T
tammykrumrey
Guest
Hi Zoe. I have two daughters, who both have CF. My older daughter was dx at 14 months. I was pregnant with my second daughter at the time, and she was dx at 1 month (after being told she was only a carrier at two weeks old).
I have always said that I would never wish to have either one of my girls to have CF, but at least they will always have each other to understand what the other is going through. My sister has three sons, and only her oldest has CF, and it is different. They have different challenges than what we have. In my house, noone can feel 'sorry' for themselves that they have CF and their siblings don't (not sure if it happens often in other families or not) and no one can feel that the CF sibling is getting more attention (unless one is 'sick' and the other isn't).
I thought the most difficult part was the days prior to the Vest!! I was the one who did all the CPT, and it really wore me out having to do both girls. Then we got one machine/two vests, and the battle was who had to go first, etc.... Then finally we got two machines/two vests, and now the only worry is that someone doesn't push the 'on' button before the other one...heaven knows they can't let their sister can get done earlier than the them...lol!!!
One of my biggest concerns was that they were going to cross infect each other with every new 'bug'. When Hannah started culturing PA almost two years ago, my first comment was 'that sux' and my second comment was 'now Kayla is going to catch it too'. But, Hannah has been PA negative for about 6 months (fingers crossed) and Kayla has not yet ever cultured it. And they sleep in the same room (by their choice not mine) and do their vest together on the couch, etc...
I see you go to St. Louis Children's Hospital...that is where we go also! Who is your doctor?
I have always said that I would never wish to have either one of my girls to have CF, but at least they will always have each other to understand what the other is going through. My sister has three sons, and only her oldest has CF, and it is different. They have different challenges than what we have. In my house, noone can feel 'sorry' for themselves that they have CF and their siblings don't (not sure if it happens often in other families or not) and no one can feel that the CF sibling is getting more attention (unless one is 'sick' and the other isn't).
I thought the most difficult part was the days prior to the Vest!! I was the one who did all the CPT, and it really wore me out having to do both girls. Then we got one machine/two vests, and the battle was who had to go first, etc.... Then finally we got two machines/two vests, and now the only worry is that someone doesn't push the 'on' button before the other one...heaven knows they can't let their sister can get done earlier than the them...lol!!!
One of my biggest concerns was that they were going to cross infect each other with every new 'bug'. When Hannah started culturing PA almost two years ago, my first comment was 'that sux' and my second comment was 'now Kayla is going to catch it too'. But, Hannah has been PA negative for about 6 months (fingers crossed) and Kayla has not yet ever cultured it. And they sleep in the same room (by their choice not mine) and do their vest together on the couch, etc...
I see you go to St. Louis Children's Hospital...that is where we go also! Who is your doctor?