Hi guys, I was just wondering ( and don't want to sound like a big baby) but how do you all stay positive. It becomes overwhelming at times. Sometimes i get so scared and depressed. I don't want to live this way, i want to enjoy myself as much as i can. Don't want to always be thinking about what is going to happen next. I pray for a more positive outlook, but sometimes it gets the better of me. Also my youngest son is very scared of me dying and something bad happening to himself. I try very hard to reassure him, but sometimes thats even hard because i'm so unsure myself. Thanks for listening, any suggestions would be appreciated....Joni.....54 y/o w c/f
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How do you stay positive?
- Thread starter beleache
- Start date
Hi guys, I was just wondering ( and don't want to sound like a big baby) but how do you all stay positive. It becomes overwhelming at times. Sometimes i get so scared and depressed. I don't want to live this way, i want to enjoy myself as much as i can. Don't want to always be thinking about what is going to happen next. I pray for a more positive outlook, but sometimes it gets the better of me. Also my youngest son is very scared of me dying and something bad happening to himself. I try very hard to reassure him, but sometimes thats even hard because i'm so unsure myself. Thanks for listening, any suggestions would be appreciated....Joni.....54 y/o w c/f
Hi guys, I was just wondering ( and don't want to sound like a big baby) but how do you all stay positive. It becomes overwhelming at times. Sometimes i get so scared and depressed. I don't want to live this way, i want to enjoy myself as much as i can. Don't want to always be thinking about what is going to happen next. I pray for a more positive outlook, but sometimes it gets the better of me. Also my youngest son is very scared of me dying and something bad happening to himself. I try very hard to reassure him, but sometimes thats even hard because i'm so unsure myself. Thanks for listening, any suggestions would be appreciated....Joni.....54 y/o w c/f
First you need to realize that expecting to stay positive every minute is unrealistic & to me also unhealthy. I also believe remaining sad or having a negative outlook wont change what the future brings. If anything IMHO it will expedite it. I truly believe your mental state influences your physical state a lot. My daughter also is worried about me, but she also knows that we all will die. She hopes that we will all live to a ripe old age, but sadly she knows many people die young. In our family we have had losses of all ages for all reasons. Having a positive outlook is good as an example on how obstacles in life can be handled, BUT showing your vulnerability is also important. I discovered that making my daughter think all is ok or reassuring her falsely is not such a great idea. When things do take a turn for the worse it makes them ??? things more then if they knew it was possible. I also never want my daughter to feel that showing her "weakness" or vulnerability is bad because then she might feel like she can never share her true feelings with anyone. That is how I feel with my Mother and its awful. Reality can be cruel, but so can avoiding it!
First you need to realize that expecting to stay positive every minute is unrealistic & to me also unhealthy. I also believe remaining sad or having a negative outlook wont change what the future brings. If anything IMHO it will expedite it. I truly believe your mental state influences your physical state a lot. My daughter also is worried about me, but she also knows that we all will die. She hopes that we will all live to a ripe old age, but sadly she knows many people die young. In our family we have had losses of all ages for all reasons. Having a positive outlook is good as an example on how obstacles in life can be handled, BUT showing your vulnerability is also important. I discovered that making my daughter think all is ok or reassuring her falsely is not such a great idea. When things do take a turn for the worse it makes them ??? things more then if they knew it was possible. I also never want my daughter to feel that showing her "weakness" or vulnerability is bad because then she might feel like she can never share her true feelings with anyone. That is how I feel with my Mother and its awful. Reality can be cruel, but so can avoiding it!
First you need to realize that expecting to stay positive every minute is unrealistic & to me also unhealthy. I also believe remaining sad or having a negative outlook wont change what the future brings. If anything IMHO it will expedite it. I truly believe your mental state influences your physical state a lot. My daughter also is worried about me, but she also knows that we all will die. She hopes that we will all live to a ripe old age, but sadly she knows many people die young. In our family we have had losses of all ages for all reasons. Having a positive outlook is good as an example on how obstacles in life can be handled, BUT showing your vulnerability is also important. I discovered that making my daughter think all is ok or reassuring her falsely is not such a great idea. When things do take a turn for the worse it makes them ??? things more then if they knew it was possible. I also never want my daughter to feel that showing her "weakness" or vulnerability is bad because then she might feel like she can never share her true feelings with anyone. That is how I feel with my Mother and its awful. Reality can be cruel, but so can avoiding it!
coltsfan715
New member
Well hmmm .. good quesion.
I will say when I was younger I was much more positive than I am now - I still think I am a positive person, but I have more down times now.
When I was younger I was relatively healthy - I was in the hospital about once a year but did well. I was able to do whatever I wanted for the most part and was also able to go through my day and didn't have to acknowledge CF. I think THAT is why I was so much happier. I was able to forget that I had CF.
As the years have passed and CFRD has come and worsening lung function has been a problem I find it hard to forget about CF. This is why I think my attitude has changed about things. I am more realistic now and CF is inthe forefront of my mind ALOT because so much of my time is taken up with treatments, remembering meds, taking meds, therapies, docs appointments and trying to exercise and stay well.
I have developed some anxiety issues in the past 4-6 months and have found that the only sure fire way to keep myself from having anxiety is to keep my mind busy. Reading, being on the comp, playing games, watching TV .... ANYTHING but thinking about CF sometimes. I have also found that though this site is helpful sometimes it brings me down to be on here. For me it is because I am living with CF (like most everyone else here) and I sometimes just can't handle all of the information about what may happen to me, what will happen to me and everything else. It to me was easier to hear that stuff when I was younger and healthier - though I still had issues with it then too. Now that my lung function is worse and I am closer to qualifying for transplant (I like to say that rather than closer to death - to me it is more positive lol) it is hard to swallow sometimes.
I know people say don't sugar coat things ... but I was talking to someone else on here about this and they said something that is so true. You don't have to completely sugar coat things, but sometimes a spooful of sugar will help the medicine go down a little bit easier.
Personally I would try to stay busy and maybe when you come on here be much more selective with the posts you read based on the titles. I have cut back on the posts I read. I ONLY click on ones that I think I might be helpful with, that seem to have very little to do with CF, or if it is something that I have also been wondering about. That pretty much cut my viewing by half if not more. I will say too that I have had my depressing feelings start to dissipate since I started to censor myself on this site.
Just a thought. I am not trying to start anything about this site. I am just saying something that has helped me. Sometimes- for some people - when you are completely surrounded by any information you could possibly want or need ... and more .. it can be overwhelming and depressing.
Take Care and I hope you start feeling better,
Lindsey
I will say when I was younger I was much more positive than I am now - I still think I am a positive person, but I have more down times now.
When I was younger I was relatively healthy - I was in the hospital about once a year but did well. I was able to do whatever I wanted for the most part and was also able to go through my day and didn't have to acknowledge CF. I think THAT is why I was so much happier. I was able to forget that I had CF.
As the years have passed and CFRD has come and worsening lung function has been a problem I find it hard to forget about CF. This is why I think my attitude has changed about things. I am more realistic now and CF is inthe forefront of my mind ALOT because so much of my time is taken up with treatments, remembering meds, taking meds, therapies, docs appointments and trying to exercise and stay well.
I have developed some anxiety issues in the past 4-6 months and have found that the only sure fire way to keep myself from having anxiety is to keep my mind busy. Reading, being on the comp, playing games, watching TV .... ANYTHING but thinking about CF sometimes. I have also found that though this site is helpful sometimes it brings me down to be on here. For me it is because I am living with CF (like most everyone else here) and I sometimes just can't handle all of the information about what may happen to me, what will happen to me and everything else. It to me was easier to hear that stuff when I was younger and healthier - though I still had issues with it then too. Now that my lung function is worse and I am closer to qualifying for transplant (I like to say that rather than closer to death - to me it is more positive lol) it is hard to swallow sometimes.
I know people say don't sugar coat things ... but I was talking to someone else on here about this and they said something that is so true. You don't have to completely sugar coat things, but sometimes a spooful of sugar will help the medicine go down a little bit easier.
Personally I would try to stay busy and maybe when you come on here be much more selective with the posts you read based on the titles. I have cut back on the posts I read. I ONLY click on ones that I think I might be helpful with, that seem to have very little to do with CF, or if it is something that I have also been wondering about. That pretty much cut my viewing by half if not more. I will say too that I have had my depressing feelings start to dissipate since I started to censor myself on this site.
Just a thought. I am not trying to start anything about this site. I am just saying something that has helped me. Sometimes- for some people - when you are completely surrounded by any information you could possibly want or need ... and more .. it can be overwhelming and depressing.
Take Care and I hope you start feeling better,
Lindsey
coltsfan715
New member
Well hmmm .. good quesion.
I will say when I was younger I was much more positive than I am now - I still think I am a positive person, but I have more down times now.
When I was younger I was relatively healthy - I was in the hospital about once a year but did well. I was able to do whatever I wanted for the most part and was also able to go through my day and didn't have to acknowledge CF. I think THAT is why I was so much happier. I was able to forget that I had CF.
As the years have passed and CFRD has come and worsening lung function has been a problem I find it hard to forget about CF. This is why I think my attitude has changed about things. I am more realistic now and CF is inthe forefront of my mind ALOT because so much of my time is taken up with treatments, remembering meds, taking meds, therapies, docs appointments and trying to exercise and stay well.
I have developed some anxiety issues in the past 4-6 months and have found that the only sure fire way to keep myself from having anxiety is to keep my mind busy. Reading, being on the comp, playing games, watching TV .... ANYTHING but thinking about CF sometimes. I have also found that though this site is helpful sometimes it brings me down to be on here. For me it is because I am living with CF (like most everyone else here) and I sometimes just can't handle all of the information about what may happen to me, what will happen to me and everything else. It to me was easier to hear that stuff when I was younger and healthier - though I still had issues with it then too. Now that my lung function is worse and I am closer to qualifying for transplant (I like to say that rather than closer to death - to me it is more positive lol) it is hard to swallow sometimes.
I know people say don't sugar coat things ... but I was talking to someone else on here about this and they said something that is so true. You don't have to completely sugar coat things, but sometimes a spooful of sugar will help the medicine go down a little bit easier.
Personally I would try to stay busy and maybe when you come on here be much more selective with the posts you read based on the titles. I have cut back on the posts I read. I ONLY click on ones that I think I might be helpful with, that seem to have very little to do with CF, or if it is something that I have also been wondering about. That pretty much cut my viewing by half if not more. I will say too that I have had my depressing feelings start to dissipate since I started to censor myself on this site.
Just a thought. I am not trying to start anything about this site. I am just saying something that has helped me. Sometimes- for some people - when you are completely surrounded by any information you could possibly want or need ... and more .. it can be overwhelming and depressing.
Take Care and I hope you start feeling better,
Lindsey
I will say when I was younger I was much more positive than I am now - I still think I am a positive person, but I have more down times now.
When I was younger I was relatively healthy - I was in the hospital about once a year but did well. I was able to do whatever I wanted for the most part and was also able to go through my day and didn't have to acknowledge CF. I think THAT is why I was so much happier. I was able to forget that I had CF.
As the years have passed and CFRD has come and worsening lung function has been a problem I find it hard to forget about CF. This is why I think my attitude has changed about things. I am more realistic now and CF is inthe forefront of my mind ALOT because so much of my time is taken up with treatments, remembering meds, taking meds, therapies, docs appointments and trying to exercise and stay well.
I have developed some anxiety issues in the past 4-6 months and have found that the only sure fire way to keep myself from having anxiety is to keep my mind busy. Reading, being on the comp, playing games, watching TV .... ANYTHING but thinking about CF sometimes. I have also found that though this site is helpful sometimes it brings me down to be on here. For me it is because I am living with CF (like most everyone else here) and I sometimes just can't handle all of the information about what may happen to me, what will happen to me and everything else. It to me was easier to hear that stuff when I was younger and healthier - though I still had issues with it then too. Now that my lung function is worse and I am closer to qualifying for transplant (I like to say that rather than closer to death - to me it is more positive lol) it is hard to swallow sometimes.
I know people say don't sugar coat things ... but I was talking to someone else on here about this and they said something that is so true. You don't have to completely sugar coat things, but sometimes a spooful of sugar will help the medicine go down a little bit easier.
Personally I would try to stay busy and maybe when you come on here be much more selective with the posts you read based on the titles. I have cut back on the posts I read. I ONLY click on ones that I think I might be helpful with, that seem to have very little to do with CF, or if it is something that I have also been wondering about. That pretty much cut my viewing by half if not more. I will say too that I have had my depressing feelings start to dissipate since I started to censor myself on this site.
Just a thought. I am not trying to start anything about this site. I am just saying something that has helped me. Sometimes- for some people - when you are completely surrounded by any information you could possibly want or need ... and more .. it can be overwhelming and depressing.
Take Care and I hope you start feeling better,
Lindsey
coltsfan715
New member
Well hmmm .. good quesion.
I will say when I was younger I was much more positive than I am now - I still think I am a positive person, but I have more down times now.
When I was younger I was relatively healthy - I was in the hospital about once a year but did well. I was able to do whatever I wanted for the most part and was also able to go through my day and didn't have to acknowledge CF. I think THAT is why I was so much happier. I was able to forget that I had CF.
As the years have passed and CFRD has come and worsening lung function has been a problem I find it hard to forget about CF. This is why I think my attitude has changed about things. I am more realistic now and CF is inthe forefront of my mind ALOT because so much of my time is taken up with treatments, remembering meds, taking meds, therapies, docs appointments and trying to exercise and stay well.
I have developed some anxiety issues in the past 4-6 months and have found that the only sure fire way to keep myself from having anxiety is to keep my mind busy. Reading, being on the comp, playing games, watching TV .... ANYTHING but thinking about CF sometimes. I have also found that though this site is helpful sometimes it brings me down to be on here. For me it is because I am living with CF (like most everyone else here) and I sometimes just can't handle all of the information about what may happen to me, what will happen to me and everything else. It to me was easier to hear that stuff when I was younger and healthier - though I still had issues with it then too. Now that my lung function is worse and I am closer to qualifying for transplant (I like to say that rather than closer to death - to me it is more positive lol) it is hard to swallow sometimes.
I know people say don't sugar coat things ... but I was talking to someone else on here about this and they said something that is so true. You don't have to completely sugar coat things, but sometimes a spooful of sugar will help the medicine go down a little bit easier.
Personally I would try to stay busy and maybe when you come on here be much more selective with the posts you read based on the titles. I have cut back on the posts I read. I ONLY click on ones that I think I might be helpful with, that seem to have very little to do with CF, or if it is something that I have also been wondering about. That pretty much cut my viewing by half if not more. I will say too that I have had my depressing feelings start to dissipate since I started to censor myself on this site.
Just a thought. I am not trying to start anything about this site. I am just saying something that has helped me. Sometimes- for some people - when you are completely surrounded by any information you could possibly want or need ... and more .. it can be overwhelming and depressing.
Take Care and I hope you start feeling better,
Lindsey
I will say when I was younger I was much more positive than I am now - I still think I am a positive person, but I have more down times now.
When I was younger I was relatively healthy - I was in the hospital about once a year but did well. I was able to do whatever I wanted for the most part and was also able to go through my day and didn't have to acknowledge CF. I think THAT is why I was so much happier. I was able to forget that I had CF.
As the years have passed and CFRD has come and worsening lung function has been a problem I find it hard to forget about CF. This is why I think my attitude has changed about things. I am more realistic now and CF is inthe forefront of my mind ALOT because so much of my time is taken up with treatments, remembering meds, taking meds, therapies, docs appointments and trying to exercise and stay well.
I have developed some anxiety issues in the past 4-6 months and have found that the only sure fire way to keep myself from having anxiety is to keep my mind busy. Reading, being on the comp, playing games, watching TV .... ANYTHING but thinking about CF sometimes. I have also found that though this site is helpful sometimes it brings me down to be on here. For me it is because I am living with CF (like most everyone else here) and I sometimes just can't handle all of the information about what may happen to me, what will happen to me and everything else. It to me was easier to hear that stuff when I was younger and healthier - though I still had issues with it then too. Now that my lung function is worse and I am closer to qualifying for transplant (I like to say that rather than closer to death - to me it is more positive lol) it is hard to swallow sometimes.
I know people say don't sugar coat things ... but I was talking to someone else on here about this and they said something that is so true. You don't have to completely sugar coat things, but sometimes a spooful of sugar will help the medicine go down a little bit easier.
Personally I would try to stay busy and maybe when you come on here be much more selective with the posts you read based on the titles. I have cut back on the posts I read. I ONLY click on ones that I think I might be helpful with, that seem to have very little to do with CF, or if it is something that I have also been wondering about. That pretty much cut my viewing by half if not more. I will say too that I have had my depressing feelings start to dissipate since I started to censor myself on this site.
Just a thought. I am not trying to start anything about this site. I am just saying something that has helped me. Sometimes- for some people - when you are completely surrounded by any information you could possibly want or need ... and more .. it can be overwhelming and depressing.
Take Care and I hope you start feeling better,
Lindsey
My partner is the one with CF and is more positive about it than me. She thinks about how far medicine has come and how if she was born in any of the past centuries, would've died at a very young age. She notes that medicine's progress only goes forward with time, and that the median life expectancy keeps going up. And if her lungs finally give way, there's always the backup and hope a transplant offers. She's completely convinced she will live to an old age. Doing medications aren't really a burden for her because she's done them for basically all her life she can remember. For me, I constantly think that she will be gone before she's even 30.
My partner is the one with CF and is more positive about it than me. She thinks about how far medicine has come and how if she was born in any of the past centuries, would've died at a very young age. She notes that medicine's progress only goes forward with time, and that the median life expectancy keeps going up. And if her lungs finally give way, there's always the backup and hope a transplant offers. She's completely convinced she will live to an old age. Doing medications aren't really a burden for her because she's done them for basically all her life she can remember. For me, I constantly think that she will be gone before she's even 30.
My partner is the one with CF and is more positive about it than me. She thinks about how far medicine has come and how if she was born in any of the past centuries, would've died at a very young age. She notes that medicine's progress only goes forward with time, and that the median life expectancy keeps going up. And if her lungs finally give way, there's always the backup and hope a transplant offers. She's completely convinced she will live to an old age. Doing medications aren't really a burden for her because she's done them for basically all her life she can remember. For me, I constantly think that she will be gone before she's even 30.
Joni,
I know EXACTLY how you feel. I am usually able to remain positive and have a really good attitude till things go wrong. Then i get really down about things and its hard to pull myself back up. There are times when i think i was better off nto knowing as much about cf as i now do. I find myself worrying about things that may never happen but stick in the back of my mind. I do however like to arm myself with information, just in case any of these things do happen so there wont be too many surprises. It can be tough to remain positive, when we have negativity going on at the moment. I like you, dont want to live afraid and depressed, but i remind myself that what is goi ng on now will pass and i will get back to feeling positive again. One thing that gets me thru some bad things that cf throws at me is....I think of my friends who have passed away... 2 of them had cf ( one was 15 the other 16) and the other had lung cancer( he was 31) Then i remind myself that they would give their right arm and leg to be in my positiion, because i am still here and "savable" so to speak. Then i remind myself that all is not lost....It IS lost for them ( my three friends who are no longer here) But for me it is not lost , and i dont want to live like it is. I decided after i got out of the hospital almost 4 weeks ago that i am going to fight this cf battle even harder in honor of those who cant anymore. Of coarse i will be doing it for myself mostly, but fighting it in honor of 3 people that i KNOW for sure would do it if they were in my position gives me quite a bit of motivation. Thinking of others who have it worse does sometimes ease my stress about cf sometimes, but a pity party now and then isnt so bad either. I think we earn it and need to get the feelings out. I also Pray Quite a bit, and rely on God to help me thru this. I hoep you get back to feeling better soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I know EXACTLY how you feel. I am usually able to remain positive and have a really good attitude till things go wrong. Then i get really down about things and its hard to pull myself back up. There are times when i think i was better off nto knowing as much about cf as i now do. I find myself worrying about things that may never happen but stick in the back of my mind. I do however like to arm myself with information, just in case any of these things do happen so there wont be too many surprises. It can be tough to remain positive, when we have negativity going on at the moment. I like you, dont want to live afraid and depressed, but i remind myself that what is goi ng on now will pass and i will get back to feeling positive again. One thing that gets me thru some bad things that cf throws at me is....I think of my friends who have passed away... 2 of them had cf ( one was 15 the other 16) and the other had lung cancer( he was 31) Then i remind myself that they would give their right arm and leg to be in my positiion, because i am still here and "savable" so to speak. Then i remind myself that all is not lost....It IS lost for them ( my three friends who are no longer here) But for me it is not lost , and i dont want to live like it is. I decided after i got out of the hospital almost 4 weeks ago that i am going to fight this cf battle even harder in honor of those who cant anymore. Of coarse i will be doing it for myself mostly, but fighting it in honor of 3 people that i KNOW for sure would do it if they were in my position gives me quite a bit of motivation. Thinking of others who have it worse does sometimes ease my stress about cf sometimes, but a pity party now and then isnt so bad either. I think we earn it and need to get the feelings out. I also Pray Quite a bit, and rely on God to help me thru this. I hoep you get back to feeling better soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Joni,
I know EXACTLY how you feel. I am usually able to remain positive and have a really good attitude till things go wrong. Then i get really down about things and its hard to pull myself back up. There are times when i think i was better off nto knowing as much about cf as i now do. I find myself worrying about things that may never happen but stick in the back of my mind. I do however like to arm myself with information, just in case any of these things do happen so there wont be too many surprises. It can be tough to remain positive, when we have negativity going on at the moment. I like you, dont want to live afraid and depressed, but i remind myself that what is goi ng on now will pass and i will get back to feeling positive again. One thing that gets me thru some bad things that cf throws at me is....I think of my friends who have passed away... 2 of them had cf ( one was 15 the other 16) and the other had lung cancer( he was 31) Then i remind myself that they would give their right arm and leg to be in my positiion, because i am still here and "savable" so to speak. Then i remind myself that all is not lost....It IS lost for them ( my three friends who are no longer here) But for me it is not lost , and i dont want to live like it is. I decided after i got out of the hospital almost 4 weeks ago that i am going to fight this cf battle even harder in honor of those who cant anymore. Of coarse i will be doing it for myself mostly, but fighting it in honor of 3 people that i KNOW for sure would do it if they were in my position gives me quite a bit of motivation. Thinking of others who have it worse does sometimes ease my stress about cf sometimes, but a pity party now and then isnt so bad either. I think we earn it and need to get the feelings out. I also Pray Quite a bit, and rely on God to help me thru this. I hoep you get back to feeling better soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I know EXACTLY how you feel. I am usually able to remain positive and have a really good attitude till things go wrong. Then i get really down about things and its hard to pull myself back up. There are times when i think i was better off nto knowing as much about cf as i now do. I find myself worrying about things that may never happen but stick in the back of my mind. I do however like to arm myself with information, just in case any of these things do happen so there wont be too many surprises. It can be tough to remain positive, when we have negativity going on at the moment. I like you, dont want to live afraid and depressed, but i remind myself that what is goi ng on now will pass and i will get back to feeling positive again. One thing that gets me thru some bad things that cf throws at me is....I think of my friends who have passed away... 2 of them had cf ( one was 15 the other 16) and the other had lung cancer( he was 31) Then i remind myself that they would give their right arm and leg to be in my positiion, because i am still here and "savable" so to speak. Then i remind myself that all is not lost....It IS lost for them ( my three friends who are no longer here) But for me it is not lost , and i dont want to live like it is. I decided after i got out of the hospital almost 4 weeks ago that i am going to fight this cf battle even harder in honor of those who cant anymore. Of coarse i will be doing it for myself mostly, but fighting it in honor of 3 people that i KNOW for sure would do it if they were in my position gives me quite a bit of motivation. Thinking of others who have it worse does sometimes ease my stress about cf sometimes, but a pity party now and then isnt so bad either. I think we earn it and need to get the feelings out. I also Pray Quite a bit, and rely on God to help me thru this. I hoep you get back to feeling better soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Joni,
I know EXACTLY how you feel. I am usually able to remain positive and have a really good attitude till things go wrong. Then i get really down about things and its hard to pull myself back up. There are times when i think i was better off nto knowing as much about cf as i now do. I find myself worrying about things that may never happen but stick in the back of my mind. I do however like to arm myself with information, just in case any of these things do happen so there wont be too many surprises. It can be tough to remain positive, when we have negativity going on at the moment. I like you, dont want to live afraid and depressed, but i remind myself that what is goi ng on now will pass and i will get back to feeling positive again. One thing that gets me thru some bad things that cf throws at me is....I think of my friends who have passed away... 2 of them had cf ( one was 15 the other 16) and the other had lung cancer( he was 31) Then i remind myself that they would give their right arm and leg to be in my positiion, because i am still here and "savable" so to speak. Then i remind myself that all is not lost....It IS lost for them ( my three friends who are no longer here) But for me it is not lost , and i dont want to live like it is. I decided after i got out of the hospital almost 4 weeks ago that i am going to fight this cf battle even harder in honor of those who cant anymore. Of coarse i will be doing it for myself mostly, but fighting it in honor of 3 people that i KNOW for sure would do it if they were in my position gives me quite a bit of motivation. Thinking of others who have it worse does sometimes ease my stress about cf sometimes, but a pity party now and then isnt so bad either. I think we earn it and need to get the feelings out. I also Pray Quite a bit, and rely on God to help me thru this. I hoep you get back to feeling better soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I know EXACTLY how you feel. I am usually able to remain positive and have a really good attitude till things go wrong. Then i get really down about things and its hard to pull myself back up. There are times when i think i was better off nto knowing as much about cf as i now do. I find myself worrying about things that may never happen but stick in the back of my mind. I do however like to arm myself with information, just in case any of these things do happen so there wont be too many surprises. It can be tough to remain positive, when we have negativity going on at the moment. I like you, dont want to live afraid and depressed, but i remind myself that what is goi ng on now will pass and i will get back to feeling positive again. One thing that gets me thru some bad things that cf throws at me is....I think of my friends who have passed away... 2 of them had cf ( one was 15 the other 16) and the other had lung cancer( he was 31) Then i remind myself that they would give their right arm and leg to be in my positiion, because i am still here and "savable" so to speak. Then i remind myself that all is not lost....It IS lost for them ( my three friends who are no longer here) But for me it is not lost , and i dont want to live like it is. I decided after i got out of the hospital almost 4 weeks ago that i am going to fight this cf battle even harder in honor of those who cant anymore. Of coarse i will be doing it for myself mostly, but fighting it in honor of 3 people that i KNOW for sure would do it if they were in my position gives me quite a bit of motivation. Thinking of others who have it worse does sometimes ease my stress about cf sometimes, but a pity party now and then isnt so bad either. I think we earn it and need to get the feelings out. I also Pray Quite a bit, and rely on God to help me thru this. I hoep you get back to feeling better soon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thank you all for your encourageing words, i appreciate it. Sometimes you need a little pep talk. I think that's what is so great about this site, giving and receiving encouragement is healing for both parties. I'm so glad that i've found it !!!!! Thanks again-------Joni 54 y/o w c/f
Thank you all for your encourageing words, i appreciate it. Sometimes you need a little pep talk. I think that's what is so great about this site, giving and receiving encouragement is healing for both parties. I'm so glad that i've found it !!!!! Thanks again-------Joni 54 y/o w c/f