yea, i noticed the headaches first, a constant throbbing the entire day... i read about high co2 levels causing headaches on a cfers blog so at my drs. appt. I told him that and (my local pulm I see in between big cf clinic appts) and he dismissed it as tension headaches b/c of the way I described the headaches... i dont know what made him decided to do the sleep study but we did it. I was only dropped to about 89% average so I started at 1.5L, I havent had a recent one done but have had some pneumothorax issues so Im on 2 L almost 24/7 now and my sats are about 93% before falling asleep with o2. I might need to raise it now that I think abou it or get another study done with o2.
In retrospect I noticed I had been sleeping like 12-14 hours and was still feeling super duper exhausted. Im not sure why, since my sleeping sats were barely below average, but I think I need more sleep anyways.... I never developed the gasping for air, or having dreams aobut being suffocated until I was on a trip for two days and I chose to leave the oxygen concentrator at home and I had dreams about drowning, it was kinda weird.
