Thank you all for your encourageing words, i appreciate it. Sometimes you need a little pep talk. I think that's what is so great about this site, giving and receiving encouragement is healing for both parties. I'm so glad that i've found it !!!!! Thanks again-------Joni 54 y/o w c/f
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How do you stay positive?
- Thread starter beleache
- Start date
M
mneville
Guest
I don't have CF but my son was diagnosed at 8 days old and is now two. I agree with Lindsey. When Aidan is well, CF doesn't seem too bad. When he's sick, I cry and get so scared for the future. I also limit what I read on here, some of it is just too depressing. I also ackowledge that people deal with things so differently. There are people without CF who are negative and depressing and not wanting to live. Add CF to their mix and it's probably worse.
I have truly come to grips with the fact that CF does not cause everything. In the beginning, everytime something went wrong, I blamed CF even if it had nothing to do with Aidan's health. People deal with hardships all the time in their life- worse than CF. So I just have to accept it, do Aidan's treatments and move on with life. Is it going to be really hard sometimes? Of course, but whoever guaranteed that life would be easy? Honesly we are some of the most blessed people on the planet, CF or not.
Megan
I have truly come to grips with the fact that CF does not cause everything. In the beginning, everytime something went wrong, I blamed CF even if it had nothing to do with Aidan's health. People deal with hardships all the time in their life- worse than CF. So I just have to accept it, do Aidan's treatments and move on with life. Is it going to be really hard sometimes? Of course, but whoever guaranteed that life would be easy? Honesly we are some of the most blessed people on the planet, CF or not.
Megan
M
mneville
Guest
I don't have CF but my son was diagnosed at 8 days old and is now two. I agree with Lindsey. When Aidan is well, CF doesn't seem too bad. When he's sick, I cry and get so scared for the future. I also limit what I read on here, some of it is just too depressing. I also ackowledge that people deal with things so differently. There are people without CF who are negative and depressing and not wanting to live. Add CF to their mix and it's probably worse.
I have truly come to grips with the fact that CF does not cause everything. In the beginning, everytime something went wrong, I blamed CF even if it had nothing to do with Aidan's health. People deal with hardships all the time in their life- worse than CF. So I just have to accept it, do Aidan's treatments and move on with life. Is it going to be really hard sometimes? Of course, but whoever guaranteed that life would be easy? Honesly we are some of the most blessed people on the planet, CF or not.
Megan
I have truly come to grips with the fact that CF does not cause everything. In the beginning, everytime something went wrong, I blamed CF even if it had nothing to do with Aidan's health. People deal with hardships all the time in their life- worse than CF. So I just have to accept it, do Aidan's treatments and move on with life. Is it going to be really hard sometimes? Of course, but whoever guaranteed that life would be easy? Honesly we are some of the most blessed people on the planet, CF or not.
Megan
M
mneville
Guest
I don't have CF but my son was diagnosed at 8 days old and is now two. I agree with Lindsey. When Aidan is well, CF doesn't seem too bad. When he's sick, I cry and get so scared for the future. I also limit what I read on here, some of it is just too depressing. I also ackowledge that people deal with things so differently. There are people without CF who are negative and depressing and not wanting to live. Add CF to their mix and it's probably worse.
I have truly come to grips with the fact that CF does not cause everything. In the beginning, everytime something went wrong, I blamed CF even if it had nothing to do with Aidan's health. People deal with hardships all the time in their life- worse than CF. So I just have to accept it, do Aidan's treatments and move on with life. Is it going to be really hard sometimes? Of course, but whoever guaranteed that life would be easy? Honesly we are some of the most blessed people on the planet, CF or not.
Megan
I have truly come to grips with the fact that CF does not cause everything. In the beginning, everytime something went wrong, I blamed CF even if it had nothing to do with Aidan's health. People deal with hardships all the time in their life- worse than CF. So I just have to accept it, do Aidan's treatments and move on with life. Is it going to be really hard sometimes? Of course, but whoever guaranteed that life would be easy? Honesly we are some of the most blessed people on the planet, CF or not.
Megan
Joni, I know exactly how you feel. I also wonder how to stay positive. Especially since every time I stop IV's I spike fevers within a couple days, for the last 4 months. It is really hard. I have a great support system though, between my parents and my boyfriend. My mom and I say that we can lean on each other and hopefully we are not both down at the same time. I get really upset to seeing how it affects both my parents, it is really hard to hear about your dad crying because you are sick. It is very scarry and I don't know what is gonna happen, but I leave that in Gods hands. And I just do the best I can to stay up, this site is really helpful to be able to vent and get some encouragement from people that know what you are going through. Take Care, Donna
Joni, I know exactly how you feel. I also wonder how to stay positive. Especially since every time I stop IV's I spike fevers within a couple days, for the last 4 months. It is really hard. I have a great support system though, between my parents and my boyfriend. My mom and I say that we can lean on each other and hopefully we are not both down at the same time. I get really upset to seeing how it affects both my parents, it is really hard to hear about your dad crying because you are sick. It is very scarry and I don't know what is gonna happen, but I leave that in Gods hands. And I just do the best I can to stay up, this site is really helpful to be able to vent and get some encouragement from people that know what you are going through. Take Care, Donna
Joni, I know exactly how you feel. I also wonder how to stay positive. Especially since every time I stop IV's I spike fevers within a couple days, for the last 4 months. It is really hard. I have a great support system though, between my parents and my boyfriend. My mom and I say that we can lean on each other and hopefully we are not both down at the same time. I get really upset to seeing how it affects both my parents, it is really hard to hear about your dad crying because you are sick. It is very scarry and I don't know what is gonna happen, but I leave that in Gods hands. And I just do the best I can to stay up, this site is really helpful to be able to vent and get some encouragement from people that know what you are going through. Take Care, Donna
I too have been feeling down as I am getting older and my Cf is worsening along with now I have Diabetes. It is hard to be a fighter. I feel like when I was younger it was easier cause I was healthier and just did not know or think like that of an adult now.
I try to not stay upset for too long and just get over it. What choice do we have? If we do not take care of ourselves it will get even WORSE.
I too feel down when not feeling well which seems to be much more often as I get older. Just had a tune up and I am back on CIpro and coughing so I am NOT HAPPY right now. I just wanna scream sometimes!!! It is really hard to live with CF but you gotta do it!!! RIght!!!
Thanks for this post, I really needed some suggestions on how to stay "up".
To all, feel well in mind, spririt and body!!!!
Jennifer 34 years old with CF and CFRD...Soon to be 35!
I try to not stay upset for too long and just get over it. What choice do we have? If we do not take care of ourselves it will get even WORSE.
I too feel down when not feeling well which seems to be much more often as I get older. Just had a tune up and I am back on CIpro and coughing so I am NOT HAPPY right now. I just wanna scream sometimes!!! It is really hard to live with CF but you gotta do it!!! RIght!!!
Thanks for this post, I really needed some suggestions on how to stay "up".
To all, feel well in mind, spririt and body!!!!
Jennifer 34 years old with CF and CFRD...Soon to be 35!
I too have been feeling down as I am getting older and my Cf is worsening along with now I have Diabetes. It is hard to be a fighter. I feel like when I was younger it was easier cause I was healthier and just did not know or think like that of an adult now.
I try to not stay upset for too long and just get over it. What choice do we have? If we do not take care of ourselves it will get even WORSE.
I too feel down when not feeling well which seems to be much more often as I get older. Just had a tune up and I am back on CIpro and coughing so I am NOT HAPPY right now. I just wanna scream sometimes!!! It is really hard to live with CF but you gotta do it!!! RIght!!!
Thanks for this post, I really needed some suggestions on how to stay "up".
To all, feel well in mind, spririt and body!!!!
Jennifer 34 years old with CF and CFRD...Soon to be 35!
I try to not stay upset for too long and just get over it. What choice do we have? If we do not take care of ourselves it will get even WORSE.
I too feel down when not feeling well which seems to be much more often as I get older. Just had a tune up and I am back on CIpro and coughing so I am NOT HAPPY right now. I just wanna scream sometimes!!! It is really hard to live with CF but you gotta do it!!! RIght!!!
Thanks for this post, I really needed some suggestions on how to stay "up".
To all, feel well in mind, spririt and body!!!!
Jennifer 34 years old with CF and CFRD...Soon to be 35!
I too have been feeling down as I am getting older and my Cf is worsening along with now I have Diabetes. It is hard to be a fighter. I feel like when I was younger it was easier cause I was healthier and just did not know or think like that of an adult now.
I try to not stay upset for too long and just get over it. What choice do we have? If we do not take care of ourselves it will get even WORSE.
I too feel down when not feeling well which seems to be much more often as I get older. Just had a tune up and I am back on CIpro and coughing so I am NOT HAPPY right now. I just wanna scream sometimes!!! It is really hard to live with CF but you gotta do it!!! RIght!!!
Thanks for this post, I really needed some suggestions on how to stay "up".
To all, feel well in mind, spririt and body!!!!
Jennifer 34 years old with CF and CFRD...Soon to be 35!
I try to not stay upset for too long and just get over it. What choice do we have? If we do not take care of ourselves it will get even WORSE.
I too feel down when not feeling well which seems to be much more often as I get older. Just had a tune up and I am back on CIpro and coughing so I am NOT HAPPY right now. I just wanna scream sometimes!!! It is really hard to live with CF but you gotta do it!!! RIght!!!
Thanks for this post, I really needed some suggestions on how to stay "up".
To all, feel well in mind, spririt and body!!!!
Jennifer 34 years old with CF and CFRD...Soon to be 35!
letsrockcfem
New member
Hey Joni! As we all know CF is not the easiest thing to deal with...all the daily treatments, IV's, eating and everything else just to keep us healthy. Sometimes we do all the stuff we are supposed to do and we still don't feel better and that can for sure get us down. I keep reading about people who get IV's and then a month later they are back on them..that is just tough..and they are tough too!! We are all tough, we know all the statistics and read up on stuff and yet we still do our treatmens each day and do what we have to do to keep us feeling good. We will do whatever it takes to help us feel better and be able to keep ourselves going each day.
For me my family has always been the most supportive people ever..our motto is "laughter is the best medicine." It is true especially for me..I do not go a day without full out laughing(couughing)..when we used to fall down my mom would laugh (not to be mean..sounds crazy) and then if I saw her laugh I would laugh and I'd forget about my scraped knee. I try and surround myself with people who make me laugh and make me feel good. Sometimes I do break down after reading about something, or I have some anxiety about my life and what is going to happen to me..I then suck it up and think about what I am doing to help myself and everyone else living with CF.
Whenever I'm down I try to find something that really makes me laugh or keep me going. CF sucks flat out but we have to deal with it, there's no way around it. Just stay positive and laugh, a lot!
Rock CF
For me my family has always been the most supportive people ever..our motto is "laughter is the best medicine." It is true especially for me..I do not go a day without full out laughing(couughing)..when we used to fall down my mom would laugh (not to be mean..sounds crazy) and then if I saw her laugh I would laugh and I'd forget about my scraped knee. I try and surround myself with people who make me laugh and make me feel good. Sometimes I do break down after reading about something, or I have some anxiety about my life and what is going to happen to me..I then suck it up and think about what I am doing to help myself and everyone else living with CF.
Whenever I'm down I try to find something that really makes me laugh or keep me going. CF sucks flat out but we have to deal with it, there's no way around it. Just stay positive and laugh, a lot!
Rock CF