How do you live with being adult with CF
- Thread starter anonymous
- Start date
I need to reply to my own question due to more I read it I wouldn't know how to answer this either or wouldn't even want to touch it. My son has CF he is 19 years old and he is going through all the I guess I have CF but I am not sick and don't have to take my medicine and do my treatments all the time. He has been very fortunte he was diagnosed and 18 mos old and was only hospitalized one time for CF and that was just last year when they tranfered him from child to Adult Cf Clinic, the only time he was in the hospital before that was for sinus surgery they always told me that he done so well and to keep up the good work but now he is couphing more and not eating to well he only weighs about 125 as a mother I just don't know what to think and how to help him. He is trying to go to school and trying to get a job but he just has no interest he has a girlfriend but having trouble with her parents because of CF. does anyone having any suggestions?
Emily65Roses
New member
My question would be... why is he having trouble with the girlfriend's parents based on the CF?
Purplelungs
New member
I have a friend that got engaged recently, he has cf. Evidentally her mom has problems letting go of her baby and tries to find cf as an excuse....Then my own mother in law had problems with me...her excuses (as valid as they maybe) were how can my husband support me, i have an expensive illness, I will be sick alot can he handle the fact he can not "fix" me (my husband likes to fix things), etc. I think people have a problem, or a stigma thinking "why date or marry a sick person" as if a healthy person is taking pity upon a sick person...or that sick person cant love, or take care of the other like they should (such as getting a job or taking care of the house or kids).... Its also just happens to be those same people with the thinking "why be with a sick person" who get cancer or a loved one gets cancer, and its like does your love for them change? NO! But we are lucky/blessed to find those who are not just willing but who want to be with us no matter what.
Now to the original topic. Your son is very fortunate to only be having problems now. I saw just talk to him, try not to nag, thats the important thing, dont nag...Just let him know you love him and would like to see him take better care of his self. make points that you need him, his girlfriend needs him for a long time. Does he live at home? If not maybe take him grocery shopping to encourage eating, or if he lives at home by him anything he is craving at the time. It might be a pain (i know it is) but sometimes you have to do anything you can to keep weight on. Key words are "do not nag" it can only make things worse.
How do I live being an adult with cf? Just like anyone else but with more maintance. Sure I may slack off but I am getting better at not doing so. Slacking off is a phase all of us go through. I think it starts any where from 12 and lasts any where to late teens early 20s...some last the whole time, some only a short time. Its part of us growing and learning and wanting to do stuff like everyone else. I just live like I should. I have fun, I am married, I love to garden I love hanging out with my friends. I just have to do alot of extra stuff to be able to have fun...such as keeping up with meds and treatments so I feel well enough to do the fun stuff.
Amanda
21 with cf, happily married, mom to Samurai (mini dachshund)
Now to the original topic. Your son is very fortunate to only be having problems now. I saw just talk to him, try not to nag, thats the important thing, dont nag...Just let him know you love him and would like to see him take better care of his self. make points that you need him, his girlfriend needs him for a long time. Does he live at home? If not maybe take him grocery shopping to encourage eating, or if he lives at home by him anything he is craving at the time. It might be a pain (i know it is) but sometimes you have to do anything you can to keep weight on. Key words are "do not nag" it can only make things worse.
How do I live being an adult with cf? Just like anyone else but with more maintance. Sure I may slack off but I am getting better at not doing so. Slacking off is a phase all of us go through. I think it starts any where from 12 and lasts any where to late teens early 20s...some last the whole time, some only a short time. Its part of us growing and learning and wanting to do stuff like everyone else. I just live like I should. I have fun, I am married, I love to garden I love hanging out with my friends. I just have to do alot of extra stuff to be able to have fun...such as keeping up with meds and treatments so I feel well enough to do the fun stuff.
Amanda
21 with cf, happily married, mom to Samurai (mini dachshund)
thefrogprincess
New member
I'm sure most of us went through the "I'm invinsible" phase. I even stopped going to clinic for about 4 years. That all came to a screetching hault when I finally started going again and my PFTs were way down. I've also been lucky and not had many problems due to my CF but that doesn't mean its going to last. Sometimes it takes a good scare to knock the sense back into a person. The important thing is not to nag and pressure him. He's an adult now and that would only make things worse.