How long do enzymes last?

[SARAHSARAH253]

<br />My son started Pre School at the elementary school last year. In his IEP I made it clear that his enzymes were to be delivered to his classroom. I did not want him in the nurses office. That's where all the sick kids are. The teacher at first wanted him to get his pills before recess then come back in the classroom ready for snack. That would mean they be "In" him for 30 min before he ate. That was not acceptable for me. So, the solution was the nurse or office aid or teacher assistant would get his enzymes for him right before snack. Good luck!!
<br />
<br />Sarah
<br />
<br />Mommy to Johnny birthday next week...He is going to be 4 w/cf and bailey 22 months no c/f

 

[zoeg]

Thanks for all the suggestions. I talked to the CF center today and they said she really does need them before lunch, not recess (I suspected this would be the case). The school seems very helpful so I did email them today and am waiting to hear back. I'm sure they will have a good system. It's just a shame that my daughter even has to deal with this! thanks!

Zoe mom to Kate wCF

 

[zoeg]

Thanks for all the suggestions. I talked to the CF center today and they said she really does need them before lunch, not recess (I suspected this would be the case). The school seems very helpful so I did email them today and am waiting to hear back. I'm sure they will have a good system. It's just a shame that my daughter even has to deal with this! thanks!

Zoe mom to Kate wCF

 

[zoeg]

Thanks for all the suggestions. I talked to the CF center today and they said she really does need them before lunch, not recess (I suspected this would be the case). The school seems very helpful so I did email them today and am waiting to hear back. I'm sure they will have a good system. It's just a shame that my daughter even has to deal with this! thanks!
<br />
<br />Zoe mom to Kate wCF

 

[Hardak]

This is a rough one, but 20 minuets before a meal is WAY to long. The idea of somebody getting your little one to go get meds a few minuets early isn't so bad. You could also consider after launch rather then before. Less then idea I know, the teacher Idea could work as well. Infact that may be the best answer provided you can get the school to go for it.

 

[Hardak]

This is a rough one, but 20 minuets before a meal is WAY to long. The idea of somebody getting your little one to go get meds a few minuets early isn't so bad. You could also consider after launch rather then before. Less then idea I know, the teacher Idea could work as well. Infact that may be the best answer provided you can get the school to go for it.

 

[Hardak]

This is a rough one, but 20 minuets before a meal is WAY to long. The idea of somebody getting your little one to go get meds a few minuets early isn't so bad. You could also consider after launch rather then before. Less then idea I know, the teacher Idea could work as well. Infact that may be the best answer provided you can get the school to go for it.

 

[mneville]

Same issues here when Aidan started Kindergarten. We always give enzymes immediately before lunch and it was an issue with the schedule. He is NOT allowed to go to nurse for enzymes because that's where the sick kids are. Since preschool, AIdan has taken his OWN enzymes. We fought hard for it and it is so worth it! I put Aidan's enzymes in his lunch and snack bag and he takes them totally on his own before he eats. It has worked out wonderfully since Kindergarten. At first, the school was upset with it but he has proven that he is 110% able to do it this way; he likes control and should have it as much as possible. If you think your daughter can handle it, ask that she take her own enzymes!
Megan

 

[mneville]

Same issues here when Aidan started Kindergarten. We always give enzymes immediately before lunch and it was an issue with the schedule. He is NOT allowed to go to nurse for enzymes because that's where the sick kids are. Since preschool, AIdan has taken his OWN enzymes. We fought hard for it and it is so worth it! I put Aidan's enzymes in his lunch and snack bag and he takes them totally on his own before he eats. It has worked out wonderfully since Kindergarten. At first, the school was upset with it but he has proven that he is 110% able to do it this way; he likes control and should have it as much as possible. If you think your daughter can handle it, ask that she take her own enzymes!
Megan

 

[mneville]

Same issues here when Aidan started Kindergarten. We always give enzymes immediately before lunch and it was an issue with the schedule. He is NOT allowed to go to nurse for enzymes because that's where the sick kids are. Since preschool, AIdan has taken his OWN enzymes. We fought hard for it and it is so worth it! I put Aidan's enzymes in his lunch and snack bag and he takes them totally on his own before he eats. It has worked out wonderfully since Kindergarten. At first, the school was upset with it but he has proven that he is 110% able to do it this way; he likes control and should have it as much as possible. If you think your daughter can handle it, ask that she take her own enzymes!
<br />Megan

 

[Mom2Brinly]

I have a cfer going into 2nd grade this 2011-2012 year! The past 2 years we had her leave recess EARLY WITH A FRIEND to stop by the nurses office wash up and then THEY BOTH would go straight to the front of the lunch room line. This way Brinly could sit with someone she wanted and it did not make her feel left out. It was really fun for Brinly because she got to pick a friend each day and everyone wanted to go with her. We had a really awesome nurse that would email me if they had lots of sick kiddos. She also gave "stinky" shots to Brinly and her friend when they came in. The only draw back was when the nurse was very busy with cuts and scrapes and Brinly had to wait for the nurse to get to her- this cut into her lunch time which was an issue!! I called the principal and they made sure that Brinly was in the front of the line at the lunch room even when it was not Brinly's teachers turn to be at the front- which was most of the time! It was always a juggling act to make sure she had enough time to eat. We also had nazi lunch room monitors and i had to have the doctor write a note to the cafeteria to not limit her junk food. I also had the principal send out a blast email to all teachers to make aware of Brinly's situation. For instance, one teacher came up to Brinly and asked why she was in the front of the lunch line? This made Brinly self conscious!! So just watch it closely and make sure that she has enough time to eat. I also found that bringing her lunch saved time than going through the lunch line. Now that she is older I am planning on putting her enzymes in her lunch box she when she sits down for lunch she takes them herself. We are in Texas and they just past the law that cystic fibrosis at any age can have the enzymes with them at all times. Snacks were also an issue- i put a snack box in her teachers room and Brinly could go to it at anytime and get a snack even if it was not snack time. This year 2nd graders do not get snacks and again we are putting a large pencil box full of snacks and enzymes in her desk-that way she can eat ANYTIME she is hungary. We are also having the child life specialist from our cf clininc come and talk to the kids about cf and her eating snacks hospital stays etc. So everyone will get it!!
Good luck! Just keep a close eye on how things are going and make changes to fit your cfer as needed!!
Blythe
Mom 2 Brinly 7 with cf

 

[Mom2Brinly]

I have a cfer going into 2nd grade this 2011-2012 year! The past 2 years we had her leave recess EARLY WITH A FRIEND to stop by the nurses office wash up and then THEY BOTH would go straight to the front of the lunch room line. This way Brinly could sit with someone she wanted and it did not make her feel left out. It was really fun for Brinly because she got to pick a friend each day and everyone wanted to go with her. We had a really awesome nurse that would email me if they had lots of sick kiddos. She also gave "stinky" shots to Brinly and her friend when they came in. The only draw back was when the nurse was very busy with cuts and scrapes and Brinly had to wait for the nurse to get to her- this cut into her lunch time which was an issue!! I called the principal and they made sure that Brinly was in the front of the line at the lunch room even when it was not Brinly's teachers turn to be at the front- which was most of the time! It was always a juggling act to make sure she had enough time to eat. We also had nazi lunch room monitors and i had to have the doctor write a note to the cafeteria to not limit her junk food. I also had the principal send out a blast email to all teachers to make aware of Brinly's situation. For instance, one teacher came up to Brinly and asked why she was in the front of the lunch line? This made Brinly self conscious!! So just watch it closely and make sure that she has enough time to eat. I also found that bringing her lunch saved time than going through the lunch line. Now that she is older I am planning on putting her enzymes in her lunch box she when she sits down for lunch she takes them herself. We are in Texas and they just past the law that cystic fibrosis at any age can have the enzymes with them at all times. Snacks were also an issue- i put a snack box in her teachers room and Brinly could go to it at anytime and get a snack even if it was not snack time. This year 2nd graders do not get snacks and again we are putting a large pencil box full of snacks and enzymes in her desk-that way she can eat ANYTIME she is hungary. We are also having the child life specialist from our cf clininc come and talk to the kids about cf and her eating snacks hospital stays etc. So everyone will get it!!
Good luck! Just keep a close eye on how things are going and make changes to fit your cfer as needed!!
Blythe
Mom 2 Brinly 7 with cf

 

[Mom2Brinly]

I have a cfer going into 2nd grade this 2011-2012 year! The past 2 years we had her leave recess EARLY WITH A FRIEND to stop by the nurses office wash up and then THEY BOTH would go straight to the front of the lunch room line. This way Brinly could sit with someone she wanted and it did not make her feel left out. It was really fun for Brinly because she got to pick a friend each day and everyone wanted to go with her. We had a really awesome nurse that would email me if they had lots of sick kiddos. She also gave "stinky" shots to Brinly and her friend when they came in. The only draw back was when the nurse was very busy with cuts and scrapes and Brinly had to wait for the nurse to get to her- this cut into her lunch time which was an issue!! I called the principal and they made sure that Brinly was in the front of the line at the lunch room even when it was not Brinly's teachers turn to be at the front- which was most of the time! It was always a juggling act to make sure she had enough time to eat. We also had nazi lunch room monitors and i had to have the doctor write a note to the cafeteria to not limit her junk food. I also had the principal send out a blast email to all teachers to make aware of Brinly's situation. For instance, one teacher came up to Brinly and asked why she was in the front of the lunch line? This made Brinly self conscious!! So just watch it closely and make sure that she has enough time to eat. I also found that bringing her lunch saved time than going through the lunch line. Now that she is older I am planning on putting her enzymes in her lunch box she when she sits down for lunch she takes them herself. We are in Texas and they just past the law that cystic fibrosis at any age can have the enzymes with them at all times. Snacks were also an issue- i put a snack box in her teachers room and Brinly could go to it at anytime and get a snack even if it was not snack time. This year 2nd graders do not get snacks and again we are putting a large pencil box full of snacks and enzymes in her desk-that way she can eat ANYTIME she is hungary. We are also having the child life specialist from our cf clininc come and talk to the kids about cf and her eating snacks hospital stays etc. So everyone will get it!!
<br />Good luck! Just keep a close eye on how things are going and make changes to fit your cfer as needed!!
<br />Blythe
<br />Mom 2 Brinly 7 with cf