How do we CFers die?

L

lelliellie

New member
I think that it's just that you eventually catch something that they can't cure, or your lung function gets too low... But the average life spans getting longer and the cures nearly out, so look on the bright side <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
L

lelliellie

New member
I think that it's just that you eventually catch something that they can't cure, or your lung function gets too low... But the average life spans getting longer and the cures nearly out, so look on the bright side <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
L

lelliellie

New member
I think that it's just that you eventually catch something that they can't cure, or your lung function gets too low... But the average life spans getting longer and the cures nearly out, so look on the bright side <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
P

Printer

Active member
I don't know.  I'm 71 and I haven't died yet.  You have a long life in front of you, be interested in how you will live and dying will take care of its self when it comes.
Besides there will be a CURE in your lifetime.
 
Bill
 
 
P

Printer

Active member
I don't know. I'm 71 and I haven't died yet. You have a long life in front of you, be interested in how you will live and dying will take care of its self when it comes.
Besides there will be a CURE in your lifetime.

Bill
 
P

Printer

Active member
<p>I don't know. I'm 71 and I haven't died yet. You have a long life in front of you, be interested in how you will live and dying will take care of its self when it comes.
<p>Besides there will be a CURE in your lifetime.
<p>
<p>Bill
<p>
 
W

WillYouHelp

New member
Hey guys,

My name's Moosa Mateen. I'm 16 years old.
I'm one of two teens trying to help people with cystic fibrosis. I'm actually in a competition right now, and If we win we'll be hosting a large gala to raise awareness. I need all the support i can get. If you could please consider us and drop us a comment and vote for, your help will be very much appreciated.

http://www.youthgive.ca/entry/4475251

Stay strong.
 
W

WillYouHelp

New member
Hey guys,

My name's Moosa Mateen. I'm 16 years old.
I'm one of two teens trying to help people with cystic fibrosis. I'm actually in a competition right now, and If we win we'll be hosting a large gala to raise awareness. I need all the support i can get. If you could please consider us and drop us a comment and vote for, your help will be very much appreciated.

http://www.youthgive.ca/entry/4475251

Stay strong.
 
W

WillYouHelp

New member
Hey guys,
<br />
<br />My name's Moosa Mateen. I'm 16 years old.
<br />I'm one of two teens trying to help people with cystic fibrosis. I'm actually in a competition right now, and If we win we'll be hosting a large gala to raise awareness. I need all the support i can get. If you could please consider us and drop us a comment and vote for, your help will be very much appreciated.
<br />
<br />http://www.youthgive.ca/entry/4475251
<br />
<br />Stay strong.
 
M

mea6195

New member
yeah, but bill... you weren't diagnosed until you were 47, it's not the same for most of us... iv'e already been asked about possibly getting a transplant in the near future and i'm 16.
 
M

mea6195

New member
yeah, but bill... you weren't diagnosed until you were 47, it's not the same for most of us... iv'e already been asked about possibly getting a transplant in the near future and i'm 16.
 
M

mea6195

New member
yeah, but bill... you weren't diagnosed until you were 47, it's not the same for most of us... iv'e already been asked about possibly getting a transplant in the near future and i'm 16.
 
P

Printer

Active member
<P>I could have been diagnosed prior to my being 47 (1987) but the SWEAT TEST wasn't invented until 1950. The GENE wasn't discovered until 1989. When I was diagnosed (in 1987) it was a major breakthrough. My life expecdency at that time was 18. Up until that time I showed all of the "classic" signs of CF but was TOO OLD TO HAVE CF. Before being dx I had part of my stomach removed and had been hospitalized almost 70 times for pancreatitis. Only after being DX did I begin to see "good health". Have I been "lucky", damn right! Are you lucky that you were born in 1995 and not earlier, damn right. None of us have it easy. There are almost 1900 mutations so alot of us travel different roads to get to where we are now. I don't look at those who are CF free and say, why not me, nor do I look at someone like you and say thank God I dont need a transplant. I don't like the path that life has given me and you shouldn't either but it is MY PATH. I am living with it the best that I can. I'm sorry to hear that you need a transplant but glad to hear that you will getting one. In 1987 lung transplants had not yet been invented and alot of good people died. A transplant could turn your life around not to mention VX770 & VX806.</P>
<P></P>
<P>Bill</P>
 
P

Printer

Active member
<P>I could have been diagnosed prior to my being 47 (1987) but the SWEAT TEST wasn't invented until 1950. The GENE wasn't discovered until 1989. When I was diagnosed (in 1987) it was a major breakthrough. My life expecdency at that time was 18. Up until that time I showed all of the "classic" signs of CF but was TOO OLD TO HAVE CF. Before being dx I had part of my stomach removed and had been hospitalized almost 70 times for pancreatitis. Only after being DX did I begin to see "good health". Have I been "lucky", damn right! Are you lucky that you were born in 1995 and not earlier, damn right. None of us have it easy. There are almost 1900 mutations so alot of us travel different roads to get to where we are now. I don't look at those who are CF free and say, why not me, nor do I look at someone like you and say thank God I dont need a transplant. I don't like the path that life has given me and you shouldn't either but it is MY PATH. I am living with it the best that I can. I'm sorry to hear that you need a transplant but glad to hear that you will getting one. In 1987 lung transplants had not yet been invented and alot of good people died. A transplant could turn your life around not to mention VX770 & VX806.</P>
<P></P>
<P>Bill</P>
 
P

Printer

Active member
<P>I could have been diagnosed prior to my being 47 (1987) but the SWEAT TEST wasn't invented until 1950. The GENE wasn't discovered until 1989. When I was diagnosed (in 1987) it was a major breakthrough. My life expecdency at that time was 18. Up until that time I showed all of the "classic" signs of CF but was TOO OLD TO HAVE CF. Before being dx I had part of my stomach removed and had been hospitalized almost 70 times for pancreatitis. Only after being DX did I begin to see "good health". Have I been "lucky", damn right! Are you lucky that you were born in 1995 and not earlier, damn right. None of us have it easy. There are almost 1900 mutations so alot of us travel different roads to get to where we are now. I don't look at those who are CF free and say, why not me, nor do I look at someone like you and say thank God I dont need a transplant. I don't like the path that life has given me and you shouldn't either but it is MY PATH. I am living with it the best that I can. I'm sorry to hear that you need a transplant but glad to hear that you will getting one. In 1987 lung transplants had not yet been invented and alot of good people died. A transplant could turn your life around not to mention VX770 & VX806.</P>
<P></P>
<P>Bill</P>
 
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