I feel I need an extra session of physio when my physio guy isn't around.

thelizardqueen · Nov 5, 2007

With my hospital, they are perfectly fine if you bring in your own meds, or they're equally fine if you don't, because they can simply order it up from the pharmacy for you. When I'm in, I only bring a days worth of my meds with me, and all of my insulin *as I self administer that*, and they supply me with what I need when I need it for the remainder of my stay. My acapella I bring in though only if I feel I need an extra session of physio when my physio guy isn't around.

thelizardqueen · Nov 5, 2007

With my hospital, they are perfectly fine if you bring in your own meds, or they're equally fine if you don't, because they can simply order it up from the pharmacy for you. When I'm in, I only bring a days worth of my meds with me, and all of my insulin *as I self administer that*, and they supply me with what I need when I need it for the remainder of my stay. My acapella I bring in though only if I feel I need an extra session of physio when my physio guy isn't around.

izemmom · Nov 5, 2007

Yep, bring a day's worth of meds and enzymes as the delay in getting them from the hospl pharmacy can put you behind "schedule". I also always take the pari neb cup that we were told is needed for Pulmozyme since the hopsital only ever gives us disposables, and that's not supposed to be right or Pulmo. Also, when gettting inhaled meds from the hospital pharm. jsut check to be sure that they were regrigerated (if they are supposed to be). Our last admit (which was for g-tube placement, not a tune up...) I was handed a warm pulmozyme vial...ummmm, no thanks. Luckily I had stashed one from home in my "refreshements" cooler.

izemmom · Nov 5, 2007

Yep, bring a day's worth of meds and enzymes as the delay in getting them from the hospl pharmacy can put you behind "schedule". I also always take the pari neb cup that we were told is needed for Pulmozyme since the hopsital only ever gives us disposables, and that's not supposed to be right or Pulmo. Also, when gettting inhaled meds from the hospital pharm. jsut check to be sure that they were regrigerated (if they are supposed to be). Our last admit (which was for g-tube placement, not a tune up...) I was handed a warm pulmozyme vial...ummmm, no thanks. Luckily I had stashed one from home in my "refreshements" cooler.

izemmom · Nov 5, 2007

Yep, bring a day's worth of meds and enzymes as the delay in getting them from the hospl pharmacy can put you behind "schedule". I also always take the pari neb cup that we were told is needed for Pulmozyme since the hopsital only ever gives us disposables, and that's not supposed to be right or Pulmo. Also, when gettting inhaled meds from the hospital pharm. jsut check to be sure that they were regrigerated (if they are supposed to be). Our last admit (which was for g-tube placement, not a tune up...) I was handed a warm pulmozyme vial...ummmm, no thanks. Luckily I had stashed one from home in my "refreshements" cooler.

izemmom · Nov 5, 2007

Yep, bring a day's worth of meds and enzymes as the delay in getting them from the hospl pharmacy can put you behind "schedule". I also always take the pari neb cup that we were told is needed for Pulmozyme since the hopsital only ever gives us disposables, and that's not supposed to be right or Pulmo. Also, when gettting inhaled meds from the hospital pharm. jsut check to be sure that they were regrigerated (if they are supposed to be). Our last admit (which was for g-tube placement, not a tune up...) I was handed a warm pulmozyme vial...ummmm, no thanks. Luckily I had stashed one from home in my "refreshements" cooler.

izemmom · Nov 5, 2007

Yep, bring a day's worth of meds and enzymes as the delay in getting them from the hospl pharmacy can put you behind "schedule". I also always take the pari neb cup that we were told is needed for Pulmozyme since the hopsital only ever gives us disposables, and that's not supposed to be right or Pulmo. Also, when gettting inhaled meds from the hospital pharm. jsut check to be sure that they were regrigerated (if they are supposed to be). Our last admit (which was for g-tube placement, not a tune up...) I was handed a warm pulmozyme vial...ummmm, no thanks. Luckily I had stashed one from home in my "refreshements" cooler.

TonyaH · Nov 5, 2007