thanks so very much for your support and prayers..i know this is a long long road ahead..and i my prayers are with all of you too...my sis-in-law told me today that the sick twins Emily, will be in hospital another 2-3 weeks...her bowels have not started working, and they might have to put in another colonostomy and feeding tube, possible feeding tube for life...so so sad to here this news today.....
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how do parents get help??
- Thread starter roblou
- Start date
thanks so very much for your support and prayers..i know this is a long long road ahead..and i my prayers are with all of you too...my sis-in-law told me today that the sick twins Emily, will be in hospital another 2-3 weeks...her bowels have not started working, and they might have to put in another colonostomy and feeding tube, possible feeding tube for life...so so sad to here this news today.....
thanks so very much for your support and prayers..i know this is a long long road ahead..and i my prayers are with all of you too...my sis-in-law told me today that the sick twins Emily, will be in hospital another 2-3 weeks...her bowels have not started working, and they might have to put in another colonostomy and feeding tube, possible feeding tube for life...so so sad to here this news today.....
thanks so very much for your support and prayers..i know this is a long long road ahead..and i my prayers are with all of you too...my sis-in-law told me today that the sick twins Emily, will be in hospital another 2-3 weeks...her bowels have not started working, and they might have to put in another colonostomy and feeding tube, possible feeding tube for life...so so sad to here this news today.....
thanks so very much for your support and prayers..i know this is a long long road ahead..and i my prayers are with all of you too...my sis-in-law told me today that the sick twins Emily, will be in hospital another 2-3 weeks...her bowels have not started working, and they might have to put in another colonostomy and feeding tube, possible feeding tube for life...so so sad to here this news today.....
I really have no suggestions for assistance for your family members, other than this site which can be a HUGE emotional support. I just wanted to tell you that the kids are lucky to have an aunt like you, and I'm sure that their parents are doing more than humanly possible for them.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I really have no suggestions for assistance for your family members, other than this site which can be a HUGE emotional support. I just wanted to tell you that the kids are lucky to have an aunt like you, and I'm sure that their parents are doing more than humanly possible for them.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I really have no suggestions for assistance for your family members, other than this site which can be a HUGE emotional support. I just wanted to tell you that the kids are lucky to have an aunt like you, and I'm sure that their parents are doing more than humanly possible for them.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I really have no suggestions for assistance for your family members, other than this site which can be a HUGE emotional support. I just wanted to tell you that the kids are lucky to have an aunt like you, and I'm sure that their parents are doing more than humanly possible for them.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I really have no suggestions for assistance for your family members, other than this site which can be a HUGE emotional support. I just wanted to tell you that the kids are lucky to have an aunt like you, and I'm sure that their parents are doing more than humanly possible for them.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
I will keep the whole family in my prayers, especially little Emily. Please tell her parents that they could not have chosen a better name for her. You see, in my experience, the name Emily and cf combine to create POWERHOUSES of energy, determination, stubborness, smarts, and a HUGE will to win any fight. My own sweet/sassy 22 month old is living proof, and there are a few other fine examples on this site, too (Emily65Roses, Letsrockcfem, LovingBenandcambree).
I wouldn't be at all suprised if your little Emily beats all odds. Please continue to visit us and keep us updated. We want to know how the whole family is doing. I can not imagine having 4 kids that young, let alone with cf. You'll all be close to my heart.
THANK YOU SO MUCH ""izemmom""...YOU DONT KNOW HOW MUCH YOUR WRODS MEANT TO ME AND OUR FAMILY...MY SIS IN LAW HAD TEARS (ME TOO) WHEN I SHOWED HER THIS...WOW..ALL YOU GREAT MOTHERS WHO HAVE TO GO THOUGHT TOUGHT TIMES IN LIFE, MY HEART IS THERE FOR ALL OF YOU....MY DAUGHTER HAD "RSV" AT AGE 2 WEEKS, AND ALMOST DIED, SPENT 8 DAYS IN CHILDRENS HOSP. IN LITTLE ROCK, ARK...AND THAT WAS VERY SCAREY..BUT, YOU MOTHERS HAVE A LONG ROAD AHEAD..AND MAY GOD ALWAYS FOLLOW YOU DOWN THAT ROAD......
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
THANK YOU SO MUCH ""izemmom""...YOU DONT KNOW HOW MUCH YOUR WRODS MEANT TO ME AND OUR FAMILY...MY SIS IN LAW HAD TEARS (ME TOO) WHEN I SHOWED HER THIS...WOW..ALL YOU GREAT MOTHERS WHO HAVE TO GO THOUGHT TOUGHT TIMES IN LIFE, MY HEART IS THERE FOR ALL OF YOU....MY DAUGHTER HAD "RSV" AT AGE 2 WEEKS, AND ALMOST DIED, SPENT 8 DAYS IN CHILDRENS HOSP. IN LITTLE ROCK, ARK...AND THAT WAS VERY SCAREY..BUT, YOU MOTHERS HAVE A LONG ROAD AHEAD..AND MAY GOD ALWAYS FOLLOW YOU DOWN THAT ROAD......
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
THANK YOU SO MUCH ""izemmom""...YOU DONT KNOW HOW MUCH YOUR WRODS MEANT TO ME AND OUR FAMILY...MY SIS IN LAW HAD TEARS (ME TOO) WHEN I SHOWED HER THIS...WOW..ALL YOU GREAT MOTHERS WHO HAVE TO GO THOUGHT TOUGHT TIMES IN LIFE, MY HEART IS THERE FOR ALL OF YOU....MY DAUGHTER HAD "RSV" AT AGE 2 WEEKS, AND ALMOST DIED, SPENT 8 DAYS IN CHILDRENS HOSP. IN LITTLE ROCK, ARK...AND THAT WAS VERY SCAREY..BUT, YOU MOTHERS HAVE A LONG ROAD AHEAD..AND MAY GOD ALWAYS FOLLOW YOU DOWN THAT ROAD......
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
THANK YOU SO MUCH ""izemmom""...YOU DONT KNOW HOW MUCH YOUR WRODS MEANT TO ME AND OUR FAMILY...MY SIS IN LAW HAD TEARS (ME TOO) WHEN I SHOWED HER THIS...WOW..ALL YOU GREAT MOTHERS WHO HAVE TO GO THOUGHT TOUGHT TIMES IN LIFE, MY HEART IS THERE FOR ALL OF YOU....MY DAUGHTER HAD "RSV" AT AGE 2 WEEKS, AND ALMOST DIED, SPENT 8 DAYS IN CHILDRENS HOSP. IN LITTLE ROCK, ARK...AND THAT WAS VERY SCAREY..BUT, YOU MOTHERS HAVE A LONG ROAD AHEAD..AND MAY GOD ALWAYS FOLLOW YOU DOWN THAT ROAD......
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
THANK YOU SO MUCH ""izemmom""...YOU DONT KNOW HOW MUCH YOUR WRODS MEANT TO ME AND OUR FAMILY...MY SIS IN LAW HAD TEARS (ME TOO) WHEN I SHOWED HER THIS...WOW..ALL YOU GREAT MOTHERS WHO HAVE TO GO THOUGHT TOUGHT TIMES IN LIFE, MY HEART IS THERE FOR ALL OF YOU....MY DAUGHTER HAD "RSV" AT AGE 2 WEEKS, AND ALMOST DIED, SPENT 8 DAYS IN CHILDRENS HOSP. IN LITTLE ROCK, ARK...AND THAT WAS VERY SCAREY..BUT, YOU MOTHERS HAVE A LONG ROAD AHEAD..AND MAY GOD ALWAYS FOLLOW YOU DOWN THAT ROAD......
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)
MY LITTLE NIECE EMILY IS DOING BETTER FOR NOW..(WITH ALL YOUR PRAYERS)..THEY HAVE FOUND THAT FORMULA MIXED WITH PEDILYTE IS MAKING HER BOWELS SYSTME FOEM NORMAL STOOLS...NOT 100% YET, BUT GETTING THERE...MAYBE AT 50%-60%...ANOTHER 2 WEEKS IN HOSPITAL..AND MAYBE IT WILL WORK AND SHE CAN COME HOME...IM ADDING A SWEET PICTURE OF EMILY AND HER TWIN ASHLEY (WHOM IS WELL, BUT HAS CF)...EMILY IS THE ONE CLOSEST TO YOU, AND ASHLEY IN PINK....THANKS SO SO VERY MUCH FOR YOUR SUPPORT....MAY GOD BE WITH ALL OF US...
ROBYN, AUNT TO 4 WITH CF....
WADE (4)
MAKAYLA (3)
TWIN EMILY (11 WEEKS)
TWIN ASHELY (11 WEEKS)