Here's another perspective from a mom of a 13 yr. old daughter who has cf. She is tired a lot and cannot keep up with normal kids. She can't walk or run as long or as far as her sisters, requires breaks a lot. She has to take a lot of meds. and it is difficult for her to spend the night with friends or go to parties that coincide with med. times. When we go somewhere as a family for a day outing, I have list of meds. to pack. She can't even eat without meds. Then there are all the Dr. appts. We have financial burdens with the copays for office visits and meds. She worries about her health as do I and that creates stress, especially if a cold or virus sneaks up on us. CF has changed our lives forever and not a day goes by that we aren't faced with it. You can't forget about it for a day or a week, it is there and requires treatment every day, 7 days a week. It doesn't take breaks for holidays, in fact these are the times when it sinks in more. When we go to a family dinner for a holiday and I have to pull out meds. or the nebulizer or whatever, it reminds everyone. My daughter's friends and their parents don't know about the disease and I feel like we are constantly explaining it to someone. We also have trouble going out to eat. Even though many restaraunts have non smoking areas, the smoke still travels. We have a very hard time eating out if there is smoking in the building. (there is not smoke free section, only non-smoking and there is a difference.) Hope this helps.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
How does CF restrict you?
- Thread starter Lance2020x
- Start date
Here's another perspective from a mom of a 13 yr. old daughter who has cf. She is tired a lot and cannot keep up with normal kids. She can't walk or run as long or as far as her sisters, requires breaks a lot. She has to take a lot of meds. and it is difficult for her to spend the night with friends or go to parties that coincide with med. times. When we go somewhere as a family for a day outing, I have list of meds. to pack. She can't even eat without meds. Then there are all the Dr. appts. We have financial burdens with the copays for office visits and meds. She worries about her health as do I and that creates stress, especially if a cold or virus sneaks up on us. CF has changed our lives forever and not a day goes by that we aren't faced with it. You can't forget about it for a day or a week, it is there and requires treatment every day, 7 days a week. It doesn't take breaks for holidays, in fact these are the times when it sinks in more. When we go to a family dinner for a holiday and I have to pull out meds. or the nebulizer or whatever, it reminds everyone. My daughter's friends and their parents don't know about the disease and I feel like we are constantly explaining it to someone. We also have trouble going out to eat. Even though many restaraunts have non smoking areas, the smoke still travels. We have a very hard time eating out if there is smoking in the building. (there is not smoke free section, only non-smoking and there is a difference.) Hope this helps.
I agree totally with all the previous posts on this topic. CF can be very limiting. Even in the way it makes you think. But there is one thing I would like to add. Since this is the adult board, I'll begin by saying that this affects my relationships, mentally and physically, and I'll be specific.
I've had some serious relationships in the past with men and found that as my health got worse, so did my relationships. There are the obvious things, such as dealing with the idea of marriage and family and planning for medical expenses. But there was another area that really limited me as things progressed. The physical act of intercourse. It does affect my breathing and I have learned to deal with that. But I also cough up large amounts of blood during this act. It is very disruptive and has caused me to just stop being active in this area all together.
I hope I haven't offended anyone by saying this, but it is a fact. And not that this is something I feel has ruined my life, but it does make me very different from most women my age. It has also kept me from seeking a husband at this point in my life. Maybe if I get a transplant or something, that will change.
CF teaches you to adapt to certain things. I am always telling my non-CF friends that they would be surprised how they would get used to breathing with a PFT of 45. Your body adapts. I've also learned to adapt to most obstacles that come up. But this is one thing that has just stopped things for me all together.
I've had some serious relationships in the past with men and found that as my health got worse, so did my relationships. There are the obvious things, such as dealing with the idea of marriage and family and planning for medical expenses. But there was another area that really limited me as things progressed. The physical act of intercourse. It does affect my breathing and I have learned to deal with that. But I also cough up large amounts of blood during this act. It is very disruptive and has caused me to just stop being active in this area all together.
I hope I haven't offended anyone by saying this, but it is a fact. And not that this is something I feel has ruined my life, but it does make me very different from most women my age. It has also kept me from seeking a husband at this point in my life. Maybe if I get a transplant or something, that will change.
CF teaches you to adapt to certain things. I am always telling my non-CF friends that they would be surprised how they would get used to breathing with a PFT of 45. Your body adapts. I've also learned to adapt to most obstacles that come up. But this is one thing that has just stopped things for me all together.
I agree totally with all the previous posts on this topic. CF can be very limiting. Even in the way it makes you think. But there is one thing I would like to add. Since this is the adult board, I'll begin by saying that this affects my relationships, mentally and physically, and I'll be specific.
I've had some serious relationships in the past with men and found that as my health got worse, so did my relationships. There are the obvious things, such as dealing with the idea of marriage and family and planning for medical expenses. But there was another area that really limited me as things progressed. The physical act of intercourse. It does affect my breathing and I have learned to deal with that. But I also cough up large amounts of blood during this act. It is very disruptive and has caused me to just stop being active in this area all together.
I hope I haven't offended anyone by saying this, but it is a fact. And not that this is something I feel has ruined my life, but it does make me very different from most women my age. It has also kept me from seeking a husband at this point in my life. Maybe if I get a transplant or something, that will change.
CF teaches you to adapt to certain things. I am always telling my non-CF friends that they would be surprised how they would get used to breathing with a PFT of 45. Your body adapts. I've also learned to adapt to most obstacles that come up. But this is one thing that has just stopped things for me all together.
I've had some serious relationships in the past with men and found that as my health got worse, so did my relationships. There are the obvious things, such as dealing with the idea of marriage and family and planning for medical expenses. But there was another area that really limited me as things progressed. The physical act of intercourse. It does affect my breathing and I have learned to deal with that. But I also cough up large amounts of blood during this act. It is very disruptive and has caused me to just stop being active in this area all together.
I hope I haven't offended anyone by saying this, but it is a fact. And not that this is something I feel has ruined my life, but it does make me very different from most women my age. It has also kept me from seeking a husband at this point in my life. Maybe if I get a transplant or something, that will change.
CF teaches you to adapt to certain things. I am always telling my non-CF friends that they would be surprised how they would get used to breathing with a PFT of 45. Your body adapts. I've also learned to adapt to most obstacles that come up. But this is one thing that has just stopped things for me all together.
I agree totally with all the previous posts on this topic. CF can be very limiting. Even in the way it makes you think. But there is one thing I would like to add. Since this is the adult board, I'll begin by saying that this affects my relationships, mentally and physically, and I'll be specific.
I've had some serious relationships in the past with men and found that as my health got worse, so did my relationships. There are the obvious things, such as dealing with the idea of marriage and family and planning for medical expenses. But there was another area that really limited me as things progressed. The physical act of intercourse. It does affect my breathing and I have learned to deal with that. But I also cough up large amounts of blood during this act. It is very disruptive and has caused me to just stop being active in this area all together.
I hope I haven't offended anyone by saying this, but it is a fact. And not that this is something I feel has ruined my life, but it does make me very different from most women my age. It has also kept me from seeking a husband at this point in my life. Maybe if I get a transplant or something, that will change.
CF teaches you to adapt to certain things. I am always telling my non-CF friends that they would be surprised how they would get used to breathing with a PFT of 45. Your body adapts. I've also learned to adapt to most obstacles that come up. But this is one thing that has just stopped things for me all together.
I've had some serious relationships in the past with men and found that as my health got worse, so did my relationships. There are the obvious things, such as dealing with the idea of marriage and family and planning for medical expenses. But there was another area that really limited me as things progressed. The physical act of intercourse. It does affect my breathing and I have learned to deal with that. But I also cough up large amounts of blood during this act. It is very disruptive and has caused me to just stop being active in this area all together.
I hope I haven't offended anyone by saying this, but it is a fact. And not that this is something I feel has ruined my life, but it does make me very different from most women my age. It has also kept me from seeking a husband at this point in my life. Maybe if I get a transplant or something, that will change.
CF teaches you to adapt to certain things. I am always telling my non-CF friends that they would be surprised how they would get used to breathing with a PFT of 45. Your body adapts. I've also learned to adapt to most obstacles that come up. But this is one thing that has just stopped things for me all together.