How improtant is prevention in doing chest therapy

kayleesgrandma

New member
Thanks everyone, I am going to copy all these replys, and show her, hopefully she will read them. Heather--that link is excellent! Thanks <img src="i/expressions/heart.gif" border="0">
 

kayleesgrandma

New member
Thanks everyone, I am going to copy all these replys, and show her, hopefully she will read them. Heather--that link is excellent! Thanks <img src="i/expressions/heart.gif" border="0">
 

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

Unfortunately, people are going to do what they want to do. You cannot force another person to chance their attitudes. No matter how much convincing evidence people are presented with, they won't be persuaded. Let the woman stew in her own juices--it's her kid, and her responsibility to work with the doctors to get the kid the right treatments.</end quote></div>



Terri & I spoke about this a bit before she posted. It is so hard to sit back and just let it happen. It some ways she wants to leave alone so not "if", but "when" the child gets sick it will be obvious, but sadly the child is the one getting hurt and the parent may/may not learn. It is the womans kid and her responsibility, but that doesnt mean Terri shouldnt at least try. If for no other reason to say that someone tried~ We dont know if the doctor is saying dont do therapy, do therapy, do it once do it twice OR if no matter what the doctor recommends the parent is just does what they want. OH TO BE ON THE OUTSIDE......</end quote></div>

I didn't say that Terri shouldn't try. It's obvious she has. It seems to be one of those "pearls before swine" type situations. Terri's done what she can, and at this point, she's only going to upset herself further.

The definition of insanity is repeating the same behavior and expecting different results. This mother is unlikely to change her attitude or behavior just because she is told repeatedly that what's she's doing is a bad idea. It's probably just her wacked out way of coping and living in denial.

To continue to push push push against her and make her feel bad about her parenting style is only going to alienate her. When the time comes when she does realize she needs help and support, she might be afraid of hearing someone say "I told you so."

Personally, I think it's probably a better idea to keep the mouth shut and simply be supportive and available. That doesn't mean condoning the bad behavior. It just means being pleasant and courteous for the sake of the relationships and people involved.
 

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

Unfortunately, people are going to do what they want to do. You cannot force another person to chance their attitudes. No matter how much convincing evidence people are presented with, they won't be persuaded. Let the woman stew in her own juices--it's her kid, and her responsibility to work with the doctors to get the kid the right treatments.</end quote></div>



Terri & I spoke about this a bit before she posted. It is so hard to sit back and just let it happen. It some ways she wants to leave alone so not "if", but "when" the child gets sick it will be obvious, but sadly the child is the one getting hurt and the parent may/may not learn. It is the womans kid and her responsibility, but that doesnt mean Terri shouldnt at least try. If for no other reason to say that someone tried~ We dont know if the doctor is saying dont do therapy, do therapy, do it once do it twice OR if no matter what the doctor recommends the parent is just does what they want. OH TO BE ON THE OUTSIDE......</end quote></div>

I didn't say that Terri shouldn't try. It's obvious she has. It seems to be one of those "pearls before swine" type situations. Terri's done what she can, and at this point, she's only going to upset herself further.

The definition of insanity is repeating the same behavior and expecting different results. This mother is unlikely to change her attitude or behavior just because she is told repeatedly that what's she's doing is a bad idea. It's probably just her wacked out way of coping and living in denial.

To continue to push push push against her and make her feel bad about her parenting style is only going to alienate her. When the time comes when she does realize she needs help and support, she might be afraid of hearing someone say "I told you so."

Personally, I think it's probably a better idea to keep the mouth shut and simply be supportive and available. That doesn't mean condoning the bad behavior. It just means being pleasant and courteous for the sake of the relationships and people involved.
 

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

Unfortunately, people are going to do what they want to do. You cannot force another person to chance their attitudes. No matter how much convincing evidence people are presented with, they won't be persuaded. Let the woman stew in her own juices--it's her kid, and her responsibility to work with the doctors to get the kid the right treatments.</end quote></div>



Terri & I spoke about this a bit before she posted. It is so hard to sit back and just let it happen. It some ways she wants to leave alone so not "if", but "when" the child gets sick it will be obvious, but sadly the child is the one getting hurt and the parent may/may not learn. It is the womans kid and her responsibility, but that doesnt mean Terri shouldnt at least try. If for no other reason to say that someone tried~ We dont know if the doctor is saying dont do therapy, do therapy, do it once do it twice OR if no matter what the doctor recommends the parent is just does what they want. OH TO BE ON THE OUTSIDE......</end quote></div>

I didn't say that Terri shouldn't try. It's obvious she has. It seems to be one of those "pearls before swine" type situations. Terri's done what she can, and at this point, she's only going to upset herself further.

The definition of insanity is repeating the same behavior and expecting different results. This mother is unlikely to change her attitude or behavior just because she is told repeatedly that what's she's doing is a bad idea. It's probably just her wacked out way of coping and living in denial.

To continue to push push push against her and make her feel bad about her parenting style is only going to alienate her. When the time comes when she does realize she needs help and support, she might be afraid of hearing someone say "I told you so."

Personally, I think it's probably a better idea to keep the mouth shut and simply be supportive and available. That doesn't mean condoning the bad behavior. It just means being pleasant and courteous for the sake of the relationships and people involved.
 

kybert

New member
she sometimes misses a day of treatment??? *gasp* shock horror!!! what a bad mum, considering no one here has ever skipped a treatment in their whole lives... right?

as for the issue of cpt once a day, i say show her the info you want to show and if she doesnt change her mind then let her be. chances are the doctor has given the ok and if thats the case i doubt she will listen to someone who isnt a doctor or who isnt close to her. it could be worse, the child could be having no physio!
 

kybert

New member
she sometimes misses a day of treatment??? *gasp* shock horror!!! what a bad mum, considering no one here has ever skipped a treatment in their whole lives... right?

as for the issue of cpt once a day, i say show her the info you want to show and if she doesnt change her mind then let her be. chances are the doctor has given the ok and if thats the case i doubt she will listen to someone who isnt a doctor or who isnt close to her. it could be worse, the child could be having no physio!
 

kybert

New member
she sometimes misses a day of treatment??? *gasp* shock horror!!! what a bad mum, considering no one here has ever skipped a treatment in their whole lives... right?

as for the issue of cpt once a day, i say show her the info you want to show and if she doesnt change her mind then let her be. chances are the doctor has given the ok and if thats the case i doubt she will listen to someone who isnt a doctor or who isnt close to her. it could be worse, the child could be having no physio!
 

Jennifer1981

New member
You know I wish I could say something positive about this...

Growning up I saw this kind of stuff all the time. I swear that the parents are in plain denial. Ultimately, it's the children that pay the price. I remember one time being in the hospital and across the hall were CF twins (probably 6 months old). According to the staff, this mom would no sooner take one home and the other would be right back in for lung conditions. The staff was willing to bet money that the lady wasn't doing the treatments at home. Plus, she smoked in the house around her kids. I remember one time I happended to be in the lobby, and she was taking one of the twins home again. There she was outside smoking, and the baby was hardly covered. It was winter. I felt so bad for those twins and knew they didn't stand a chance.

I can honestly say that my parents very rarely missed my treatments as a child. Same for my sister. I truely believe that that is one of the keys to why we both are doing so well today. CF management starts actually before birth, in my opinion. For example, my Mom smoked when she conceived me. Thankfully the day she found out, she quit cold turkey. Thank Goodness! She took responsibility from STEP 1. She didn't even know at that time that I had CF. I get so pissed when I see pregnant Moms smoking, but now I'm going off topic...

I'm afraid you can show her whatever you want, but she won't listen until she is good and darn ready. Sadly at the expense of her son!!! I feel so bad for that poor child!!! I'll keep him in my thoughts...<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
You know I wish I could say something positive about this...

Growning up I saw this kind of stuff all the time. I swear that the parents are in plain denial. Ultimately, it's the children that pay the price. I remember one time being in the hospital and across the hall were CF twins (probably 6 months old). According to the staff, this mom would no sooner take one home and the other would be right back in for lung conditions. The staff was willing to bet money that the lady wasn't doing the treatments at home. Plus, she smoked in the house around her kids. I remember one time I happended to be in the lobby, and she was taking one of the twins home again. There she was outside smoking, and the baby was hardly covered. It was winter. I felt so bad for those twins and knew they didn't stand a chance.

I can honestly say that my parents very rarely missed my treatments as a child. Same for my sister. I truely believe that that is one of the keys to why we both are doing so well today. CF management starts actually before birth, in my opinion. For example, my Mom smoked when she conceived me. Thankfully the day she found out, she quit cold turkey. Thank Goodness! She took responsibility from STEP 1. She didn't even know at that time that I had CF. I get so pissed when I see pregnant Moms smoking, but now I'm going off topic...

I'm afraid you can show her whatever you want, but she won't listen until she is good and darn ready. Sadly at the expense of her son!!! I feel so bad for that poor child!!! I'll keep him in my thoughts...<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
You know I wish I could say something positive about this...

Growning up I saw this kind of stuff all the time. I swear that the parents are in plain denial. Ultimately, it's the children that pay the price. I remember one time being in the hospital and across the hall were CF twins (probably 6 months old). According to the staff, this mom would no sooner take one home and the other would be right back in for lung conditions. The staff was willing to bet money that the lady wasn't doing the treatments at home. Plus, she smoked in the house around her kids. I remember one time I happended to be in the lobby, and she was taking one of the twins home again. There she was outside smoking, and the baby was hardly covered. It was winter. I felt so bad for those twins and knew they didn't stand a chance.

I can honestly say that my parents very rarely missed my treatments as a child. Same for my sister. I truely believe that that is one of the keys to why we both are doing so well today. CF management starts actually before birth, in my opinion. For example, my Mom smoked when she conceived me. Thankfully the day she found out, she quit cold turkey. Thank Goodness! She took responsibility from STEP 1. She didn't even know at that time that I had CF. I get so pissed when I see pregnant Moms smoking, but now I'm going off topic...

I'm afraid you can show her whatever you want, but she won't listen until she is good and darn ready. Sadly at the expense of her son!!! I feel so bad for that poor child!!! I'll keep him in my thoughts...<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
And before I get attacked...

I think she is in DENIAL!!! Which then leads to the NEGLECT OF DOING TREATMENTS!!! Has she ever spoken to someone about how is is/isn't handling her son's diagonsis? I would recommend that to be a good starting point. It would help her better handle the situation.
 

Jennifer1981

New member
And before I get attacked...

I think she is in DENIAL!!! Which then leads to the NEGLECT OF DOING TREATMENTS!!! Has she ever spoken to someone about how is is/isn't handling her son's diagonsis? I would recommend that to be a good starting point. It would help her better handle the situation.
 

Jennifer1981

New member
And before I get attacked...

I think she is in DENIAL!!! Which then leads to the NEGLECT OF DOING TREATMENTS!!! Has she ever spoken to someone about how is is/isn't handling her son's diagonsis? I would recommend that to be a good starting point. It would help her better handle the situation.
 

zoeg

New member
Hi,

I just thought I'd add what we do. I have a 19 month old and we do CPT twice a day and 3-4 if sick. She has been doing great and I do believe it is the preventative care. My mom watches Kate when I am at work, and she will do the CPT for me as well. We are very lucky! When I took Kate to clinic in March, the respitory therapists came in just to see how things were going. I was shocked how surprised they were that we do this twice a day at least two min. per spot. I didn't think that was negotiable, but apparently a lot of parents don't do it (at least religiously). I'm just bummed Kate is on the small side and may have to wait another year for the vest. I cannot wait for that!

Zoe mom to Kate 19 months
 

zoeg

New member
Hi,

I just thought I'd add what we do. I have a 19 month old and we do CPT twice a day and 3-4 if sick. She has been doing great and I do believe it is the preventative care. My mom watches Kate when I am at work, and she will do the CPT for me as well. We are very lucky! When I took Kate to clinic in March, the respitory therapists came in just to see how things were going. I was shocked how surprised they were that we do this twice a day at least two min. per spot. I didn't think that was negotiable, but apparently a lot of parents don't do it (at least religiously). I'm just bummed Kate is on the small side and may have to wait another year for the vest. I cannot wait for that!

Zoe mom to Kate 19 months
 

zoeg

New member
Hi,

I just thought I'd add what we do. I have a 19 month old and we do CPT twice a day and 3-4 if sick. She has been doing great and I do believe it is the preventative care. My mom watches Kate when I am at work, and she will do the CPT for me as well. We are very lucky! When I took Kate to clinic in March, the respitory therapists came in just to see how things were going. I was shocked how surprised they were that we do this twice a day at least two min. per spot. I didn't think that was negotiable, but apparently a lot of parents don't do it (at least religiously). I'm just bummed Kate is on the small side and may have to wait another year for the vest. I cannot wait for that!

Zoe mom to Kate 19 months
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zoeg</b></i>

Hi,



I just thought I'd add what we do. I have a 19 month old and we do CPT twice a day and 3-4 if sick. She has been doing great and I do believe it is the preventative care. My mom watches Kate when I am at work, and she will do the CPT for me as well. We are very lucky! When I took Kate to clinic in March, the respitory therapists came in just to see how things were going. I was shocked how surprised they were that we do this twice a day at least two min. per spot. I didn't think that was negotiable, but apparently a lot of parents don't do it (at least religiously). I'm just bummed Kate is on the small side and may have to wait another year for the vest. I cannot wait for that!



Zoe mom to Kate 19 months</end quote></div>

I truly commend you on your efforts. Even tho its "questioned" if CPT is needed at early ages or before lung symptoms present themselves by some, I have to say this from experience......... It is much easier to grow up knowing the routine & having it incorporated into your lifestyle then to try & get into a disciplined way when you are older. Yes even with discipline & starting early there will be rebellious stages, but its like crushing your teeth regularly. If you are taught & the discipline is enforced & consequences are talked about then chances are better of it getting done throughout the rest of someones life.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zoeg</b></i>

Hi,



I just thought I'd add what we do. I have a 19 month old and we do CPT twice a day and 3-4 if sick. She has been doing great and I do believe it is the preventative care. My mom watches Kate when I am at work, and she will do the CPT for me as well. We are very lucky! When I took Kate to clinic in March, the respitory therapists came in just to see how things were going. I was shocked how surprised they were that we do this twice a day at least two min. per spot. I didn't think that was negotiable, but apparently a lot of parents don't do it (at least religiously). I'm just bummed Kate is on the small side and may have to wait another year for the vest. I cannot wait for that!



Zoe mom to Kate 19 months</end quote></div>

I truly commend you on your efforts. Even tho its "questioned" if CPT is needed at early ages or before lung symptoms present themselves by some, I have to say this from experience......... It is much easier to grow up knowing the routine & having it incorporated into your lifestyle then to try & get into a disciplined way when you are older. Yes even with discipline & starting early there will be rebellious stages, but its like crushing your teeth regularly. If you are taught & the discipline is enforced & consequences are talked about then chances are better of it getting done throughout the rest of someones life.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>zoeg</b></i>

Hi,



I just thought I'd add what we do. I have a 19 month old and we do CPT twice a day and 3-4 if sick. She has been doing great and I do believe it is the preventative care. My mom watches Kate when I am at work, and she will do the CPT for me as well. We are very lucky! When I took Kate to clinic in March, the respitory therapists came in just to see how things were going. I was shocked how surprised they were that we do this twice a day at least two min. per spot. I didn't think that was negotiable, but apparently a lot of parents don't do it (at least religiously). I'm just bummed Kate is on the small side and may have to wait another year for the vest. I cannot wait for that!



Zoe mom to Kate 19 months</end quote></div>

I truly commend you on your efforts. Even tho its "questioned" if CPT is needed at early ages or before lung symptoms present themselves by some, I have to say this from experience......... It is much easier to grow up knowing the routine & having it incorporated into your lifestyle then to try & get into a disciplined way when you are older. Yes even with discipline & starting early there will be rebellious stages, but its like crushing your teeth regularly. If you are taught & the discipline is enforced & consequences are talked about then chances are better of it getting done throughout the rest of someones life.
 
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