How is this possible????

H

hopeforever601

New member
I don't know if I am long torso or not. I am carrying them pretty low and it is so weird how good I feel. I keep telling my doctors to run tests on me. Their is something to being pregnant and with cf. Maybe the extra blood flow of the baby? Maybe shear determination knowing their is life inside you? Maybe something is released in pregnancy that makes the lungs magically work? My cf doc said it is not ethical to test women who have cf but their has to be something about this. Their are too few of us who get pregnant I am told to study so it bums me out that pregnancy is doing something to us that helps most of us.. But so much that I would gain 23% in fev1? I have had this coctail before in my tuneups but never had this good of an outcome. Not since I was in middle school and I am 29 now!

We did find out just recently I am pancreatic insufficient when for a long time they thought I was. Maybe added enzymes? How much of an increase did everyone else have? They keep telling me in cf clinic that these numbers will go down with the added pressure of the babies on my diaphram but I am half way there at 21 weeks today and it felt so good to walk my three miles today and have my feet wear out before my lungs!

Sharing in a cup of life!
Kel
 
H

hopeforever601

New member
I don't know if I am long torso or not. I am carrying them pretty low and it is so weird how good I feel. I keep telling my doctors to run tests on me. Their is something to being pregnant and with cf. Maybe the extra blood flow of the baby? Maybe shear determination knowing their is life inside you? Maybe something is released in pregnancy that makes the lungs magically work? My cf doc said it is not ethical to test women who have cf but their has to be something about this. Their are too few of us who get pregnant I am told to study so it bums me out that pregnancy is doing something to us that helps most of us.. But so much that I would gain 23% in fev1? I have had this coctail before in my tuneups but never had this good of an outcome. Not since I was in middle school and I am 29 now!

We did find out just recently I am pancreatic insufficient when for a long time they thought I was. Maybe added enzymes? How much of an increase did everyone else have? They keep telling me in cf clinic that these numbers will go down with the added pressure of the babies on my diaphram but I am half way there at 21 weeks today and it felt so good to walk my three miles today and have my feet wear out before my lungs!

Sharing in a cup of life!
Kel
 
H

hopeforever601

New member
I don't know if I am long torso or not. I am carrying them pretty low and it is so weird how good I feel. I keep telling my doctors to run tests on me. Their is something to being pregnant and with cf. Maybe the extra blood flow of the baby? Maybe shear determination knowing their is life inside you? Maybe something is released in pregnancy that makes the lungs magically work? My cf doc said it is not ethical to test women who have cf but their has to be something about this. Their are too few of us who get pregnant I am told to study so it bums me out that pregnancy is doing something to us that helps most of us.. But so much that I would gain 23% in fev1? I have had this coctail before in my tuneups but never had this good of an outcome. Not since I was in middle school and I am 29 now!

We did find out just recently I am pancreatic insufficient when for a long time they thought I was. Maybe added enzymes? How much of an increase did everyone else have? They keep telling me in cf clinic that these numbers will go down with the added pressure of the babies on my diaphram but I am half way there at 21 weeks today and it felt so good to walk my three miles today and have my feet wear out before my lungs!

Sharing in a cup of life!
Kel
 
H

hopeforever601

New member
I don't know if I am long torso or not. I am carrying them pretty low and it is so weird how good I feel. I keep telling my doctors to run tests on me. Their is something to being pregnant and with cf. Maybe the extra blood flow of the baby? Maybe shear determination knowing their is life inside you? Maybe something is released in pregnancy that makes the lungs magically work? My cf doc said it is not ethical to test women who have cf but their has to be something about this. Their are too few of us who get pregnant I am told to study so it bums me out that pregnancy is doing something to us that helps most of us.. But so much that I would gain 23% in fev1? I have had this coctail before in my tuneups but never had this good of an outcome. Not since I was in middle school and I am 29 now!

We did find out just recently I am pancreatic insufficient when for a long time they thought I was. Maybe added enzymes? How much of an increase did everyone else have? They keep telling me in cf clinic that these numbers will go down with the added pressure of the babies on my diaphram but I am half way there at 21 weeks today and it felt so good to walk my three miles today and have my feet wear out before my lungs!

Sharing in a cup of life!
Kel
 
H

hopeforever601

New member
I don't know if I am long torso or not. I am carrying them pretty low and it is so weird how good I feel. I keep telling my doctors to run tests on me. Their is something to being pregnant and with cf. Maybe the extra blood flow of the baby? Maybe shear determination knowing their is life inside you? Maybe something is released in pregnancy that makes the lungs magically work? My cf doc said it is not ethical to test women who have cf but their has to be something about this. Their are too few of us who get pregnant I am told to study so it bums me out that pregnancy is doing something to us that helps most of us.. But so much that I would gain 23% in fev1? I have had this coctail before in my tuneups but never had this good of an outcome. Not since I was in middle school and I am 29 now!

We did find out just recently I am pancreatic insufficient when for a long time they thought I was. Maybe added enzymes? How much of an increase did everyone else have? They keep telling me in cf clinic that these numbers will go down with the added pressure of the babies on my diaphram but I am half way there at 21 weeks today and it felt so good to walk my three miles today and have my feet wear out before my lungs!

Sharing in a cup of life!
Kel
 
M

mom2lillian

New member
Kel

In my clinci I believe I am the 6th one to have a child and my docs are pro-parenting for their women in the 'right place in life'. Every one of their patients has done better after having children then they did before so just wait, there might be more good to come! On here is the only time I have heard of poeple doing worse post children and I think amybe that is more from doing too much than anything.
 
M

mom2lillian

New member
Kel

In my clinci I believe I am the 6th one to have a child and my docs are pro-parenting for their women in the 'right place in life'. Every one of their patients has done better after having children then they did before so just wait, there might be more good to come! On here is the only time I have heard of poeple doing worse post children and I think amybe that is more from doing too much than anything.
 
M

mom2lillian

New member
Kel

In my clinci I believe I am the 6th one to have a child and my docs are pro-parenting for their women in the 'right place in life'. Every one of their patients has done better after having children then they did before so just wait, there might be more good to come! On here is the only time I have heard of poeple doing worse post children and I think amybe that is more from doing too much than anything.
 
M

mom2lillian

New member
Kel

In my clinci I believe I am the 6th one to have a child and my docs are pro-parenting for their women in the 'right place in life'. Every one of their patients has done better after having children then they did before so just wait, there might be more good to come! On here is the only time I have heard of poeple doing worse post children and I think amybe that is more from doing too much than anything.
 
M

mom2lillian

New member
Kel

In my clinci I believe I am the 6th one to have a child and my docs are pro-parenting for their women in the 'right place in life'. Every one of their patients has done better after having children then they did before so just wait, there might be more good to come! On here is the only time I have heard of poeple doing worse post children and I think amybe that is more from doing too much than anything.
 
T

tara

New member
Yes, my PFTs did go up during pregnancy. But not that much! I also did not try IVs while pregnant. (maybe I should have!) I'm jealous Kelly. lol! Most things about our pregnancies mirror eachother (starting weight, PFTs, twins, weight gain....it's really bizarre.) Enjoy the PFT jump. My doctor always philosophies that CF moms do better after their babies are born because we focus on our health more so we can be around to take care of our kids. I'm not so sure that is true because you and I are 100% compliant all the time. (pre pregnancy as well) But I have done fairly well, considering my age these days. Keep up the good work! Lay low when you need to. You don't have to be a track star every day!
 
T

tara

New member
Yes, my PFTs did go up during pregnancy. But not that much! I also did not try IVs while pregnant. (maybe I should have!) I'm jealous Kelly. lol! Most things about our pregnancies mirror eachother (starting weight, PFTs, twins, weight gain....it's really bizarre.) Enjoy the PFT jump. My doctor always philosophies that CF moms do better after their babies are born because we focus on our health more so we can be around to take care of our kids. I'm not so sure that is true because you and I are 100% compliant all the time. (pre pregnancy as well) But I have done fairly well, considering my age these days. Keep up the good work! Lay low when you need to. You don't have to be a track star every day!
 
T

tara

New member
Yes, my PFTs did go up during pregnancy. But not that much! I also did not try IVs while pregnant. (maybe I should have!) I'm jealous Kelly. lol! Most things about our pregnancies mirror eachother (starting weight, PFTs, twins, weight gain....it's really bizarre.) Enjoy the PFT jump. My doctor always philosophies that CF moms do better after their babies are born because we focus on our health more so we can be around to take care of our kids. I'm not so sure that is true because you and I are 100% compliant all the time. (pre pregnancy as well) But I have done fairly well, considering my age these days. Keep up the good work! Lay low when you need to. You don't have to be a track star every day!
 
T

tara

New member
Yes, my PFTs did go up during pregnancy. But not that much! I also did not try IVs while pregnant. (maybe I should have!) I'm jealous Kelly. lol! Most things about our pregnancies mirror eachother (starting weight, PFTs, twins, weight gain....it's really bizarre.) Enjoy the PFT jump. My doctor always philosophies that CF moms do better after their babies are born because we focus on our health more so we can be around to take care of our kids. I'm not so sure that is true because you and I are 100% compliant all the time. (pre pregnancy as well) But I have done fairly well, considering my age these days. Keep up the good work! Lay low when you need to. You don't have to be a track star every day!
 
T

tara

New member
Yes, my PFTs did go up during pregnancy. But not that much! I also did not try IVs while pregnant. (maybe I should have!) I'm jealous Kelly. lol! Most things about our pregnancies mirror eachother (starting weight, PFTs, twins, weight gain....it's really bizarre.) Enjoy the PFT jump. My doctor always philosophies that CF moms do better after their babies are born because we focus on our health more so we can be around to take care of our kids. I'm not so sure that is true because you and I are 100% compliant all the time. (pre pregnancy as well) But I have done fairly well, considering my age these days. Keep up the good work! Lay low when you need to. You don't have to be a track star every day!
 
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