How did you educate everyone?

[sdelorenzo]

I write a letter each year explaining how Cf affects my children. I send this letter out for Great Strides.
<br />I also include a newspaper article from the past year about new medications, etc. This way I get a chance to
<br />share with everyone how my children are doing, what is needed to keep them healthy and what research is being done to help CF. I don't talk it about it much through the year, so sending a letter out really helps people understand.
<br />Sharon, mom of Sophia, 10 and Jack, 8 both with CF, Grant, 2 and Paige, 1 both without CF

 

[jamoncita]

i don't think even my family really gets it (except for my mom).. would've been nice if i'd had more support when i was diagnosed. i was the one who received booklets and info, and my mom and i were the only ones who looked at them (didn't do much good, though). i'd say just generally explain it and inform your audience of necessary meds and treatment so they aren't surprised. if you're comfortable with questions, let them know, and be prepared to answer. good luck!

 

[jamoncita]

i don't think even my family really gets it (except for my mom).. would've been nice if i'd had more support when i was diagnosed. i was the one who received booklets and info, and my mom and i were the only ones who looked at them (didn't do much good, though). i'd say just generally explain it and inform your audience of necessary meds and treatment so they aren't surprised. if you're comfortable with questions, let them know, and be prepared to answer. good luck!

 

[jamoncita]

i don't think even my family really gets it (except for my mom).. would've been nice if i'd had more support when i was diagnosed. i was the one who received booklets and info, and my mom and i were the only ones who looked at them (didn't do much good, though). i'd say just generally explain it and inform your audience of necessary meds and treatment so they aren't surprised. if you're comfortable with questions, let them know, and be prepared to answer. good luck!