Keep in mind that getting help sometimes requires a lot of persistence. If you are able to help out by taking care of the paperwork end of things, I think that would free up the kid' parents for taking care of the kids' needs.
Here are a few possibilities.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ac-foundation.com/">America's Challenge Foundation</a>
<i>To assure and provide financial support to children and their parents that do not have the financial resources to properly maintain adequate care that is required to; pay doctor, hospital, travel, lodging, and pharmaceutical expenses to improve the quality of life for those with CF disease. While other Cystic Fibrosis Foundations are focusing on funds for research and the prevention of Cystic Fibrosis, America's Challenge is assisting the patient and the parent's in their day to day existence. </i>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.genentechcfendowment.org/">The Genentech Endowment</a>
Genentech is the maker of Pulmozyme. They have 3 methods of assistance. <a target=_blank class=ftalternatingbarlinklarge href="http://<i>http://www.genentechcfendowment.org/about.asp">Visit this link to learn more. </a>There are options for the insured as well as the uninsured. </i>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.digestivecare.com/">Digestive Care, Inc. </a>
<i>This is the maker of Pancreacarb. They offer some assistance with paying for the all-important enzyme supplements. </i>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.reachingoutfoundation.org/">The Reaching Out Foundation</a>
<i>Emergency Assistance</i>
The Foundation provides emergency funds to families who must live away from home to be near their loved one during their hospitalization for CF related illnesses. These funds pay for such items as hotel, transportation, food and other quality of life concerns during times of crisis.
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Insurance Assistance</i>
The Foundation provides funds to families who would otherwise lose health insurance due to employment changes or other events. The fund helps qualified families with medical co-pay payments, COBRA payments or other insurance premiums.
<i>Nutritional Assistance</i>
The Foundation provides funds to pay for prescribed nutritional supplements for Cystic Fibrosis patients. The ability to gain and maintain weight is a challenge to CF patients. Many must purchase special nutritional supplements and enzymes to achieve this goal and these supplements are often not covered by insurance.
