My name is Amber. I am 13 years old. I was diaginoised with CF at 6 weeks. I was very healthy, except for my weight and height, up until first grade. After that I fell faster then a rock. I was in the hospital every 2-4 months. At about 10 I got a port placed, because my veins were so bad from so many pick lines. By age 11 I got a feeding tube placed, because I was lossing weight so rapidly. At 11 in 6th grade I weighed between 55 and 60 lbs and I was about 4'6". Now with a feeding tube I am between 96 and 104 lbs. and about 5'1"
I was also placed in foster care with a nurse because the pressure was too much for my mom. I have live in my foster home since October 8, 2004. I still see my parents every weekend (I spend the night there friday through sunday). Before I went to live with my foster parents my life expectancy was less then a year.
Amber F/13 W/Cystic Fibrosis